Javoszia Sterling BA ESRD Network of Texas Inc TEEC Member What is ESRD End Stage Renal Disease Treatments Hemodialysis home and incenter Peritoneal dialysis manual home transplant Patients needs ID: 932635
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Slide1
Emergency Preparedness in the Dialysis Community
Javoszia Sterling, BAESRD Network of Texas, Inc.TEEC Member
Slide2What is ESRD
End Stage Renal DiseaseTreatmentsHemodialysis (home and in-center)Peritoneal dialysis (manual home)transplantPatients needsDisaster preparednessWhat is TEECTexas Emergency ESRD CoalitionWrap up
Discussion Topics
Slide3ESRD is when the kidneys stop working well enough for you to live without dialysis or transplant
Anyone can have ESRD2/3 of cases are caused by diabetes or hypertensionOther causes can be congenital, reaction to medication, or injury
End Stage Renal Disease (ESRD)
Slide4Hemodialysis
Uses machine to clean the bloodIn-center or homeRequires an access site3 treatments per weekTreatments can be 4-5 hours in lengthPeritoneal DialysisUses the lining in the abdomen (peritoneum) and a special solution (dialysate)CCPDCAPD
Performed daily
Offers flexibility
Transplant
When a healthy kidney from another person is put into the body of anotherDeceased or living donorSupply and demand
Treatment
Slide5Many are elderly (average age of just over 60)
ESRD increases the chances of other comorbiditiesTake an average of 19 medications per daySpecial requirements: EquipmentWaterPersonnelDiet plan
ESRD Patients
Slide6Question:
How long can an ESRD patient live without dialysis?3-10 days
ESRD Patients
In Texas there are over:
670 dialysis facilities
60,000+ patients
Slide7Many dialysis facilities may be inoperable
Patients can be scattered in an evacuationUtilities and supplies can be scarceLocal communication can be disrupted
Issues During Disasters
Slide8Patients will become critically ill and perish without treatment.
Patients:Will experience a heightened sense of fear and confusionMay be physically weak, dizzy, or disorientedMay have just begun treatment at the time of disaster and will be concerned about next treatment
During an Emergency
Slide9Priority will be to find and receive treatment
Patients should have some disaster preparationAs a group, they will be weaker and sicker than the average person
Patients’ Needs
Slide10Patients are encouraged to evacuate early to ensure placement at an open dialysis facility.
Patients should take emergency supplies with them.Start the emergency/disaster diet (sometimes called the three day diet) immediately.If patients must go to a shelter, they should inform the person in charge of their special needs.
Patient Disaster Preparedness
Slide11INFORMATION!
Greatest fear will be where and when will they receive treatment.Will want to know who is in charge.Will need to be reassured that their needs are understood.
Special Needs
Slide12Reduces protein and potassium
Sodium restriction is very importantPatient disaster manuals have detailed meal plans.
Emergency Diet
Fluid restriction is a large part of the emergency diet. Many shelters push hydration, but this could be very harmful for a dialysis patient.
Slide13Emergency Diet
Slide14Dialysis patients, especially in coastal areas should have a water proof bag to use during an emergency evacuation to keep:
Their 7 day supply of medicationsMedical recordsOther important documentTreatment flow sheets
Emergency phone numbers
TEEC
Backup dialysis facility
Disaster Plans for Patients
Slide15Telling patients to go to the hospital emergency room
IS NOT A DISASTER PLAN!
Disaster Plans for Patients
Slide16The mission of TEEC is to ensure a coordinated preparedness plan, response, and recovery to emergency events affecting the Texas ESRD community.
Texas ESRD Emergency Coalition
Slide17TEEC is a voluntary group of:
ESRD providersESRD patientsState, regional, and local agenciesEducates facilities on how to prepare for emergenciesEducates patientsServes as a resource for patients, facilities, and external stakeholders
TEEC
Slide18TEEC partners with Emergency Operations Centers and DSHS leadership in the event of an emergency
Deploys a Command Center for all ESRD facilities and providers before, during and after a disaster.
TEEC
Slide19TEEC has established a toll free number for ESRD patients that will be used during emergencies.
The command center will be staffed by representatives from the ESRD Network, LDOs, nurses, physicians, social workers, and dietitians.Command center is the ESRD community’s voice to state officials during a time of need.
TEEC Command Center
Slide20TEEC has established a toll free number for ESRD patients that will be used during emergencies.
The command center will be staffed by representatives from the ESRD Network, LDOs, nurses, physicians, social workers, and dietitians.Command center is the ESRD community’s voice to state officials during a time of need.
TEEC Command Center
Slide21238 facility closures14,000 patients affectedReasons
FloodingStorm damageLack of staffing
Hurricane Harvey
: Lessons
Learned
Slide22Texas ESRD Emergency Coalition
www.texasteec.orgPatients can also call 866.407.ESRDESRD Network of Texaswww.esrdnetwork.orgNational Kidney Foundationwww.kidney.orgTexas Kidney Foundationwww.txkidney.org
Resources
Slide23Contact Info:
Betrice WilliamsEmail: BWilliams@nw14.esrd.netPhone: 469.916-3807Javoszia Sterling
Email:
jsterling@nw14.esrd.net
Phone: 469.916-3800
Questions