PPT-Comprehensive Care Model: A Model for Sickle Cell Disease Management

Dr Doreen Karimi Mutua Pediatric HematologistOncologist Gertrudes Childrens Hospital Outline History Status of Sickle Cell Disease Care Rationale of Comprehensive Care in Sickle Cell Disease. Jenny Pham. Protein Structure & Function. Spring 2015. Outline. Normal Adult Hemoglobin (. Hb. A). Function: Deoxygenated v. Oxygenated. Mutation in . Hb. A. Sickle Cell Hemoglobin (. Hb. S). Sickle Cell Anemia. was developed to create a greater awareness in . the Nashville . community of Sickle Cell Disease and to raise . funds for . patient care, . social services. , and research. . All . proceeds from the event . Katie Coltharp and Mariela Saenz. Names of Disorder. HbS. disease. Hemoglobin S disease. Hemoglobin SS disease. Sickling. disorder due to hemoglobin S. Sickle cell disease (broad term). Sickle cell disorders (broad group of conditions). Sickle Cell Trait. (Hereditary Condition) . Red blood cells (RBC’s) are normally round, circular or disc shaped.. RBC’s have hemoglobin component (helps carry oxygen) and platelets (helps in clotting). the Emergency Physician and Nurse. Epidemiology, Genetics, Pathophysiology. . Paula Tanabe. , PhD, RN, FAEN, FAAN. Associate Professor. Duke University, Schools of Nursing and Medicine. Objectives. ANEMIA . SUBJECTS. Kehinde. . M.O. 1. ., . Ogungbemi. S.I. 2. .,. . Anigbogu. C.N. 2. .,. . and . Jaja. . S.I. 2. . . 1. Department . of . Medicine, . 2. Department . of . Physiology, . College . . Charles Kiyaga. National Sickle Cell Coordinator. CPHL, Ministry of Health . Study Questions. What is the prevalence of sickle cell trait and disease in Uganda, by region and district?. What is the distribution of sickle cell trait across the country?. (SCAFO). By Pastor Marcia Taylor, Founder, CEO. 2021. Our programs are specifically designed and dedicated to accommodating the needs of those who are faced with the challenges of Sickle Cell such as access to care, socio-economical support services, mental health, substance abuse, family and/or care provider educational support, and isolation. . Dr. M. . Sofi. MD; FRCP (London); . FRCPEdin. ; . FRCSEdin. The term . sickle cell disease . (SCD) is generally used to describe all of the conditions associated with the phenomenon of . sickling. , whereas the term . . Sickle cell is a red blood disorder that can cause red blood cell to change form and cause lots of pain. Unfortunately this disorder can not be cured but can be stabled with the right treatments. In 1973 the average lifespan of a person with sickle cell was only 14 years. Infection. Sherrill Brown, M.D.. Assistant Clinical Professor . Division of Infectious Diseases. UC Davis Medical Center. 9/8/18. Disclosures. None. Goals for Discussion. Discuss the mechanisms that make Sickle Cell patients more susceptible to infections.. Pediatric Pain Resource Nurse Curriculum. Sickle Cell Disease:. Prevalence. In the US, the disease effects:. 100,000 people. 1:500 African Americans . 1:1,000-1,400 Hispanic Americans . Symptoms associated with SCD do not usually present during first 6 months. October 11, 2023. Jennifer Colozza, PharmD. Clinical Pharmacist. MO HealthNet Division. During . at least one regularly scheduled meeting each calendar year, the advisory council on rare diseases and personalized . Publications Launch Webinar. Thursday 28. th. January 2021. Welcome to NHS Sickle Cell and Thalassaemia Screening Programme’s Live Webinar. Thursday 28. th. January 2021. Chair: Professor Dame Elizabeth N .