Words of Wisdom from Physicians and Practice Coaches in Urban and Rural Primary Care Emilie Buscaj MPH PCMH CCE Patient Centered Medical Home Recognition Manager HealthTeamWorks Aimee Falardeau MD ID: 524802
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Patient Advisory CouncilsWords of Wisdom from Physicians and Practice Coaches in Urban and Rural Primary Care.
Emilie
Buscaj
, MPH, PCMH CCE
Patient Centered Medical Home Recognition Manager
HealthTeamWorks
Aimee Falardeau, MD
Physician and Fellow Instructor
University of Colorado, AF Williams Family Medicine Center
Christin Sutter
Quality
Improvement Coach
High
Plains Research NetworkSlide2
Disclosure Statement Emilie Buscaj, Aimee Falardeau, Christin Sutter
I have no financial investments and receive no funding from any of the private companies talked about in this presentation.
No off label medication use will be discussed.Slide3
Purpose Today
Why talk
about
Patient Advisory Councils?
Help inform practices that are interested in forming patient advisory groups but might not know where to start or what group could do.
We believe patient and community
members’ involvement with primary care
is important and want to inspire some of you to get engaged! Slide4
Where are you with involving patients in Quality Improvement?Slide5
What is a Patient Advisory Group?Serves as resource to administration and staff of the organization
Promotes improved relationships
Provides a vehicle for communication and to understand miscommunications
Provides a venue for patients to provide input, recommendations, development of new projects, and help implement sustainable change
Provides opportunities for staff to listen and a safe venue for patients to express needs and concerns
Developed by Marlene
Fondrick
and Beverley H. Johnson, Institute for Patient- and Family-Centered Care, Bethesda, MD,
1998. Revised 2002.Slide6
What benefit will come from a practice engaging patients in QI?Slide7
Benefits of patient engagement in an advisory groupProvides a mechanism for receiving and responding to input
Results in more efficient planning
Leads to increased understanding and cooperation
Promotes respectful, effective partnerships
Offers a forum for developing creative, cost-effective solutions to problems and challenges
Supplies a link between the practice, its surrounding community, and community groups
Provides increased emotional support and access to information
Developed by Marlene
Fondrick
and Beverley H. Johnson, Institute for Patient- and Family-Centered Care, Bethesda, MD,
1998. Revised 2002.Slide8
Why Patient Advisory Groups MatterIdentifying
priority health
topics or processes
Vetting
project ideas presented by
clinic team
Developing/editing
surveys and questionnaires
Developing/editing
print
materials for patients/community
Regardless of project:
Provide fresh ideas!
Diverse perspectives and knowledge
Credibility to work being done in region/at practice Slide9
How many and who are in an advisory group?Slide10
How to: Recruitment of AdvisorsFocus Groups
Feedback without an established advisory council
Diverse perspective
Used to identify patients
for
board
Focus
groups – with patients that don’t speak English and Spanish
Patient
R
ounding in the Waiting
R
oom
Advertising
Provider/Staff Recommendations
Key Informant
Interviews
External Referrals
Community Outreach Workers
Community Organization and Support Group Leaders
Community Health Education Classes Slide11
How do you identify successful members?
See the big picture
Have ability to listen and hear other view points
Do not push personal, professional, or political agendas
Have a sense of humor
Have to ability to connect with people
Can learn and will step outside of comfort zone
Are willing to share their opinions and thoughtsSlide12
Things to consider: Meetings and Logistics
Group facilitator – who leads and communicate with the advisors
Bylaws – patient expectations
Connection to practice leadership
Frequency, length and location
Compensation? For travel, child care,
f
ood (a must!), etc.
Share stories
Focused agendas but time to really learn and talk
Providing minutes and action item updates Slide13
What advice do you have regarding the Nuts and Bolts?Slide14
Starting a Patient Advisory Group: Orientation/1st Meeting
Introductions
and the sharing of personal and family stories in the healthcare system
Review the vision and goals of the organization;
Describe how the board its fits within the organization’s structure
Develop
roles and responsibilities of members
Review HIPAA and expectations for honoring privacy and confidentiality
Expectations for the board and attendance Slide15
What activities do you recommend?
Conduct a “walk-about”. . . take pictures and record
comments.
Ask
advisors to envision the ideal experience in the hospital/clinic/practice.
Include advisors in an assessment process of clinic/practice and its policies, programs, practices, and facilities.
Invite advisors to review patient survey data and participate in the process of developing responsive changes and evaluating improvement.
Involve advisors in a restructuring/rebuilding/rethinking project.Slide16
More ideas….
Appoint
patients and families as members of quality improvement teams
.
Appoint several advisors to design planning teams for renovation and new construction projects.
Invite advisors to serve on the patient education committee.
Train and involve advisors to co-facilitate peer support or health education groups
.
Ask
advisors to
assist in developing the
website and educational videos
for the clinic or practice.
Ask advisors to recruit and interview new advisors Slide17
Lessons Learned Create common language
Importance of defining group’s mission upfront
Importance of leadership
Sustainability
No “one size fits all” way to do this – Whew! Slide18
Questions?Thank you.Slide19
Resources and Additional InformationReprinted
information with
permission from:
Institute for Patient- and Family-Centered Care (
www.ipfcc.org
)
6917 Arlington Road, Suite 309
Bethesda, MD 20814
Phone 301-652-0281 Fax 301-652-0186
Tools/Checklists
http://www.ipfcc.org/tools/downloads-tools.html
Research Articles
http://www.ipfcc.org/advance/supporting.html
How to Videos
http://www.ipfcc.org/advance/topics/videos.html