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”Public Perceptions of Dementia ”Public Perceptions of Dementia

”Public Perceptions of Dementia - PowerPoint Presentation

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”Public Perceptions of Dementia - PPT Presentation

Care and the Needs of Those Living with Dementia April 27 2015 Long Term Care Discussion Group DEMENTIA ACTION ALLIANCE Karen Love karenlove4verizonnet CCAL Chris Perna ceoedenaltorg ID: 756216

care dementia amp living dementia care living amp summit 2014 alzheimer

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Slide1

”Public Perceptions of Dementia

Care and the Needs of Those Living

with Dementia”

April 27, 2015 ~ Long Term Care Discussion Group

DEMENTIA ACTION ALLIANCE

Karen Love,

karenlove4@verizon.net

- CCAL

Chris

Perna

,

ceo@edenalt.org

– The Eden Alternative

Sandy Halperin,

sandyhalperin@gmail.comSlide2

1

o

ut

o

f

9

Am

ericans

A

ge

65

&

older

have

dementia.

Chances

are

you

know

someone

.Slide3

Facts About Dementia

Most prevalent type of dementia is Alzheimer’s, vascular, Lewy Body, Frontotemporal

, mixed dementia, Parkinson’s 6th leading cause of death - only one with no cure, no form of prevention, no means to slow progressionAffects 5.3 million Americans – projected to increase to 13.8 million affected by 2050

Dementia is the most expensive healthcare condition in the U.S. – annual estimated cost at $215 billion and projected to be over a trillion dollars by 2050

Dementia is escalating at an alarming rateSupports & services are fragmented and often hard to findSlide4

Facts About Dementia

More than 15 million Americans currently provide an estimated 17.7 billion hours of unpaid care annually to family members or friends with dementia.Nearly 40% report quitting jobs or work hours to provide care.

Many experience negative physical and mental health effects. Slide5

U.S. Response to Dementia

National Alzheimer’s Project Act (NAPA) signed into law Jan 2011.Concern –

Focus on CUREAlzheimer’sNo one living with dementia on Adv CouncilPerson-centered care practices not includedSlide6

Formed the Dementia Action Alliance in 2012 ~ a volunteer coalition committed to helping people live fully with dementia and supporting those who care about them. The Alliance is engaged in changing understanding of and attitudes about dementia

. Slide7

Dementia StakeholdersSlide8

DAA Leadership TeamSlide9

1st Dementia Thought Leaders Summit

June 2012 ~ Washington, DCObjective –

Form consensus agreement on a definition and conceptual & operational framework for person-centered dementia care. Slide10

1

st Summit Outcome Slide11

National

survey of what Americans feel are important dementia priorities and needs (Spring 2014)

Funded by The Retirement Research FoundationSlide12

June 2014Slide13

Rand’s “Improving Dementia Long-Term Care: A Policy Blueprint”

3 major areas –Service deliveryWorkforceFinancing

5 objectives –Increase public awareness to reduce stigma & promote earlier detection.Improve access to & utilization of LTSS for persons w/ dementia.

Promote high quality, person-centered care.Provide better support for family caregivers.Reduce burden of LTSS costs on individuals and families.Slide14

2nd Dementia Thought Leaders Summit

June, 2014 ~ Washington, DCObjective –

Form consensus agreement on what is needed to improve dementia care in this country.Slide15

WORDS MATTER

PREFERRED: Dementia, including Alzheimer’s –

More inclusive. PREFERRED: Person

living with dementiaAVOID - “Patient” as it is a stigmatizing term. “Living” underscores that people

continue to live with dementia.Slide16

2nd Summit Outcome

LIVE FULLY WITH DEMENTIA

WORKGROUPSSlide17

“PERSON-CENTERED MATTERS” Videohttp://daanow.org/an-extraordinary-video-about-dementia

Public service video announcement ~ Funded by the Commonwealth of Virginia’s Alzheimer’s and Related Diseases Research Award Fund ~ 2014

Slide18

WEBSITE - www.daanow.orgSlide19

A Philosophy of Living

By Max McCormick who is living with dementia.