“Managing healthcare costs: can patient safety be
Description: Managing healthcare costs: can patient safety be traded-off? 6 May 2015, Brussels Kaisa Immonen-Charalambous Senior Policy Adviser, European Patients Forum safety and quality of care: the patient perspective Independent, non-governmental
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slide1. “Managing healthcare costs: can patient safety be traded-off?”
6 May 2015, Brussels Kaisa Immonen-Charalambous
Senior Policy Adviser, European Patients’ Forum safety and quality of care: the patient perspective<br>
slide2. Independent, non-governmental umbrella organisation set up in 2003
OUR VISION: All patients in the EU have equitable access to high quality, patient-centred health and social care About the European Patients’ Forum OUR ROLE: United patients’ voice in EU health and social policy
OUR MEMBERS: disease-specific EU & national coalitions – 64 member organisations<br>
slide3. EPF involvement in Patient Safety EC Patient Safety & Quality Working Group
EC Communication (2008) and
Council Recommendation (2009)
Input on the EU future agenda on quality
EU legislation related to safety
Directive on patients’ rights in cross-border healthcare
Pharmacovigilance, falsified medicines
Medical devices, in vitro diagnostics
EU Projects on patient safety
EUNetPas (2008-2011)
Joint Action PaSQ (2012-2015)
Building partnerships and collaboration with WHO, health professionals, public health NGOs and other stakeholders<br>
slide4. Changing role of patients Patients are becoming more active and vocal
“Patient-centred” approaches to healthcare increasing
Patients from passive recipients to active partners
Self-management
Shared decision-making
Integrated care
This requires a culture of openness, transparency and support for patients<br>
slide5. Patients can help improve safety Safety = a key aspect of quality
Patient-centredness = a key aspect of quality
Individual patient’s experience of his/her healthcare “journey” = rich resource of information about gaps and failures in the system
Need support and empowerment:
Information that is understandable
Health literacy skills
Professional who listen and encourage
Patient-friendly environment
Self-management support<br>
slide6. Patient: the last “barrier” “When I received a new glucose monitor, I noticed the readings were not right. I noted all the readings comparing the old and new monitor … Finally the nurses agreed there was a problem with the new brand of monitors.” “When I read through my medical record, I noticed two mistakes.” “If I can be working in partnership with clinicians I could have much more success at avoiding mistakes. Clinicians are full of good intentions and highly trained, but they are never going to be as committed to me and my health and wellbeing as I am.”<br>
slide7. EU collaboration on patient safety Joint Action PaSQ (2012-2015) 660+ good practices (clinical + organisational) now available to professionals and public through the PaSQ wiki platform
35 Exchange Mechanism events – experts from 20 EU MS
4 Safe Clinical Practices selected for implementation in healthcare organisations – 150 HCOs from 17 EU MS will implement these good practices for one year and assess their impact.
WHO Surgical Safety Checklist
Medication Reconciliation
Multimodal intervention to increase hand hygiene compliance
Paediatric Early Warning Scores<br>
slide8. PaSQ: 660+ good practices<br>
slide9. Good practice example Denmark: The Patient Handbook
A patient’s guide to a safer hospital stay, co-designed with patients
Aims to support the participation of patients in their own treatment
Explains how to ask questions, what to ask about etc.
Contains practical information about the Danish healthcare system
“10 Good Advices” for patients on how to increase safety
Information about the different stages of hospital admission
Tools to control their medication and assess pain
Space for patients to write down notes and questions
250.000+ copies distributed
English version online:
http://www.patientsikkerhed.dk/in-english/projects/patient-handbook.aspx
PASQ SCP ID 1006 – The Patient Handbook, Denmark<br>
slide10. Good practice example Medication safety information for patients
Madrid Health Service Medication Website: Patients can see key information on all marketed medicines Personalised medicines plan, including photos of packaging, dosage of each and basic information
On-line consultations answered by professionals within 5 days
Information on labelling, package leaflets, how to correctly identify a product, how to use, how to store, how to dispose…
Evaluation showed improvements in patient outcomes
PaSQ SCP ID: 1023<br>
slide11. Good practice example Aims: improve patients’ knowledge and skills about their condition, quality of life, services use, adherence, lifestyle. Encourage patients to take control of their condition.
Peer to peer learning: patients train other patients – reaching 15,000+ patients – even wider reach through social networks
PASQ GOP ID 95 – Andalusian School of Public Healtj Spain: “Patient academy” approach in Andalusia
Patient School at the Andalusian School of Public Health
Patients with chronic diseases (e.g. diabetes, asthma, COPD, fibromyalgia, heart failure, cancer… )<br>
slide12. Need for patient empowerment Many current practices focus on information provision (not “real” involvement)
Many things being done “on the ground” – but no real overview – often no evaluation
Emerging evidence base on (cost-)effectiveness of patient empowerment & involvement (e.g. EMPATHIE study)
Need for a more comprehensive approach at EU level “Healthcare practice & culture need to go beyond ‘patient-centred‘ to a real partnership with patients” “Safety for patients includes medicines/devices – patient safety & regulatory bodies need to talk to each other”<br>
slide13. The EMPATHIE study (2014) Key action areas
The informed patient (health literacy)
New professional skills, knowledge & attitudes (EU health workforce)
Self-management support (including) with technology
Transparency of quality and safety of care to patients and public
European strategy and action plan on patient empowerment
Common repository of good practices and tools
Development of common indicators collection of comparable data
Research to fill gaps improved evidence base<br>
slide14. Next steps for EPF 2015: Launch survey on patients’ understanding of “quality” as part of HSPA approach
2015: Conference “Patients’ rights in cross-border healthcare” – 2nd July, Brussels
2016: Conference on “The patients’ role in patient safety” - launch process to develop “core competences” for patients and families in patient safety (CR 2009) including medication safety
2015-2016: Campaign & conference on patient empowerment – from 20 May 2015 to June 2016 – follow up on the EMPATHIE outcomes in a multi-stakeholder “bottom up” approach
Continuing work with European Medicines Agency: medication errors, PIL, pharmacovigilance, etc.<br>
slide15. More information? EPF position paper on adherence & concordance
Stakeholder consensus paper on health literacy
Reports from EPF pan-EU series of regional workshops on cross-border healthcare
EPF work on patient safety & quality of care
EPF work on pharmacovigilance EMPATHIE final summary report: http://ec.europa.eu/health/patient_safety/docs/empathie_frep_en.pdf<br>
6 May 2015, Brussels Kaisa Immonen-Charalambous
Senior Policy Adviser, European Patients’ Forum safety and quality of care: the patient perspective<br>
slide2. Independent, non-governmental umbrella organisation set up in 2003
OUR VISION: All patients in the EU have equitable access to high quality, patient-centred health and social care About the European Patients’ Forum OUR ROLE: United patients’ voice in EU health and social policy
OUR MEMBERS: disease-specific EU & national coalitions – 64 member organisations<br>
slide3. EPF involvement in Patient Safety EC Patient Safety & Quality Working Group
EC Communication (2008) and
Council Recommendation (2009)
Input on the EU future agenda on quality
EU legislation related to safety
Directive on patients’ rights in cross-border healthcare
Pharmacovigilance, falsified medicines
Medical devices, in vitro diagnostics
EU Projects on patient safety
EUNetPas (2008-2011)
Joint Action PaSQ (2012-2015)
Building partnerships and collaboration with WHO, health professionals, public health NGOs and other stakeholders<br>
slide4. Changing role of patients Patients are becoming more active and vocal
“Patient-centred” approaches to healthcare increasing
Patients from passive recipients to active partners
Self-management
Shared decision-making
Integrated care
This requires a culture of openness, transparency and support for patients<br>
slide5. Patients can help improve safety Safety = a key aspect of quality
Patient-centredness = a key aspect of quality
Individual patient’s experience of his/her healthcare “journey” = rich resource of information about gaps and failures in the system
Need support and empowerment:
Information that is understandable
Health literacy skills
Professional who listen and encourage
Patient-friendly environment
Self-management support<br>
slide6. Patient: the last “barrier” “When I received a new glucose monitor, I noticed the readings were not right. I noted all the readings comparing the old and new monitor … Finally the nurses agreed there was a problem with the new brand of monitors.” “When I read through my medical record, I noticed two mistakes.” “If I can be working in partnership with clinicians I could have much more success at avoiding mistakes. Clinicians are full of good intentions and highly trained, but they are never going to be as committed to me and my health and wellbeing as I am.”<br>
slide7. EU collaboration on patient safety Joint Action PaSQ (2012-2015) 660+ good practices (clinical + organisational) now available to professionals and public through the PaSQ wiki platform
35 Exchange Mechanism events – experts from 20 EU MS
4 Safe Clinical Practices selected for implementation in healthcare organisations – 150 HCOs from 17 EU MS will implement these good practices for one year and assess their impact.
WHO Surgical Safety Checklist
Medication Reconciliation
Multimodal intervention to increase hand hygiene compliance
Paediatric Early Warning Scores<br>
slide8. PaSQ: 660+ good practices<br>
slide9. Good practice example Denmark: The Patient Handbook
A patient’s guide to a safer hospital stay, co-designed with patients
Aims to support the participation of patients in their own treatment
Explains how to ask questions, what to ask about etc.
Contains practical information about the Danish healthcare system
“10 Good Advices” for patients on how to increase safety
Information about the different stages of hospital admission
Tools to control their medication and assess pain
Space for patients to write down notes and questions
250.000+ copies distributed
English version online:
http://www.patientsikkerhed.dk/in-english/projects/patient-handbook.aspx
PASQ SCP ID 1006 – The Patient Handbook, Denmark<br>
slide10. Good practice example Medication safety information for patients
Madrid Health Service Medication Website: Patients can see key information on all marketed medicines Personalised medicines plan, including photos of packaging, dosage of each and basic information
On-line consultations answered by professionals within 5 days
Information on labelling, package leaflets, how to correctly identify a product, how to use, how to store, how to dispose…
Evaluation showed improvements in patient outcomes
PaSQ SCP ID: 1023<br>
slide11. Good practice example Aims: improve patients’ knowledge and skills about their condition, quality of life, services use, adherence, lifestyle. Encourage patients to take control of their condition.
Peer to peer learning: patients train other patients – reaching 15,000+ patients – even wider reach through social networks
PASQ GOP ID 95 – Andalusian School of Public Healtj Spain: “Patient academy” approach in Andalusia
Patient School at the Andalusian School of Public Health
Patients with chronic diseases (e.g. diabetes, asthma, COPD, fibromyalgia, heart failure, cancer… )<br>
slide12. Need for patient empowerment Many current practices focus on information provision (not “real” involvement)
Many things being done “on the ground” – but no real overview – often no evaluation
Emerging evidence base on (cost-)effectiveness of patient empowerment & involvement (e.g. EMPATHIE study)
Need for a more comprehensive approach at EU level “Healthcare practice & culture need to go beyond ‘patient-centred‘ to a real partnership with patients” “Safety for patients includes medicines/devices – patient safety & regulatory bodies need to talk to each other”<br>
slide13. The EMPATHIE study (2014) Key action areas
The informed patient (health literacy)
New professional skills, knowledge & attitudes (EU health workforce)
Self-management support (including) with technology
Transparency of quality and safety of care to patients and public
European strategy and action plan on patient empowerment
Common repository of good practices and tools
Development of common indicators collection of comparable data
Research to fill gaps improved evidence base<br>
slide14. Next steps for EPF 2015: Launch survey on patients’ understanding of “quality” as part of HSPA approach
2015: Conference “Patients’ rights in cross-border healthcare” – 2nd July, Brussels
2016: Conference on “The patients’ role in patient safety” - launch process to develop “core competences” for patients and families in patient safety (CR 2009) including medication safety
2015-2016: Campaign & conference on patient empowerment – from 20 May 2015 to June 2016 – follow up on the EMPATHIE outcomes in a multi-stakeholder “bottom up” approach
Continuing work with European Medicines Agency: medication errors, PIL, pharmacovigilance, etc.<br>
slide15. More information? EPF position paper on adherence & concordance
Stakeholder consensus paper on health literacy
Reports from EPF pan-EU series of regional workshops on cross-border healthcare
EPF work on patient safety & quality of care
EPF work on pharmacovigilance EMPATHIE final summary report: http://ec.europa.eu/health/patient_safety/docs/empathie_frep_en.pdf<br>