Nicole Erb BA Program Manager The Survivorship Center Delaware Cancer Consortium Retreat April 14 2015 Survivorship definition amp trends Overview of The Survivorship Center Cancer survivor amp caregiver resources ID: 1032824
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1. Advancing Survivorship Care Through the National Cancer Survivorship Resource CenterNicole Erb, BA, Program Manager, The Survivorship CenterDelaware Cancer Consortium Retreat, April 14, 2015
2. Survivorship definition & trendsOverview of The Survivorship CenterCancer survivor & caregiver resourcesHealth care professional resourcesPolicy & advocacy resourcesNext stepsQuestions/comments2Agenda
3. 3Who Are Cancer Survivors?Any person who has been diagnosed with cancer, from the time of diagnosis through the balance of lifeThe term “survivor” is often used to mean someone who has completed active treatment
4. 4Estimated Numbers of US Cancer Survivors by Site
5. 5Range of Cancer ExperiencesLiving cancer-free for the remainder of lifeLiving cancer-free for many years but experiencing one or more serious, late complications of treatment Living cancer-free for many years, but dying after a late recurrence Living cancer-free after the first cancer is treated, but developing a second cancer Living with intermittent periods of active disease requiring treatment Living with cancer continuously without a disease-free period
6. Seminal Publications in Cancer Survivorship6
7. Socio-Ecological Model: A Framework for Survivorship7
8. Recommendations to Address Posttreatment Survivorship 8PopulationRecommendationsSurvivorsRefinement of chronic disease self-management model for cancer survivorship to help empower survivors to manage their survivorship careDevelop evidence-based, culturally appropriate information and resources to meet the needs of posttreatment survivorsIncrease awareness of existing survivorship information and resourcesHealth Care SystemsDevelop survivorship care guidelines for clinical and psychosocial needsRoutine provision of survivorship care plansEducation & training of health care professionalsSociety / PolicyReimbursement for essential posttreatment survivorship careFunding for survivorship research to increase evidence baseEducation of policy makers to increase awareness of survivorship issues
9. The American Cancer Society Websitecancer.org/treatment/survivorshipduringandaftertreatment/index9
10. The Survivorship Center Websitecancer.org/survivorshipcenter10
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12. 12Life After Treatment Guidecancer.org/survivorshipguide
13. Cancer Survivor Information Resource Inventory13 Multimedia OnlyPrint OnlyBothTotalHealthy Habits922015127Screening2214642Genetic Counseling95014Physical Side Effects612420105Psychosocial Issues751622113Category Total2597963401
14. Chronic-Disease Self-Management Program PilotWhat is Self-Management?Learning and practicing skills necessary to carry on an active and emotionally satisfying life in the face of a chronic condition. (Kate Lorig, DrPH, Department of Medicine, Stanford University)Self-management skillsProblem solvingDecision-makingResource utilizationForming partnerships with HCPsTaking actionSelf-management tasksManaging the illness Carrying out normal activities Managing emotional changes
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16. 16Prescription for Cancer Informationcancer.org/survivorshipprescription
17. Developing American Cancer Society Guidelines for Primary Care Providersbit.ly/SurvivorshipCenter17
18. American Cancer Society Prostate Cancer Survivorship Care Guidelinesbit.ly/ACSPrCa18
19. Cancer Survivorship E-Learning Series for Primary Care Providerscancersurvivorshipcentereducation.org19
20. 20Cancer Survivorship E-Learning Series for Primary Care Providerscancersurvivorshipcentereducation.org
21. Cancer Survivor Program Resource Inventory21
22. Moving Beyond Patient Satisfaction: Tips to Measure Program Impact Guidecancer.org/survivorshipprogramevaluation22
23. Guide for Delivering Survivorship Carecancersurvivorshipcentereducation.org/Survivorship_Guide.html23
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25. 25Cancer Survivorship: A Policy Landscape Analysiscancer.org/survivorshippolicypapers
26. Year 05 ActivitiesRecommend priority areas for information and program developmentComplete evaluation of Cancer: Thriving and Surviving and develop recommendations for resourcesPublish survivorship care guidelines and corresponding E-Learning Series modulesExpand care provider resources to facilitate utilization of survivorship care guidelinesPublish research findingsEvaluate activities26
27. The Survivorship CenterProject Staff Contact InformationAmerican Cancer Society Principal Investigator/Project DirectorCatherine Alfano, PhDcatherine.alfano@cancer.orgProgram Manager Nicole Erb, BAnicole.erb@cancer.orgBehavioral ScientistRachel Cannady, BSrachel.cannady@cancer.orgResearch AnalystKerry Beckman, CHES, MPHkerry.beckman@cancer.orgProgram CoordinatorPatrice Bowles, BBApatrice.bowles@cancer.orgGW Cancer InstitutePrincipal Investigator/Project DirectorMandi Pratt-Chapman, MAmandi@gwu.edu Sr. Project ManagerAnne Willis, MAannewillis@gwu.eduProject ManagerShaira Moralessmorales@gwu.eduProject CoordinatorMonique House, MS, CHESmshouse@gwu.edu27
28. Thank YouTo learn more about The Survivorship Center, Visit: cancer.org/survivorshipcenterEmail: survivorship@cancer.orgThis presentation is supported by Cooperative Agreement #5U55DP003054 from The Centers for Disease Control and Prevention. Its contents are solely the responsibility of the authors and do not necessarily represent the official views of the Centers for Disease Control and Prevention.28
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