Fatigue in Transverse Myelitis - PowerPoint Presentation

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Fatigue in Transverse Myelitis

Kerry MutchNMO Advanced Nurse PractitionerWalton Centre Foundation TrustLiverpoolSlide2

Fatigue after LunchSlide3

Benefits of Drinking Water

You

can’t live without it!Reduces FatigueNo caloriesStops headachesReduces urine infectionsHelps relieve constipation

Gives

skin

a healthy

glow

Gives energy

It’s Free Reduces FatigueSlide4

Affects quality of life and functional ability

Adversely affectsability to self manage symptomsability to cope mood and self esteem

Can aggravate other TM symptoms Depression FatigueImpact of Fatigue

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Fatigue in NMO

Person with

TMFatigue affects different people in different waysThere are many factors that contribute to fatigueSlide6

Primary

: related to disease processProbably related to the underlying pathologic alterations in TM such as demyelination, inflammation and axonal injuryThe

inability of a muscle or group of muscles to sustain the required or expected forceSecondary: associated with disease related factorsWalking difficultiesSleep disturbance

Pain

Spasms

Bladder symptoms

Breathing difficulties

‘Normal’ activity related fatigue

Fatigue Types in TMSlide7

Trigger Factors of Fatigue

Not drinking waterPoor diet – wrong foodPoor Posture seating/beddingPoor sleep patterns

Temperature heat/cold Infection/VirusEmotions mood/stressOther medical conditions Anaemia

Doing

too

much

Excessive exertion

De-conditioning

Taking insufficient breaksMedicationsSlide8

Medications

side-effects that can cause fatigue; Analgesics Anti spasticity

Anti convulsantsAnti hypertensivesAnti depressantsAnti histaminesMedications and FatigueSlide9

Because of my fatigue during the past 4 weeks....

Modified Fatigue Impact Scale

Never

Rarely

Sometimes

Often

always

1.

I

have

b

ee

n l

e

ss

al

er

t

.

0

1

234 2. I have had difficulty paying attention for long periods of time.    0    1    2    3    4 3. I have been unable to think clearly.   0   1   2   3   4 4. I have been clumsy and uncoordinated.   0   1   2   3   4 5. I have been forgetful. 0 1 2 3 4 6. I have had to pace myself in my physical activities.   0   1   2   3   4 7. I have been less motivatedto do anything that requires physical effort.    0    1    2    3    4

61 people with NMO completed MFISSlide10

Physical Fatigue

Total Impact of Fatigue

Cognitive Fatigue

Psycho social FatigueSlide11

Priciples

of Managing Fatigue

Ensure the best levels of energy

Using Energy Available in Most

is available

Productive Way

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Planning – Efficient use of energy supplies means more can be achieved.

Prioritising – Better to complete smaller tasks than try everything and complete nothing.Pacing – more beneficial rather than continuing to point of exhaustion and being forced to rest.Delegating – Many people feel guilty about asking people to do jobs they previously did.

Using Energy in Most Effective WayMotto- I Can if I PlanSlide13

Increase your fluid intake!!Make life as easy as possible for yourself

Use labour saving equipmentDo things differentlyOrganise work area to avoid unnecessary bending, reaching or walkingActivity and exercise benefitsRelaxation, deep breathing, yoga, pilatesSleep patterns and routine

Energy Effectiveness StrategiesSlide14
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For the Lion To Wake up Drink More Water

Thank you