FLRDC Consortium Presented by Jaclyn Hall PhD Sept 7 2021 The UFFSU hub is supported by the National Center for Advancing Translational Sciences of the National Institutes of Health under University of Florida Clinical and Translational Science Awards UL1TR001427 KL2TR001429 and TL1TR ID: 931090
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UF + FSU
Florida Federal Statistical Research Data Center —FLRDC Consortium—
Presented by: Jaclyn Hall, PhD. Sept. 7, 2021
The UF-FSU hub is supported by the National Center for Advancing Translational Sciences of the National Institutes of Health under University of Florida Clinical and Translational Science Awards UL1TR001427, KL2TR001429 and TL1TR001428.
Slide2Florida Federal Statistical Research Data Center
—FLRDC Consortium—
Jaclyn Hall, PhD,
Faculty in the Department of Health Outcomes and Biomedical Informatics, UF College of Medicine
Slide3Agenda
Overview of FSRDC program
History of RDCs
Introduction to the FLRDC
RDC proposal process and research environment
Administrator job posting
Questions in chat
Slide432 RDC Locations
FLRDC
Atlanta
Boston
California - Berkeley
California - IrvineCalifornia - StanfordCalifornia - UCLACalifornia - USCCB HeadquartersCentral Plains (Lincoln)ChicagoDallas-Fort Worth
Florida (Gainesville)GeorgetownKansas CityKentucky (Lexington)Maryland (College Park)Michigan (Ann Arbor)Minnesota (Minneapolis)Missouri (Columbia)New York - Baruch
New York - CornellNorthwest (Seattle)Penn StatePhiladelphiaRocky Mountain (Colorado)Texas (College Station)Texas - UT AustinTriangle - DukeTriangle - RTI
University of Illinois
Urbana-
Champaing
Wisconsin (Madison)
Yale
Slide5About the RDC Lab
Visit our website:
https://www.ctsi.ufl.edu/research/laboratory-services/florida-rdc/
Slide6Remote Access Pilot
Remote access
Projects looking at delomorphic data from Census and ACS
No Federal tax data
No NCHS
No employment data
Slide7About the RDC Lab
The RDC is a local physical environment
Open in September 2021 - UF East Campus
7 thin client work stations
Census Bureau requirements
24-7 Security System, badge readers, camera
Special Sworn StatusNo electronic devices allowed
NOTHING leaves the secure lab without approval
Visit our website:
https://www.ctsi.ufl.edu/research/laboratory-services/florida-rdc/
Slide8Functions
Allow access to a wide variety of federal micro data, small area micro data
economic, population, and health data
To facilitate
statistical
research
Improve utility and quality of federal statisticsAddress policy questions
Allow access to a wide variety of federal micro data
Census Bureau
*National Center for Health Statistics
*Bureau of Labor Statistics
Agency for Healthcare Research and Quality
Bureau of Economic Analysis
THE UF-FSU FLRDC Consortium
Slide9To the Researcher
Key Advantages of an RDC
More geographic detail
PUMA for summary data
down to the census tract and census block level
Additional variables
More detailed coding within the variables
Variables with higher top codes
Linkages to other administrative data
(or even your own institution’s data)
Slide10To the Research Community
Key Advantages of an RDC
Greatly expands the policy and basic questions that can be addressed
Builds on past research findings with richer data
Improves graduate education (big data/statistical techniques) and placement
Improves competitive edge for grants and publications
Increases competitive recruitment
Slide11Public
Reports
Data files: collapsed categories, summarized
Restricted: Indirect Identifiers
:
Available through the FSRDC locations
GeographyDates
Detailed race/ethnicity
Occupation
Prohibited: Direct Identifiers
Never available
Name
SSN
Address
Used to create the Linkage Products and removed
Types of Data and Data Access
Slide12Members
Federal Statistical Agencies
U.S. Census Bureau
National Center for Health Statistics
Bureau of Labor Statistics
Bureau of
Economic
Analysis
The Agency for Healthcare Research and Quality
Social Security Administration
US Department of Agriculture (USDA)
Economic Research Service
Bureau of Justice Statistics
National Center for Education Statistics
Office of Management and Budget
Energy Information Agency
Bureau of Transportation Statistics
Statistics of Income Division (IRS)
Department of Housing and Urban Development
Environmental Protection Agency
Energy Information Administration
National Center for Science and Engineering Statistics
Slide13Social Security Administration
SSA
Summary Earnings Record
Master Beneficiary Record
Disability File
Detailed Earnings Record
Slide14Centers for Medicare & Medicaid Services
CMS
CMS Transformed Medicaid Statistical Information System
(TMSIS)
CMS Medicare Enrollment Database
(EDB)
CMS Medicaid Statistical information System
(
MSIS)
Slide15Longitudinal Employer-Household Dynamics
LEHD
LEHD Unit-to-Worker (U2W)
LEHD Successor-Predecessor File (SPF)
LEHD Quarterly Workforce Indicators (QWI)
LEHD Individual Characteristics File (ICF)
LEHD Geocoded Address List (GAL)
LEHD Employment History File (EHF)
LEHD Employer Characteristics File (ECF)
LEHD Business Register Bridge (BRB)
Slide16Longitudinal Employer-Household Dynamics-
State Partners
Slide17Census Bureau
CB
Decennial Census
(CEN),
American Community Survey
(ACS)
Demographic Data
Current Population Survey Computer and Internet Use Supplement (CEN-BLS)
CPS Fertility Supplement (CEN-BLS)
CPS Tobacco Use Supplement (CEN-NCI)
Mortality Disparities in Communities (CEN-NIH-FDA-NCHS)
National Longitudinal Mortality Study (CEN-NCI-NCHS-NHLBI-NIA)
National Immunization Survey Evaluation Study (CEN-National Center for Immunization and Respiratory Diseases (NCIRD)
Economic Data
LEHD
Experimental Data Products
Post-Secondary Employment Outcomes (PSEO)
Household Pulse Survey
Community Resilience Estimate
Veteran Employment Outcomes
Small Business Pulse Survey: Tracking Changes During The Coronavirus Pandemic
https://www.census.gov/programs-surveys/ces/data/restricted-use-data.html
Slide18National Health Care Surveys
National Ambulatory Medical Care Survey (NAMCS) and National Hospital Ambulatory Medical Care Survey (NHAMCS)
National Hospital Discharge Survey (NHDS)
National Nursing Home Survey (NNHS) and National Nursing Assistant Survey (NNAS)
National Home and Hospice Care Survey (NHHCS) and National Home Health Aide Survey (NHHAS)
National Survey of Residential Care Facilities (NSRCF)
National Study of Long-Term Care Providers (NSLTCP)
National Hospital Care Survey (NHCS)
National Survey of Family Growth (NSFG)
National Center for Health Statistics
National Health Interview Survey (NHIS
)
National Health and Nutrition Examination Survey
National Survey of Family Growth (NSFG)
State and Local Area Integrated Telephone Survey (SLAITS)
National Survey of Children’s Health (NSCH)
National Survey of Children with Special Health Care Needs (CSHCN)
National Vital Statistics System (NVSS) Data
National Maternal and Infant Health Survey
Mortality
Data Files - NDI
Multiple Cause of Death Data File
Drug Involved Mortality Restricted Variables
Redacted Death Certificate Literal File
Slide19National Center for Health Statistics
National Health and Nutrition Examination Survey (NHANES)
Linked to National Death Index
ICD codes for cause of death including many related to occupation (e.g. fumes and vapors)
Detailed health data -related to occupational environmental exposure, collected through medical examinations and interviews
Job-related asthma, tobacco exposure, sound exposure, mineral dust exposure, exhaust
Diagnoses for many different cancer types and age of diagnosis
Treatments for specific diagnoses: surgery, radiation treatment, medicines
Geographic Identifiers (restricted data)
Latitude Longitude coordinates for household
Census tract (2000, 2010) and postal geographies
Occupation Industry Codes (restricted data)
4 digit codes for current and longest-held jobs
National Health Interviews Survey (NHIS)
Linked to National Death Index
Interview data focused on tracking access to healthcare and health status of the nation with larger yearly sample than NHANES
Geographic Identifiers (restricted data)
Latitude Longitude coordinates for household
Census (2000, 2010) and postal geographies
Occupation Industry Codes (restricted data)
4 digit codes for current and longest-held jobs
ICD codes for cause of death including many related to occupation (e.g. fumes and vapors)
Slide20Agency for Healthcare
Research and Quality
Medical Expenditure Panel Survey (MEPS)
Household Component–Insurance Component Linked File (available for 1996–1999 and 2001).Diagnoses for many different cancer types and age of diagnosis
Nursing Home Component (available for 1996 only). The survey gathered information on the demographic characteristics, residence history, health and functional status, use of services, use of prescription medications, and health care expenditures of nursing home residents. Treatments for specific diagnoses: surgery, radiation treatment, medicines
Medical Provider Component. The primary purpose of the Medical Provider Component is to collect detailed charge and payment data from hospitals, physicians, home health care providers, and pharmacies to supplement information received from Household Component respondents on their health care expenses.
Area Health Resources Files. Historic data for more than 6,000 variables for each of the nation's counties-It contains information on health facilities, health professions, measures of resource scarcity, health status, economic activity, health training programs, and socioeconomic and environmental characteristics
Confidential and non-public use variables
Fully Specified ICD-9 Codes:
These codes allow medical conditions to be identified with greater specificity.
Fully Specified Industry and Occupation Codes:
These codes allow a worker's industry and occupation to be identified with greater specificity.
State and County FIPS Codes:
These codes can be used to merge data from the Area Resource File, or any data at the State and/or County level, onto the MEPS data.
Census Tract and Block-Group Codes:
These codes can be used to merge data from any data at the tract or block-group level
Non-Public Use Data Elements:
These are data elements from our questionnaires that are not directly identifiable data, i.e., asset information and imputed NDC codes.
Federal and State Marginal Tax Rates:
Tax simulations using the National Bureau of Economic Research's TAXSIM package- 1996-2017 HC full-year populations. Tax amounts and marginal tax rates have been computed for Federal, State and FICA taxes.
https://meps.ahrq.gov/mepsweb/data_stats/onsite_datacenter.jsp?#
Slide21Example Health Research
Noon, James M., Leticia E. Fernandez, and Sonya R. Porter, “
Response Error and the Medicaid Undercount in the Current Population Survey
,” Health Services Research, 2019, 54:34–43
2006‐2010 Medicaid Statistical Information System (MSIS)
Sandler, Danielle, and Nichole Szembrot, “Maternal Labor Dynamics: Participation, Earnings, and Employer Changes,” Center for Economic Studies Working Paper 19-33, 2019. longitudinal administrative earnings data from the Longitudinal Employer-Household Dynamics database combined with the Survey of Income and Program Participation survey data
Germack, H. D., Drake, C., Donohue, J. M., Golberstein, E., & Busch, S. H. (2020). National Trends in Outpatient Mental Health Service Use Among Adults Between 2008 and 2015. Psychiatric Services, 71(11), 1127-1135.
Medical Expenditure Panel Survey Fletcher, Jason M., “Examining the Long-term Mortality Effects of Early Health Shocks,” Applied Economics Letters, 2019, 26:902–908.
National Longitudinal Mortality Study in the United States to explore the mortality effects of the 1918 influenza pandemic for those in utero
Slide22Proposal Review Process
Proposal –Administrator will assist
Identify a need for restricted data
Identify public health benefit
Assess disclosure risk
Determine software needs
Disclosure Review and project approval
RDC analyst/ Data representative/NCHS Confidentiality officer/ RDC Director
Reviews it for disclosure (not scientific merit)
The review process tends to be back-and-forth where we work together to determine exactly what you need to answer the question without compromising confidentiality
Can take 4-9 months **
Special Sworn Status - which requires an in depth background check and can take 2-3 months to complete. ($1800)
Slide23See materials at the FLRDC website.
How Do I Get Started?
https://www.ctsi.ufl.edu/research/laboratory-services/florida-rdc/
Slide24Annual
Research Reports