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Rare Disease Patient and Ethics Council (RD-PEC) Rare Disease Patient and Ethics Council (RD-PEC)

Rare Disease Patient and Ethics Council (RD-PEC) - PowerPoint Presentation

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Uploaded On 2016-06-16

Rare Disease Patient and Ethics Council (RD-PEC) - PPT Presentation

Broad issues of interest Secondly the PEC can give opinion on broad issues of interest which arise through the developments undertaken by EURenOmics Neuromics and RD Connect PEC members have so far commented on the Data Sharing Charter which regulates data and materials sharing ID: 364219

ethics pec patient connect pec ethics connect patient members issues ethical council neuromics eurenomics projects questions question mccormack pauline

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