Young Women Facing Breast Cancer Together OUR MISSION 2 Young Survival Coalition YSC is the premier organization dedicated to the critical issues unique to young women and breast cancer YSC ID: 913084
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Slide1
Young Survival Coalition
Young Women Facing Breast Cancer Together.
Slide2OUR MISSION
2
Young Survival Coalition (YSC) is the premier organization dedicated to the critical issues unique to young women and breast
cancer
.
YSC
works with survivors, caregivers, medical, research, advocacy and legislative communities to increase the quality and length of life for women diagnosed with breast cancer at age 40 and under.
Slide3OUR HISTORY
3
Founded in 1998 by three young breast cancer survivors, YSC was the first national nonprofit to focus exclusively on the unique issues facing young women affected by breast cancer.
Above, left to right: YSC co-founders Roberta
Levy-Schwartz, Joy Simha
and Lanita
Moss.
Slide4YOUNG WOMEN CAN
AND DO GET BREAST CANCER
4
Nearly 13,000 women diagnosed annually under 40
1
More than 26,000 women diagnosed annually under 45
2
1
American
Cancer Society, Cancer Facts and Figures
2013-2014
2
12.5% of total breast cancer under 45. ACS, 2013-2014
Slide5THE FACTS
5
There
is currently
no effective screening method
to detect breast cancer in young
women.
Young women are more likely to have aggressive subtypes of breast cancer, including
triple negative
and
HER2+
disease
2
,
larger tumor sizes
and higher incidence of
lymph node
involvement
.
3Today there are an estimated 250,000 breast cancer survivors living in the U.S. who were diagnosed at age 40 or younger.4
1 Ruddy, K. et al., "Presentation of breast cancer in young women," Journal of Clinical Oncology 27:15S (2009). 2.Carey K. Anders et al., "Breast Carcinomas Arising at a Young Age: Unique Biology or a Surrogate for Aggressive Intrinsic Subtypes?" Journal of Clinical Oncology 29:1 (2011). 3. Carey K. Anders et al., "Young Age at Diagnosis Correlates with Worse Prognosis and Defines a Subset of Breast Cancers with Shared Patterns of Gene Expression," Journal of Clinical Oncology 26:20 (2008). 4 Based on 2000 Census data.
Nearly
80 percent
of young women diagnosed with breast cancer find
their breast abnormality themselves.
1
Slide6THE ISSUES
6
Lack of Research
Diagnosis During Pregnancy
Early
Onset Menopause
Fertility
Child Rearing
Financial Difficulties
Education Impacts
Career
Challenges
Body Image
Relationships
, Intimacy & Dating
Issues
Slide77
Slide8Goals of CDC Cooperative Grant
Evaluate
Enhance
Grow
Sustain
8
Slide9Evaluate
YSC CDC Steering Committee
Review
Evaluate
Analyze
Plan
9
Slide10Enhance; Grow
Supportive Partnerships
Collaborate
Build
Reach
10
Slide11Enhance; Grow
Healthcare Providers
Communicate
Educate
Supply
11
Slide12COMMUNITY ENGAGEMENT
12
Regional Field Managers work with healthcare providers and volunteers in local communities.
Slide13Enhance; Grow
Co-Survivors
Summit
Regional Symposia
13
Slide14YSC CONFERENCES
14
March 6-8; Houston, TX
This three-day national conference will feature inspirational speakers, workshops and special wellness activities.
Spend
3 days learning, sharing and reclaiming your life
Discover what makes under-40 breast cancer different
Relax, have fun and focus on your health and wellness
Connect with a community of young survivors, co-survivors and healthcare
professionals
youngsurvival.org/conferences
Slide15YSC CONFERENCES
Spring 2015, Washington D.C.
One-day
regional symposiums will focus on the individual pursuit of resiliency and survivorship for young women affected by breast cancer and their co-survivors.
Educational and inspirational speakers and workshops
Opportunity to connect with survivors and co-survivors in your region
Evening celebration15
youngsurvival.org/conferences
Slide16Grow; Sustain
Organizational capacity
Develop and incorporate programmatic sustainability
16
Slide17In 2012, YSC assembled a team of
leading advocates, researchers and clinicians for an 18-month initiative focused on young women with breast cancer.
YSC’s goal is
to drive systemic change by refocusing the research community on the tough questions that, when answered, will improve and extend life for young women with breast cancer.
The
results of these efforts is the YSC Research Agenda that was released May
2014 as well as the soon to be published white paper.17
YSC
RESEARCH AGENDA
youngsurvival.org/research-agenda
Slide1818
Thank you!
youngsurvival.org