Introducing the Palliative Care Policy GPS Stacie Sinclair MPP Center to Advance Palliative Care Eugene Rusyn JD Solomon Center for Health Law and Policy at Yale Law School Disclosures The authors have no actual or potential conflicts of interest in relation to this presentation materi ID: 930491
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Slide1
How to Improve Palliative Care Access and Quality at the State Level
Introducing the Palliative Care Policy GPS
Stacie Sinclair, MPP – Center to Advance Palliative Care
Eugene Rusyn, JD – Solomon Center for Health Law and Policy at Yale Law School
Slide2Disclosures
The authors have no actual or potential conflicts of interest in relation to this presentation material.
Slide3Objectives
Participants will be able to:
Articulate the role of public policy in advancing palliative care
Describe the current state palliative care policy landscape
Leverage the GPS to support palliative care policy efforts in your own states
Slide4Where Does Public Policy Show Up in Health Care?
Which health care services are paid for (and for how much $$), and which patients are eligible to receive them
Quality measures and reporting requirements
Access to public insurance (Medicare and Medicaid), and parameters for how private insurance can operate
Rules (or not!) around issues like
drug
pricing
Funding for initiatives like combatting the opioid epidemic, or public health emergency spending
Slide5US Federal Policy
Slide6State Health Policy
Parallel structures to federal policy (i.e., legislative, executive, and judiciary branches)
State Medicaid plans (including Medicaid Managed Care & LTSS)/CHIP administration
Health insurance exchanges
Public health
State licensure requirements
Slide7Why State Focus?
The federal government is increasingly shifting risk and responsibility for health care payment to states
Most states have laws requiring a balanced budgets
Health costs currently account for approximately 1/3 of state budgets (NCSL 2020)
Increases in health care spending come at the expense of other policy priorities, such as education and infrastructure
Source: National Association of State Budget Officers State Expenditure Report, Fiscal Years 2018-2020
Slide8State Policy Levers to Improve Access and Quality
Slide9Palliative Care Ensures Value
Slide10States Have Been Taking Notice – and Action
ACA (2010) brought a paradigm shift in how health care was provided and paid for
Palliative care has grown significantly through new ACA initiatives and stakeholders’ independent contributions
Progress of the field and changing health policy “environment” have opened the door for powerful champions
Slide11American Cancer Society Cancer Action Network
Slide12National Academy for State Health Policy
https://www.nashp.org/palliative-care/
Slide13Current Palliative Care Policy Landscape
There is heterogeneity in state policies for palliative care:
How and where palliative care is defined
Requirements for physicians to provide palliative care information to patients
Continuing education requirements
Medicaid reimbursement policies
Public awareness and stakeholder engagement
Slide14Enter the GPS
Emerging need to track developments rapidly across the country in a centralized manner
Share policy progress
Analyze trends
Identify areas for collaboration
Support advocacy
The Palliative Care Policy GPS is a single place to house, track, and compare state policy developments regarding palliative care, and their impact on care for people living with serious illness
Slide15The GPS
Slide16Defining the Palliative Care Policy GPS
The Palliative Care State Policy GPS (PCSP GPS) is an
online and
publicly accessible searchable database
initially containing current state policies on palliative care (2019-present).
Icons created by the Noun Project
Medical professionals
Policymakers
Advocates
Patients and Families
Target Audience:
Slide17Defining the Palliative Care Policy GPS
The Palliative Care State Policy GPS (PCSP GPS) is an
online and
publicly accessible searchable database
initially containing current state policies on palliative care (2019-present).
The PCSP GPS tracks legislation, including:
Pending bills
Failed bills
Enacted bills
For all 50 states, U.S. territories, the Indian Health Service, and the Veterans Administration.
The PCSP GPS will be
updated regularly
through a process enhanced by
automated searches
.
Slide18Workforce
Payment
Quality/Standards
Clinical Skill-Building
Pediatric Palliative Care
Telehealth
Supporting the growth of a specialty palliative care workforce.
Expanding financing or providing incentives to ensure access to palliative care.
Developing quality metrics and standards for palliative care.
Increasing capacity of medical professionals to provide symptom relief, education, and other services to improve quality of life for people with serious illnesses.
Supporting the development and expansion of pediatric palliative care and pediatric hospice
Expanding telehealth to allow healthcare delivery for palliative care virtually.
Public Awareness
Promoting public awareness of palliative care through advisory councils and public health campaigns.
Slide19Design and Methods
Lexis+
Statutes and
Legislation
Administrative Code and Regulation
Search terms:
Palliative care
Home care
Long-term care
Home and community-based services
Pain management
Exclusions:
Adult hospice care
Medical marijuana
Slide20GUIDED TOUR[Eugene to do a screen share]
Slide21Next Steps
Expand the breadth of the Palliative Care Policy GPS to include:
State legislation (2010-2019)
State regulations
Federal legislation
Additional areas of palliative care policy
Assemble an annual update surveying trends in state palliative care policy based on data compiled in the Palliative Care Policy GPS.
Slide22How Individuals Can Affect Policy
Be informed on issues, politics, players
Join professional associations, respond to calls for action
Come prepared with data AND stories
Write representatives regularly, offer to be a resource; meet when they are in town
Participate in state capitol and Washington, DC visits
Slide23Summary
The Palliative Care State Policy GPS will allow users to:
Monitor and analyze how states are adopting policies around palliative care issues over time across the country.
Identify barriers to the adoption of policies on palliative care issues.
Conduct further research that will help encourage policy innovation and development in the state palliative care policy arena.
Slide24Acknowledgments
Abbe R. Gluck
Laura C. Hoffman
Shelli L. Feder
Dena J. Schulman-Green
Allison Silvers
Carolyn T. Lye
Suzanne Marmo-Roman
Susan Godino
Jennifer O’Connor
Patrick Cosmo
John Nann
Franz
Hartl
Evan Miller
Rosette Nguyen
Stephanie Rice
Ezra Ruiz
Alan
Scrimenti
Zach Schwartz
Slide25Q&A
Slide2655 West 125th
Street
13th Floor
New York, NY 10027
347-802-6231
capc.org
Stacie Sinclair
Associate Director for Policy
CAPC
stacie.sinclair@mssm.edu