PDF-(BOOS)-What Would You Do?: Juggling Bioethics and Ethnography

In hospital rooms across the country doctors nurses patients and their families grapple with questions of life and death Recently they have been joined at the bedside by a new group of professional experts bioethicists whose presence raises a host of urgent questions How has bioethics evolved into a legitimate specialty When is such expertise necessary How do bioethicists make their decisions And whose interests do they serveRenowned sociologist Charles L Bosk has been observing medical care for thirtyfive years In What Would You Do he brings his extensive experience to bear on these questions while reflecting on the ethical dilemmas that his own ethnographic research among surgeons and genetic counselors has provoked Bosk considers whether the consent given to ethnographers by their subjects can ever be fully voluntary and informed He questions whether promises of confidentiality and anonymity can or should be made And he wonders if social scientists overestimate the benefits of their work while downplaying the risksVital for practitioners of both the newly prominent field of bioethics and the longestablished craft of ethnography What Would You Do will also engross anyone concerned with how our society addresses difficult health care issues. An information session. Davide Nicolini. What are we going to talk about?. What is ethnography?. The stages of an ethnographic project. Is it for me? A conversation with two people who are doing it for a PhD. An information session. Davide Nicolini. What are we going to talk about?. What is ethnography?. The stages of an ethnographic project. Is it for me? A conversation with two people who are doing it for a PhD. ?. Sarah Pink. Loughborough. University. s. .pink@lboro.ac.uk. . What is Sensory Ethnography?. . . A re-thinking of ethnographic methods with attention to sensory perception, experience and categories (not simply ethnographic research about the senses). Ethnographic Encounters Project. Dr Lisa . Bernasek (with thanks to Dr Heidi . Armbruster). l.bernasek@soton.ac.uk. . Objectives and overview. This session will provide . an introduction to ethnographic . How do librarians work with simultaneous users in . QuestionPoint. ?. Kate . Pittsley. , Eastern Michigan University. Michigan . Virtual Reference Service Collaborative . Annual Meeting, April 8 2011. 1 ETHNOGRAPHY MitchellDuneier  Thispaperdescribesasimplestrategyfordoingmorereliable ethnography:afterfieldworkhascommenced,investigatorscanuse thoughtexperimentstorecognizeinconvenientphenomena.Two Katharina Kinder-Kurlanda. GESIS . – Leibniz-Institute for the Social Sciences. Data Archive for the Social Sciences. Unter . Sachsenhausen 6 -. 8, . 50667 . Köln. Germany . katharina.kinder-kurlanda@gesis.org. How do you design a tool for use in situations that are completely new to you?. Build an information systems for intensive care units …. But you’re not a health-care professional. … in a foreign country. post graduate research student . WELS . emily.dowdeswell@open.ac.uk.  . narrative. (1) a story or a description of an event. (2) a particular way of explaining or understanding events. cambridge dictionary. In hospital rooms across the country, doctors, nurses, patients, and their families grapple with questions of life and death. Recently, they have been joined at the bedside by a new group of professional experts, bioethicists, whose presence raises a host of urgent questions. How has bioethics evolved into a legitimate specialty? When is such expertise necessary? How do bioethicists make their decisions? And whose interests do they serve?Renowned sociologist Charles L. Bosk has been observing medical care for thirty-five years. In What Would You Do? he brings his extensive experience to bear on these questions while reflecting on the ethical dilemmas that his own ethnographic research among surgeons and genetic counselors has provoked. Bosk considers whether the consent given to ethnographers by their subjects can ever be fully voluntary and informed. He questions whether promises of confidentiality and anonymity can or should be made. And he wonders if social scientists overestimate the benefits of their work while downplaying the risks.Vital for practitioners of both the newly prominent field of bioethics and the long-established craft of ethnography, What Would You Do? will also engross anyone concerned with how our society addresses difficult health care issues. Dr. Farhat Moazam has written a wonderful book, based on her extraordinary first-hand study.... [S]he is an exceptionally gifted and evocative writer. Her book not only has the attributes of a superb piece of intellectual work, but it has literary artistic merit. --Renee C. Fox, Annenberg Professor Emerita of the Social Sciences at the University of PennsylvaniaThis is an ethnographic study of live, related kidney donation in Pakistan, based on Farhat Moazam\'s participant-observer research conducted at a public hospital. Her narrative is both a thick description of renal transplant cases and the cultural, ethical, and family conflicts that accompany them, and an object lesson in comparative bioethics. Human dignity has been enshrined in international agreements and national constitutions as a fundamental human right. The World Medical Association calls on physicians to respect human dignity and to discharge their duties with dignity. And yet human dignity is a term--like love, hope, and justice--that is intuitively grasped but never clearly defined. Some ethicists and bioethicists dismiss it other thinkers point to its use in the service of particular ideologies. In this book, Michael Barilan offers an urgently needed, nonideological, and thorough conceptual clarification of human dignity and human rights, relating these ideas to current issues in ethics, law, and bioethics. Combining social history, history of ideas, moral theology, applied ethics, and political theory, Barilan tells the story of human dignity as a background moral ethos to human rights. After setting the problem in its scholarly context, he offers a hermeneutics of the formative texts on Imago Dei provides a philosophical explication of the value of human dignity and of vulnerability presents a comprehensive theory of human rights from a natural, humanist perspective explores issues of moral status and examines the value of responsibility as a link between virtue ethics and human dignity and rights. Barilan accompanies his theoretical claim with numerous practical illustrations, linking his theory to such issues in bioethics as end-of-life care, cloning, abortion, torture, treatment of the mentally incapacitated, the right to health care, the human organ market, disability and notions of difference, and privacy, highlighting many relevant legal aspects in constitutional and humanitarian law. Tod Chambers suggests that literary theory is a crucial component in the complete understanding of bioethics. The Fiction of Bioethics explores the medical case study and distills the idea that bioethicists study real-life cases, while philosophers contemplate fictional accounts. silvima@ifi.uio.no. IN4340 – Engaged Qualitative Research Methods. 03.10.2022. Overview. Ethnography: method and conduct. Doing ethnographic work. An . example: . doing ethnography on India’s . social protection .