competence patientology Compliance among difficult patients Morten Sodemann professor of global amp migrant health The Migrant Health clinic Odense University Hospital amp ID: 616405
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Slide1
Lost competence: patientologyCompliance among difficult patients
Morten Sodemann professor of global & migrant health, The Migrant Health clinic, Odense University Hospital & University of Southern DenmarkStine Lundstrøm Kamionka Ms Sci Economics & Business Administration, Intl Management , Child & Adolescent Psychiatry at Center of Suicide Prevention and Center of ADHD & Migrant Health Clinic Odense University HospitalSlide2
BackgroundMigrant health outpatient
clinic (somatic hospital setting): 1500 complex abandoned immigrant patients (compliance issues, medically unexplained symptoms, low literacy, significant communication barriers, navigation problems)Fee for interpreter use
(2013) +
electronic
appointment letters (2014)Knowledge translation project: What is a vulnerable/difficult patient? 10 year Cohort of HIV patients: hidden compliance issuesPatient case coordination study (immigrant patients & suicidal adolescents)Observation of patient care processes over timePatient and HW interviewsSlide3
Interviews with experienced language interpretersWhich
fears do patients express to you?Common stress points?What do patients misunderstand?What do patients ask you after the consultation?Why do they call you
again
later ?Slide4
Secret life of patientsLearn from interactions
: adapt, chose and deselect health care Avoid: humiliation, scolding, guilt, shame, insecurity, conflict and ambiguity
Seek
:
respect, doctors recognition as good patient with accepted diagnosis, meaning, kindness, trust, and functional real-time supportShow up where and when they (think) they get thisStay
away
from
departments
where they don’t (think) they’ll get thisUnwittingly: counterproductive perceptionsAccumulate unsolved problems because we fail to helpIllness = invisible swing door poverty Become less literate + more confused + slower time perceptionHinders compliance but patients don’t tell doctors about this (will if asked)Slide5
The making of a difficult patient & how HWs adjust health care
Likeable
competent
Likeable incompetent
Unlikeable
competent
Unlikeable
incompetentAttention, bonus info,forgiveness, time tospeak, extra follow-up,more optionsLess info, more scolding,no invitation to speak, Less follow-up
,
less
options
Quality
depends
heavily
on
i
nterpersonal relations
Mobility
through knowledge
Easy
Unpredictable
Difficult
Morten SodemannSlide6
Medical errors involving disabled, vulnerable, ethnic or difficult patients not
recordedErrors ”unavoidable” in these cases…Outlier-patient challenges are invisible Slide7
10 % of patients are outlier-patients
So: we don’t have a plan for 10 % of our patients?Slide8
Result
?Patients check out and leave it
u
p to the
health care systemwithout telling usSlide9
Hospital check-ups: What makes patients stay away?
Hospital routine (not a patient routine):”what we usually do””just in case”Hospital memory in patient care processesMeaningless to the care processNo new info, no new procedures, no implications
Doctors
are
unprepared, delayed, stressedHyperspecialization = not my jobNo plan for next visit – so why bother?Slide10
Patient care coordination- who cares?
Fragmentation: Every wagon, link and railway track has its own management, purpose & speedCare process: meaningful to HWs, patient and organisation at the same time - challengeSlide11
Increasing neccessity forclean patients with 1 diagnose
Patients not fiting clean referral criteria rejectedDemoralised chronic swing door patients Slide12
Vulnerable patients become invisible orphan patients
No single specialist departmentNo patient organisationToo complex for hospital – too complex for family doctorsSlide13
How do I know it’s you?
Peter Smith
Sunset
drive 112
CopenhagenSlide14
Texting is a patient inventionNeed help, appointment?
RemindersRunning informal contactClarificationFearsFeelingsHidden phone numberSlide15
Patient – doctor ”contract”Open outpatient
clinicHome visits = less stress, more receptive, better listening, more motivationPatientsideaPatientsidea
Patients
ideaSlide16
Talk, show and support: Actively address and reduce fear,
axiety and misperceptionsIs it cancer?Will I become handicapped?NeedlesScannersPersonsEnvironmentSlide17
Migrant health clinic no-show: 7 %
( instantly rose to 30 % when e-box electronic
appointment
letters
introduced)Overall hospital no-show: 13 %40 % of no-shows are not patient errorsSlide18
Cross diciplinary migrant health clinical team
saves 33,000 USD per year per patientTime saves money Slide19
Health care professionals need patientology & patient
literacySlide20Slide21
Ethnic patient coordinator training programme (voluntary, 8 modules)
Migrant health teams (regional incl psychiatric hospitals)Slide22
”Cardiac arrest team” for Vulnerable patientsAnnual training in
communication, equity barriers, vulnerability, patient supportSlide23
Letters are never read (as intended)
Patients look for recognizable
patterns/simple information
and skip the rest
Patient reads:”We have cancelled your appointment”Because text is highlighted as important
You
have an
appointmentSlide24
Do
you have a gardener?Remove weed that does no goodFertilize coherence and flow in care processesWater innovation and constructive HW attitudeIdentify patient stress pointsInterview and follow patientsSupport
plants
that need it http://www.fastcodesign.com/3059787/ideos-ceo-on-how-to-lead-an-organization-creativelySlide25
The most expensive incident for a hospital is when something goes wrong with patients
(Torben Mogensen, hospital vice-director) Outlier-patients more likely to go wrongSlide26
Lots of
ambiguity and uncertainty in patient care processesOften more than 3-4 different actors involvedHealth care more fragmented and unlinked than we
realize
Patients
often not in same room as the expertise they needWe fail to learn from patients that are dislinkedHW individually see problems in care process but nowhere
to go with
their
insight