By Ellie Dunning Lori Hansen Ashley Housten Katherine Hutson Hailey Johnson Jamie Kaplan Jessica Koster Katy Lyznicki Cambey Mikush amp Kara Peters Introduction Movie I am Sam I am Sam Trailer ID: 334245
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Slide1
Protecting the Rights of Parents with Disabilities
By: Ellie Dunning, Lori Hansen, Ashley Housten, Katherine Hutson, Hailey Johnson, Jamie Kaplan, Jessica Koster, Katy Lyznicki, Cambey Mikush, & Kara PetersSlide2
Introduction
Movie– I am Sam
I am Sam Trailer
Parenting is the “last frontier for people with disabilities” in their fight for full inclusion, and is a highly likely arena for prejudice (Kirshbaum & Olkin).Slide3
Issue:
Attitudinal & Political Barriers
Societal Stigma
State Policies
There are approximately 8.4 million parents with disabilities = 15% of all U.S. ParentsSlide4
Issue:
Negative Actions and Behaviors
In a national survey by Through the Looking Glass,
13% of parents reported pressure to have an abortion 15% reported attempts to have their child taken away 8% faced barriers interfering with or preventing them from adopting
For parents with mental illnesses, custody loss rates are as high as 70-80%
In the early to middle
1900s, there were laws allowing
for the forced sterilization of
60,000 Americans with disabilities,some as young as 10 y.o.Slide5
Issue:
Reasons for Continued Limitations...
Inadequate financial resources
Environmental barriers Lack of positive role models and familial support
Limited social support networks
Prevailing stigma and societal views
Limited and flawed research and literature
Largely unsuccessful implementation of the ADA and Adoption and Safe Families Act of 1997 State codes that focus on conditions rather than behaviorsSlide6
Target Population
People with disabilities who are parents or wish to become parents2000 US Census polled 72.3 million families
28.9% had someone in the family with a disability
18% reported the head of the household as having a disability
General lack of recent, substantive data on the number of parents currently living with a disabilityRemain a highly invisible populationFlawed assumptions about the low prevalence of parents with disabilitiesSlide7
Context
Parenting is an important and meaningful occupationOTs can help individuals with disabilities participate in this occupation by:
Providing comprehensive person, environment, and activity assessments
Determine which supports and education are needed to enable the individual to be a successful parent
Help the individual obtain the needed supports and educationSociety’s focus needs to change from the parent’s disability to the child’s well-beingIf proper supports are provided and the child’s well-being is secure, then it shouldn’t matter that the parent has a disabilitySlide8
Efforts to Address the Issue
Through the Looking GlassGiving parents with disabilities the support they need to be successful parents
3 year grant awarded in 2008
Funds research in hopes of increasing knowledge about the issue
Informs local, regional, and national policies in hopes of a change Baby-care equipmentWheelchair lap trays for nursingBaby liftersNational Parent to Parent NetworkNational Parents with
Disabilities BlogSlide9
Options
ADA of 1990 prohibits discrimination based on disability Title IIPeople with disabilities are able to benefit from state and local government
activities, programs, and
services
People with disabilities cannot be discriminated against in areas of their child’s education or social servicesCovers services such as Child Protective Services and public educationTitle IIINon-discrimination requirements limiting exclusion, segregation and unfair treatment from public accommodations such as public accommodations, private schools, and day care centers Slide10
Definition Recommendation
Child protection systems operate on the three central themes when assessing parental rights:Child safety
C
hild permanency
Child well-being By outlining these three areas as protections for parents with disabilities, the focus will be on the child’s well-being rather than the stigma of the parent with a disability. Slide11
Policy
RecommendationWe propose amending the ADA by adding Title VI to specifically outline the rights of parents with disabilities though:
Social policy
Community supports
Research funding to ensure that adults with disabilities will have equal opportunity to be a parentSlide12
Social Policy Recommendations
Increase public awareness by creating coalitions of like-minded organizations to pool resources and advocate together for change on a global scale Increase the resources available to
Lobby
Conduct research
Disseminate informationAddress framing and marketing issuesIncrease financial backing Slide13
Community Support Recommendations
Enhancing community supports for parents with disabilities is a critical step in enabling successful parentingInclusive parenting classes
Flexible childcare services
Central transportation
centers Home support programs Equipment sharing programs Slide14
Funding Recommendations
Creation of a coalition to compel the government to increase the scope of funding to meet the needs of parents with disabilities
Local community grants, like the United
Way
National Parents with Disabilities and their FamiliesSlide15
Implementation: Obstacles
FundingLack of money
Securing
initial
fundsAllocating ResourcesStigmas: Community and individualSlide16
Occupational Therapy Role
Person Level
: Identify the client’s strengths and limitations related to parenting
Environment Level: Identify supports and barriers to successful parenting Advocate
Spread awareness
Help
build alliances
within a community Serve as consultants Highlight the existing parents that are loving and supportive parents to their childrenSlide17
Conclusion & Discussion
I Am Sam clip
Thank you for listening!
Any Questions or Comments?Slide18
References
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