At Northwestern University Current status and future directions Oncofertility Consortium The Oncofertility Consortium addresses the complex health care and qualityoflife issues that concern young cancer patients whose fertility may be threatened by their diagnosis and treatment ID: 557072
Download Presentation The PPT/PDF document "The Oncofertility Consortium" is the property of its rightful owner. Permission is granted to download and print the materials on this web site for personal, non-commercial use only, and to display it on your personal computer provided you do not modify the materials and that you retain all copyright notices contained in the materials. By downloading content from our website, you accept the terms of this agreement.
Slide1
The Oncofertility Consortium
At Northwestern University
Current status and future
directions
Oncofertility Consortium
The Oncofertility Consortium® addresses the complex health care and quality-of-life issues that concern young cancer patients whose fertility may be threatened by their diagnosis and treatment.
The Consortium represents a nationwide, interdisciplinary, and
interprofessional network of medical specialists, scientists, and scholars who are exploring the relationship between health, disease, survivorship and fertility preservation in young cancer patients. Their work and its findings may also extend to patients who have been diagnosed with other serious diseases and must undergo fertility-threatening treatments.
NIH Roadmap Grant received
Oncofertility website launched
Oncofertility
book
published
OTC protocols open
# OTC patients: 2Mean Age: 32.5 years
2006 2007 2008 2009 2010 2011 2012 2013 2014 2015
Virtual Grand Rounds (VGRs) begin
Full time Patient Navigator hired
MyOncofertility
website launched
National FERTline (866)708-FERT launched
Oncofertility
: Ethical, Legal, Social & Medical Perspectives book published # OTC patients: 19Mean Age: 27.3 years
iSaveFertility iPhone app developed
SaveMyFertility microsite launched
Oncofertility Medical Practice book publishedGlobal Partners join Oncofertility Consortium
NIH SCIPPR U54 Grant receivedNPC relocates to Northwestern# OTC patients: 34Mean Age: 16 years
Oncofertility Communication
publishedNPC expands to non-REIsCurrent OTC numbers:# Patients: 204Mean age: 21 years
The National Physicians Cooperative (NPC) is a nationwide network of centers dedicated to preserving the fertility of their patients. Patients with cancer and other serious diseases whose progression or treatment is likely to impair fertility can receive access to the most up to date treatments and clinical research at NPC member sites.
MISSION STATEMENTTo protect and preserve reproductive health through the continuum of care and across the lifespan of patients.VISION STATEMENTThe National Physicians Cooperative will investigate ways to mitigate the effects of any disease or treatment on ovarian and testicular function and develop physician-guided tools that will facilitate communication and translation between basic research and clinical practice.
Testicular Tissue Cryopreservation protocolIRB templates are available on NPC websiteResearch Tissue sent to Dr. Kyle Orwig at University of PittsburghExpansion of Pediatric Initiative NetworkMonthly conference callsBest Practices ReviewPediatric and Adolescent Oncofertility: Best Practices and Emerging Technologies5th Oncofertility TextbookPublished in 2016Oncofertility Consortium website upgradeBuild-out male and adolescent pagesUpdate provider and patient resourcesTransition to new website platform which offers better search functionality and accessScientific Help Agreement for Research Endeavors (SHARE) ProgramFollicle Take Home KitStadie Riggs tissue Slicer rentalOvarian Tissue Access Request Process2016 Oncofertility Conference will be focused on Oncofertility in Low Resource EnvironmentsNovember 2016 in Chicago, IL
National Physicians Cooperative
New Projects and Initiatives
“Oncofertility” coinedOncofertility Consortium establishedNPC created with 4 core institutions
OC website update
Pediatric Oncofertility
textbook