Identifying patterns of characteristics associated with best outcomes to inform practice Mary Gannotti PT PhD Houston May 30 June 1 2018 Collaborative Effort Mary Gannotti PT PhD Debbie ID: 1042550
Download Presentation The PPT/PDF document "Chronic Pain and Aging among Adults with..." is the property of its rightful owner. Permission is granted to download and print the materials on this web site for personal, non-commercial use only, and to display it on your personal computer provided you do not modify the materials and that you retain all copyright notices contained in the materials. By downloading content from our website, you accept the terms of this agreement.
1. Chronic Pain and Aging among Adults with Cerebral Palsy: Identifying patterns of characteristics associated with best outcomes to inform practiceMary Gannotti, PT, PhD Houston May 30- June 1, 2018
2. Collaborative Effort Mary Gannotti, PT, PhDDebbie Thorpe, PT, PhDPaul Gross, BSSusan Horn, PhDJacob Kean, PhDEd Hurvitz, MDGarey Noritz, MDAnita Bagley, PhD, MPHMichele Shusterman, BSAdult CPRN Consumer Panel Adult CPRN Work Group
3. What’s Really Important, Anyways?Feel “Good” about yourself (Werner & Smith 1989, 1992)Be Happy(Diener 2000, Csikszentmihalyi 2008)Have purpose, relationships(Gannotti et al Disabil Rehabil 2017)Be HealthyKnow there are complex inter-relationship between these phenomena, direct and indirect relationships(Angner et al. J Happiness Studies 2012Optimize FunctionBe able to what you want to do when you want to (Gannotti et. al. Disabil Rehabil 2017)Health and Happiness in Adulthood
4. Purpose To systematically collect qualitative and quantitative information about pain experiences, pain management, and its impact on health, function, and quality of life across the life spanEarly, middle, and late adulthoodFor individuals with different functional levels
5. Figure 1. A biopsychosocial framework with identification of components of the International Classification of Health, Function, and Disability.Body Structures & FunctionActivity & ParticipationEnvironmentPersonalPersonal
6. Figure 2. Operationalizing biopsychosocial model of pain and cerebral palsy
7. Propose Systematic Quantitative and Qualitative Data Collection QualitativeGroups of 10-12 of young, middle, and older adultsTotal N= 36 Interviews using MyCerebralPalsy.org surveys and in depth life stories on pain history, functional changes, and treatments used Observations and prolonged engagement with 3-5 in each groupQuantitativeCollect information on a large sample of adults (500 +) with cerebral palsy stratified by functional level.100 per GMFCS level
8. Aims QualitativeCompare lived pain experiencesOnsetLocationType IntensityInterferenceManagementPrioritiesAmong adults who are in different stages of adulthoodQuantitativeCompare across age groups 25-44 years,45-64 years, andGreater than or equal to 65 yearsmeasures of pain intensityand quality of life controlling for function in adults with CP.
9. AimsQuantitativeCompare findings for pain interference and opioid use/misuse of adults with CP to adults without CP who have similar pain intensities.Use the PBE-Chronic Pain Registry Weill Cornell Medicine Sloan Kettering (Horn et al 2017)QuantitativeIdentify factors associated with positive outcomes, including socio-demographic and clinical characteristics.
10.
11. Figure 2. Operationalizing biopsychosocial model of pain and cerebral palsy
12. Funding SubmissionsNIDILRR Switzer Fellowship, 2018, pending NIDILRR DRRP April 2018, pendingAACPDM Pedal with Pete, April 2018, pendingPossibly in futureNSF Cultural Anthropology Impact of Stigma on Chronic Pain experiences of Adults with Cerebral paly in Aug 2018 or 2019.Sabbatical for Spring of 2019, applying for internal funds to support enrollment, analysis
13. Progress without FundingHoping to launch the surveys soon through MyCerebralPalsy.org.Would like help with recruiting and enrolling adults when that occursIn process of developing IRB for qualitative interviews
14. ASKRefer adults with cerebral palsy to MyCerebralPalsy.org when Paul says “GO”Be aware that in the Fall (pending IRB approval), I will begin to recruit adults for qualitative interviews I will contact you at that time with recruitment flyers and a study synopsis.Please give them my contact informationgannotti@hartford.edu
15.