Laois Offaly Families For Autism (LOFFA) Family
Description: Laois Offaly Families For Autism (LOFFA) Family Perspective of HSE Services Chaotic dysfunctional system Delayed and Missed Diagnosis Services Interventions practically non existent No clear referral pathways Children in most need are
Related Topics
Download Presentation
"Laois Offaly Families For Autism (LOFFA) Family" is the property of its rightful owner. Permission is granted to download and print the materials on this website for personal, non-commercial use only, and to display it on your personal computer provided you do not modify the materials and that you retain all copyright notices contained in the materials. By downloading content from our website, you accept the terms of this agreement.
Presentation Transcript
slide1. Laois Offaly Families For Autism (LOFFA)<br>
slide2. Family Perspective of HSE Services ‘Chaotic dysfunctional system’
Delayed and Missed Diagnosis
Services / Interventions practically non existent
No clear referral pathways
Children in most need are most neglected
A ‘one size fits all’ approach
Primary care services favoured above disability services in allocation of resources
‘Complex game of pass the parcel’ Laois Offaly Families For Autism (LOFFA)<br>
slide3. Expectations of Services Respect
Honesty
Transparency particularly in how resources are allocated and how waiting lists are managed
Meaningful, appropriate and timely interventions
A support system
Better communication
Clear referral pathways
Experienced professionals and specialist services
Better working relations between health and education
A robust complaints/appeals system Laois Offaly Families For Autism (LOFFA)<br>
slide4. What has worked Advisory Clinics
Parental Workshops
Key worker or one point of contact
Respite service Laois Offaly Families For Autism (LOFFA)<br>
slide5. Assessment of Need Disregard of legislation and Standards for AON
AON officer should keep family up to date
Information should be provided
Complaints should be dealt with swiftly
Preliminary assessments or screenings not enough
AON should not prevent child accessing interventions
0 to 18 seamless services
Assessment team and Intervention team Laois Offaly Families For Autism (LOFFA)<br>
slide6. Assessment of Need Diagnostic assessment
Finding of Disability Appeals Officer
‘Whilst the Act provides a right to an assessment of need and not a right to a diagnosis, where a diagnosis is considered to be necessary or desirable in order to complete a comprehensive ‘assessment’ of an applicant’s needs, a diagnostic assessment may well be required’
LOFFA’s view;-
In order to understand ‘the nature and extent of disability’ a diagnostic assessment where ASD is suspected is warranted Laois Offaly Families For Autism (LOFFA)<br>
slide2. Family Perspective of HSE Services ‘Chaotic dysfunctional system’
Delayed and Missed Diagnosis
Services / Interventions practically non existent
No clear referral pathways
Children in most need are most neglected
A ‘one size fits all’ approach
Primary care services favoured above disability services in allocation of resources
‘Complex game of pass the parcel’ Laois Offaly Families For Autism (LOFFA)<br>
slide3. Expectations of Services Respect
Honesty
Transparency particularly in how resources are allocated and how waiting lists are managed
Meaningful, appropriate and timely interventions
A support system
Better communication
Clear referral pathways
Experienced professionals and specialist services
Better working relations between health and education
A robust complaints/appeals system Laois Offaly Families For Autism (LOFFA)<br>
slide4. What has worked Advisory Clinics
Parental Workshops
Key worker or one point of contact
Respite service Laois Offaly Families For Autism (LOFFA)<br>
slide5. Assessment of Need Disregard of legislation and Standards for AON
AON officer should keep family up to date
Information should be provided
Complaints should be dealt with swiftly
Preliminary assessments or screenings not enough
AON should not prevent child accessing interventions
0 to 18 seamless services
Assessment team and Intervention team Laois Offaly Families For Autism (LOFFA)<br>
slide6. Assessment of Need Diagnostic assessment
Finding of Disability Appeals Officer
‘Whilst the Act provides a right to an assessment of need and not a right to a diagnosis, where a diagnosis is considered to be necessary or desirable in order to complete a comprehensive ‘assessment’ of an applicant’s needs, a diagnostic assessment may well be required’
LOFFA’s view;-
In order to understand ‘the nature and extent of disability’ a diagnostic assessment where ASD is suspected is warranted Laois Offaly Families For Autism (LOFFA)<br>