Understanding the Landscape and Establishing Reporting Processes Andrea SipinBaliwas Los Angeles Cancer Surveillance Program University of Southern California NAACCRIACR Meeting June 11 2019 ID: 935103
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Outpatient Clinic Reporting:Understanding the Landscape and Establishing Reporting Processes
Andrea Sipin-BaliwasLos Angeles Cancer Surveillance ProgramUniversity of Southern CaliforniaNAACCR/IACR MeetingJune 11, 2019Vancouver, Canada
Slide2EVOLVING LANDSCAPE
Delivery of cancer care is no longer exclusive to the hospital settingOrganizations are exploring ancillary revenue streams
Private practices are being acquired by larger
entities
Advocacy for improving access to
careCancer becomes a chronic disease
Slide3EVOLVING LANDSCAPE
Other reasons contributing to migration of care to clinics:Availability of infusion pumps for chemotherapy
Antiemetic medication
Development of other targeted cancer therapies
Slide4EVOLVING LANDSCAPE
Other entity in LAC with 10 outpatient clinics
Multi-specialty
Hematology/Oncology
Dermatology/Internal Med
Infusion Center
Radiology/Surgery/Transplant
Slide5We aim to thoroughly evaluate the underreporting of cancer treatment data and incident cancer cases seen at free standing medical oncology clinics and establish reporting processes for this evolving landscape.
PURPOSE
Slide6Partnered with City of Hope (COH) as they acquired new outpatient clinics in LAC
Case year 2016 2216 patients8 facilities in Los Angeles County (LAC)Full-service cancer centersRadiation facilitiesMedical oncology centers
Last Name
First Name
Middle Name
MRN
DOB
Radiation
Biopsy
Chemo
Disease Program (Diagnosis)
Facility Name
Doe
Jane
1234567
10/10/1965
20161114
NULL
NULL
Bone Cancer Prime
Facility A
Doe
John
12345678
1/7/1953NULLNULL201608020Hem Lymphoma PrimeFacility B
BACKGROUND
Slide7METHODS
*Secure Web Portal for data exchange
Slide8RESULTS
Slide9CASE DISTRIBUTION – NEW CASES
Missed cases for 15 different cancer sites
Most common:
1) Prostate 2)
Heme
3) Breast
Slide10CASE DISTRIBUTION – TREATMENT ONLY
Missed treatment for 21 different cancer sites
Most common:
1) Breast 2)
Heme
3) Ovarian
Slide11EVOLVING LANDSCAPE
MISSING TREATMENT
Slide12EVOLVING LANDSCAPE
REPORTING PROCESS
Created a new reporting source for the clinics
COH is responsible for reporting cases starting with 2017
Additional staff for increasing efforts
10 FTE requested
Registry will be the follow back contact
Establish expected caseload over time
Continue to open clinics and enter into partnerships
Slide13Complete case capture is increasingly challengingLinkages are an important resource (i.e. SEER pharmacy linkage)
Underreporting of Prostate cases Significant underreporting of Chemotherapy, Radiation Tx, Multiple ModalitiesNeed to keep up with new reporting sources and establish reporting relationshipsState policies will help enforce reporting requirementsEnsure complete electronic pathology reporting (AB 2325)
CONCLUSION
Slide14THANK YOU
Co-AuthorsDennis Deapen, DrPHKelli Olsen, MS, CTRCamille Maristela
The collection of cancer incidence data used in this study was supported by the California Department of Public Health pursuant to California Health and Safety Code Section 103885; Centers for Disease Control and Prevention’s (CDC) National Program of Cancer Registries, under cooperative agreement 5NU58DP006344; the National Cancer Institute’s Surveillance, Epidemiology and End Results Program under contract HHSN261201800032I awarded to the University of California, San Francisco, contract HHSN261201800015I awarded to the University of Southern California, and contract HHSN261201800009I awarded to the Public Health Institute. The ideas and opinions expressed herein are those of the author(s) and do not necessarily reflect the opinions of the State of California, Department of Public Health, the National Cancer Institute, and the Centers for Disease Control and Prevention or their Contractors and Subcontractors.
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