FruitflyC When Cells Have Misbehaved Creative Cancer Family Workshops Reduces anxiety amp confusion Allows myths to be addressed Children feel included in the family RESEARCH ID: 915762
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Slide1
Caroline Leek
DirectorFruit Fly Collective@FruitflyC
“
When Cells Have Misbehaved” Creative Cancer Family Workshops
Slide2Slide3Reduces anxiety & confusion
Allows myths to be addressed
Children feel included in the family
RESEARCH
Parents with cancer feel unsupported when managing their family’s needs
Children affected by parental cancer are at high risk of developing psychosocial problems
Good family communication has a positive impact on children and parent’s psychological well-being
Slide4Limited resources designed for families addressing the impact of parental cancer
Cancer nurses report a lack of education & confidence. No resources to provide family support
Children enjoy talking about cancer.
Do not have the same fears as adults
Slide5AIMS
Improve communication around cancer
Support psychological well-being
FAMILIES
NURSES
Improve understanding of impact cancer has on family life
Improve understanding of cancer
Provides an intervention/resources
that supports a patient’s family needs
Slide6DEVELOPMENT
Lead Cancer Nurse
Macmillan Psychological Support team
Parents, carers and grandparents
Pilot workshop to the cancer nurses
Two hours
Hospital site in school holidays
Capacity of 20 families
Delivered by
2 x FFC
2 x Cancer Nurses
2 x Psychological
Support
Slide7PROMOTION
Leaflets/posters around the hospital, on social media,
GP surgeries & community spaces, e.g. libraries
Patients invited by CNSs and Psychological Support staff
Slide8THE WORKSHOP
ANIMATIONS
ROLE PLAY
GIANT MODELS
SHORT SHOW
Q&A
EVALUATION SESSION
SIX ACTIVITY STATIONS
Slide9ACTIVITY STATION
CHEMOTHERAPY
ACTIVITY STATION
SIDE-EFFECTS
How do chemo medicines work?
How are they administered?
Why do side-effects occur?
What are target therapies?
Explore different side-effects that occur
Hair loss
Fatigue
Taste Changes
Neuropathy
Chemobrain
How can they affect a person?
Slide10ACTIVITY STATION
SURGERY & THE TEAM
ACTIVITY STATION
RADIOTHERAPY
Kidney Cancer Surgery role play starring:
Surgeons
Radiographer Oncologist
Pathologist
Clinical Nurse Specialist
What is radiotherapy?
How does it work?
What does the machines look like?
Why are tattoos needed?
Slide11ACTIVITY STATION
MYTHS
ACTIVITY STATION
THE BLOOD
True or False Game:
Common misconceptions
about cancer
What is blood made up of?
Why are blood tests so frequent?
Not enough white blood cells, RBC, platelets – what happens?
Slide12CHILDREN’S WORKSHOP PASSPORT
Slide13GOODIE BAGS & RESOURCES
Slide14IMPACT: NURSES
Confident to sign up patients
“Brilliant event”
“Invites authentic conversations and reduces fear”
100%
Improve communication around cancer, reduce fear and improve understanding
Slide15IMPACT: PARENTS
Felt their children had benefited from engaging in the workshop
Improved confidence talking to their children about cancer after the workshop
Slide16“The main thing I wanted was to get my children to be able to talk about it. This workshop really helped, it helped my daughter to ask questions that she hadn’t asked before.”
“Role play was excellent and a fantastic way for our daughter to learn.”
“I benefitted from it all. I think I personally found it very informative and needed it in this format – being simple and visual.”
“I loved the interactive ways of engaging children and simple explanations of cancer”
IMPACT: PARENTS
Slide17Increased levels of empathy
Described the workshop was fun
Would recommend to other children
IMPACT: CHILDREN
Increased level of understanding about cancer
Slide18WHY DO WE THINK IT IS SPECIAL?
Makes cancer less stigmatised and less fearful
.
Supports the whole family learning
Creates empathy and understanding
Gives children a platform to ask questions
Helps adults to observe their children being unafraid to talk about cancer
Diffuses adult anxieties
Adults are led by their children who love engaging with the fun props
Delivered in hospital enables children to see where parents are treated and to meet nurses
Slide19FUTURE
How to encourage families from diverse backgrounds and cultures who may not seek support.
More sustainable delivery
How to embed into cancer support pathways
Development of new activities or topics
Funding from National Lottery to deliver six more workshops:
Royal Free London NHS Foundation Trust
Lewisham and Greenwich NHS Trust
King’s College Hospital NHS Foundation Trust