EDUCATION DAY: TEAM –BASED CARE OF COMPLEX PNDs - PowerPoint Presentation

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EDUCATION DAY:TEAM –BASED CARE OF COMPLEX PNDs

WORKSHOP 2:

Technologies for Communication and Environmental Control

Communication Assessment Process

Comprehensive Speech Pathology assessment - to identify clients and families needs around

communication

Assess clients current abilities and likely future

needs

Work

with

the wider multidisciplinary team OT/PT for optimal

outcomes

Ongoing monitoring/support and referral to community

services

Electronic

Communication Devices

Scheme

(ECDS

)

A state-wide service that

subsidises

speech generating communication devices (SGD’s), software and access methods for people who have a communication impairment up to $7,000.

You need:

DHS A&EP application filled by client or

carers

with Doctor’s signature

Speech Pathology Report Form (Include unlocked devices form and

quotes)

2

week device trial – to test suitability and meeting needs in all

environments

For any mounting or alternate access requirements – OT assessment and report is also required

To find out more. Phone: 1300 885 886 (VIC only)

Email: ecds@yooralla.com.au

Communication Support Options

Voice Banking

Differentiated from Message Banking (

eg

., service offered by

Zyteq Australia) and Story BankingRecording a large inventory of your speech that is then used to create your personal synthetic voice that can be used on a communication device.Aim to get it done earlier with bulbar onset MND or if clients are interested Compatible with Predictable, Chatable and The Grid softwareFree to complete with instructions online www.modeltalker.orgYou need a wired, head-mounted microphone with a USB interfaceRecord 10 screening sentencesRecord the full inventory of 1600 sentences and upload them online

Complete voice file sent to clients computer/SGD

George

64 year old

Multi-System Atrophy diagnosis for over 10years

Lives at home with wife and supportive children nearby

Last 6 months functional decline, moderate Dysphagia, Dysarthria and some mild cognitive changesSpeaks Greek to family and friends, Able to speak and used to write in EnglishApproximately 60% intelligible in conversation, family report getting more difficult to understand his speechAdequate upper limb function but reports harder to hold pen to write

George wants the ability to have pre-saved phrases so he can be more efficient in conversation

Assessment outcome:

The Grid 2 is available in Greek and can be installed as an additional language after the installation of The Grid 2 in English

As Greek uses a non-

latin

alphabet there are some additional steps to setting up The Grid 2A Microsoft Surface-Pro tablet will run the Grid 2 software optimally as the software is not compatible with Ipad or Android devicesGeorge currently able to use with direct access, however if hand function/access deteriorates we will refer to our OT colleagues for further advice and system would be easily compatible with options switches/head mouse control Son computer savvy and happy to provide ongoing support as needed

Low tech options for back up – whiteboard with

Texta

– easier to hold and fixed message/

greek

alphabet boards George can point to

Peter

70y.o

Bulbar MND diagnosed July 2014

Lives at home with wife and supportive children nearby

PEG and NIV at night, encouraged to start using during the dayMild Dysarthria, hypernasality and speech intelligibility deteriorates with fatigue No cognitive changes, adequate upper limb function and hand dexterity

Wife already purchased a mini

Ipad

for his 70th Birthday

Peter wishes to maintain independence in communicating with family/friends and is worried that grandchildren may have difficulty understanding him soon

Assessment outcome:

Peter will commence voice banking as it is important for him to have a synthetic voice that sounds similar to his natural voice

Predictable text to speech software will be applied for via ECDS

Bulbar phenotype - may not develop difficulties with access to device

Will continue to use speech as primary mode of communication and use Predictable on Ipad when fatiguedLow tech options for back up – pen and paper

Follow and support from SP at our outpatient clinic or referral to local community service if needed

Bob – Eye Gaze