Offers individualized support to families living with FASD along with opportunities to gather connect and share lived experiences This program has a goal of empowering healthy families and healthy communities ID: 1000340
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2. “For individuals with Fetal Alcohol Spectrum Disorder and their families to recognize themselves as safe, supported, valued, included and contributing members of the community.”
3. Offers individualized support to families living with FASD along with opportunities to gather, connect, and share lived experiences. This program has a goal of empowering healthy families and healthy communities.Toll Free Support Line: 1-866-673-3276
4. The FASD Network offers a variety of tailored Workshops & Training sessions to organizations that work with individuals living with FASD. These sessions can be held anywhere in Saskatchewan.Frontline Training.Principles and Practices.Post-Secondary.To book a Workshop or Training session please contact:fasdtrainingoffice@sasktel.net
5. FASD is an umbrella term used to describe the range of disabilities caused by drinking alcohol during pregnancy.
6. Alcohol is a teratogen, it is a substance that can interfere with the development of an embryo or fetus and result in birth defects.FASD is considered a spectrum disorder because of the diversity of possible effects and the range of possible diagnoses within the spectrumCriteriaFetal Alcohol Syndrome (FAS)Partial Fetal Alcohol Syndrome (pFAS)Alcohol Related Neuro-developmental Disorder (ARND)Alcohol Related Birth Defects (ARBD)Maternal alcohol exposureXXXXFacial characteristicsXXGrowth deficienciesXXCNS damageXBehavioural/cognitive abnormalitiesX
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9. SaskatoonAlvin Buckwold Childhood Development Centre offers assessment and diagnostic services for children and youth from birth to 18 years. (306) 655-1070Adults can receive a psychological assessment from Dr. Gerald Block. 1-866-673-3276
10. Prince AlbertThe Early Childhood Development Team offers assessment services for children from birth to preschool age. (306) 765-6126The Child and Youth Development Clinic offers assessment & diagnostic services for children starting in Kindergarten, through to young adults aged 24 years. (306) 765-6068Adults can receive a psychological assessment from Dr. Gerald Block. 1-866-673-3276
11. ReginaRegina Child and Youth Services offers assessment and diagnostic services for children and youth and adults. (306) 766-6700The FASD Centre at Regina Community Clinic offers support, assessment, diagnosis and follow-up for persons aged six through adulthood. Contact Cheryl Charron at (306) 543-7880 ext. 268
12. Primary disabilities refer to characteristics that are directly caused by prenatal alcohol exposure. Physical.Cognitive.Behavioural.Sensory.
13. Delayed motor development.Problems with fine and gross motor control.Poor balance.Lower height or weight.Auditory impairments.Poorly developed body systems.
14. Difficulty with Memory.Slower Processing.Short Attention Span.Impaired Executive Functioning. Difficulty Setting and Reaching Goals.Problems Generalizing. Problems Connecting Cause and Effect.Poor Receptive Language Skills. Trouble with Abstract Concepts. May Have Lower IQ.Confabulation.
15. ConfabulationCaused by memory deficits.‘Fill in the blanks’.Can be influenced by something heard, projected, seen or a memory of another event.
16. Cause and EffectDeficits in information processing influence the individual’s ability to:Translate information in to appropriate actions. Predict outcomes.Connect an action to a consequence.Generalize information from one environment to another.
17. Behavioural disabilities include an assortment of actions, reactions, voluntary, and involuntary activities.Inaccurate ProcessingDisorderedBehaviouralResponses
18. Dysmaturity.Problems with social skills.Trouble with social cues.Impulsive actions.Mood Swings.Inflexibility. Lack of Inhibitions.Perseveration. Reacts poorly to changes in routine.Poor understanding of ownership.Poor understanding of personal space.Hard time regulating emotions.Vulnerable to peer pressure.Easily overwhelmed.Unrealistic expectations.
19. Every day we are bombarded with sensory informationSensory processing: Receiving and interpreting this informationSensory integration: When all the senses work together
20. This can result in:Sensory seeking behaviours.Sensory avoidant behaviours.Sensory integration problems.Sensory processing problems.Unusually high or low activity level.
21. Under-sensitiveOver-sensitive Taste/Smell Touch Hearing Sight Vestibular Input Proprioception Poor sense of smellLikes very strong, crunchy or spicy foodsChewing inedible objects / picaOveractive gag reflexAvoid crunchy textures, seek soft foodsCan’t focus when certain smells are presentUnusually high pain toleranceCraves touchLikes being wrapped up tightly in clothes/blanketsUnusually low pain toleranceWon’t wear some clothing texturesTags on clothing cause painStruggles with hygiene because of sensitivityDoesn’t seem to hear othersSpeaks very loudlyTrouble following verbal instructionsDistracted easily by background noiseSpeaks very softlyOverwhelmed in noisy spacesLoses place when readingTrouble reading body languageTactile learnerTrouble discerning objects in clutter Distracted easily by visual stimuliDislikes fluorescent lightAvoids eye contactCraves fast, vigorous movementFidgetyPoor balanceUnable to mimic facial/body expressionBecomes carsick easilyAvoids movementAnxiety in environments with lots of people and/or movementLeaning on objects or people Supporting head with handsHand on wall while walkingRocking, or banging headJumping on bedHiding under heavy blanket
22. Secondary disabilities are difficulties that are NOT directly caused by prenatal alcohol exposure but arise later in life and develop over time.
23. Mental health issues.Addictions.Justice issues.Education and employment.Housing and homelessness.Relationship and friendship issues.Sexuality.Parenting with FASD.
24. Complications arise most often because of:Undiagnosed primary disability.Lack of intervention.Lack of services.Ineffective Strategies.Unrealistic expectations.
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26. Builds on strengths to accommodate deficits.Sets the individual up to be successful.Take a moment to think of someone you know who is living with FASD. What are their strengths? Source: Susan Opie- http://www.skfasnetwork.ca/main/wp-content/uploads/2011/12/February-15-Concurrent-Susan-Opie-Respectful-Caregiving-and-Support.pdf
27. From Won’tTo Can’tAnnoyingFrustrated, challengedLazyTired of failing LiarFilling in the blanksFussyOversensitiveActing youngerBeing youngerAttention seekerNeeds contact/supportInappropriateDisplays behaviours of a younger child
28. Typical BrainBrain affected by FASD
29. Use clear and concrete words.Say exactly what you mean.Avoid words with double meanings. Limit distractions.Use a calm and clear voice.Make consequences as immediate as possible.Use positive reinforcements to encourage good behavior.Visual reminders.Map decision making. Use social stories to demonstrate the outcomes of actions and inactions.
30. How do we, as professionals, determine what needs to be adapted for the individual we are supporting?
31. Identify the concerning behaviour.Identify the associated primary symptoms of FASD.Adjust for dysmaturity.Identify environmental factors that are impacting behaviour.What accommodations can you make based on the factors you identified?
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33. Individual does not wear clean clothing.
34. Take the closet doors off, so the whole closet can be viewed at a glance.
35. Individual is always late for appointments.
36. Structured work schedule & transitions are very helpful, they assist with decreasing stress and anxiety.Have regular check-ins to notify of schedule. Use visuals and available technology for your calendars.Multiple calendars help.
37. Concepts like how long a task will take or knowing when to take a break can be difficult.Individuals living with a cognitive disability may not feel time pass the same way peers may.Helpful ideas: Provide training for time management, use strategies like timers, clocks, and count downs.
38. Employers struggling with employee behaviour and/or learning at work.
39. Instead of asking for an emergency contact when employee’s fill out their hire paperwork, as for the name of their contact person for potential check-ins and problem solving. This person can be a friend, parent, mentor, support worker.Using a job coach can help with the training process, and then this person can continue to be a go-to for the individual.
40. An individual does not speak out when they are blamed for something that is in reality a result of their disability.
41. Without advocating anger and frustrations almost always result.A tool prior to employment to ensure the employer knows how to support the individual (strengths and challenges).Assess their feelings and gain the understanding needed to speak on their own behalf.
42. Unhealthy meal or no meal packed for break (This can be at work or at school).
43. Sensory or problem solving impairments make nutrition especially important for individuals living with FASD.Important to ensure the individual remembers to pack and eat lunch.Importance of nutritious foods for brain functioning.
44. Individual not meeting expectations.
45. Personal expectations will be implied by the work place, so letting the individual know what those are when they start will alleviate stress later on.Have a chart laminated so expectations can be written in or checked off with dry erase markers.
46. An individual has an appointment but has not figured out how they will get there or when to leave.
47. It is very important that the individual feels confident in their transportation process.Getting to school/work/appointments needs to be easy, reliable, and consistent.Help individuals memorize the route, so they are able to instruct others who may drive them.
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