Statehouse Inn Springfield IL Agenda Wednesday March 21 130pm Lunch 200pm Speakout tell your story about IL ASAP 300pm Break 315pm 2012 issues Federal State 400pm ID: 661995
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Slide1
IL ASAP Retreat
March 21 & 22, 2012Statehouse InnSpringfield, ILSlide2
Agenda
Wednesday, March 21
1:30pm:
Lunch
2:00pm:
Speakout
,
tell your story, about IL ASAP
3:00pm:
Break
3:15pm:
2012 issues – Federal, State
4:00pm:
Tell your story, practice, getting around the Capitol
4:30pm:
Adjourn
5:30pm
: IL Health Matters Legislator Reception
7:30pm
: DinnerSlide3
Speakout!Slide4
Tell your storySlide5
IL ASAP – An OverviewSlide6
IL ASAP
The mission of IL ASAP is to develop and support effective HIV policy and to nurture and support HIV advocacy leaders throughout Illinois.Slide7
Why Create IL ASAP?
Build advocacy leadership and contacts in each part of the state
Coordinate advocacy efforts and bolster participation of constituents outside of Chicago
Create working relationships between different regions
In short, form an all-star team to push for fair HIV/AIDS Policy!Slide8
Why Create IL ASAP?
Con’tA mutually-beneficial relationship where AFC and the participants could communicate and learn more about the unique needs of each region of the state
A structure where AFC can provide technical assistance to other areas of the state on a more consistent basis
A network where AFC can streamline large, grassroots advocacy efforts and target public officials anywhere in the state at the drop of a hatSlide9
Expectations
To advocate for the HIV/AIDS community of Illinois and IL ASAP concerns at the local, state and national levels, while supporting the mission statement of IL ASAP.
Attendance and participation at all required IL ASAP events, meetings and retreats.
Participation on all IL ASAP mandated calls unless excused.
Provide input, if applicable, in the selection of new IL ASAP members.
Maintenance of a professional appearance and conduct at all public and political events and meetings.
To notify the IL ASAP Co-chairs regarding any barriers or issues that may impede or prevent their ability to comply with the minimum expectations of IL ASAP members.
Maintain confidentiality of all information per the AFC Confidentiality Agreement.
Maintain and support a positive environment in which all IL ASAP members may excel and grow, with more experienced members being mentors and examples to the newer members.Slide10
Failure to Meet or Maintain Minimum Expectations
The IL ASAP Co-chairs should be notified as soon as an issue is identified.
The IL ASAP Co-chairs engage the member(s) in question
In the event of repeated occurrences, the IL ASAP Co-chairs will engage the member(s) in question in a formal discussion,
If we cannot reach a satisfactory resolution, the matter will be referred to AFC leadership
Elected IL ASAP members who grossly or regularly fail to meet or maintain the minimum expectations may be:
Removal from a leadership or elected IL ASAP position.
Possible dismissal from IL ASAP.
Other actions deemed appropriate by AFC leadership.Slide11
IL ASAP Confidentiality Statement
AIDS Foundation of Chicago and IL Alliance for Sound AIDS Policy (IL ASAP) members are expected to maintain the strictest confidentiality regarding AFC’s internal documents and personal information of other IL ASAP members. All AFC staff, IL ASAP members, interns, and volunteers are expressly prohibited from discussing client information (including but not limited to: HIV status or other medical information; personal information such as Social Security numbers, addresses, phone numbers and other related data; other demographic information) with anyone whose job responsibilities do not require them to have access to such information.
Staff and IL ASAP members shall also not disclose any other confidential information encountered during their work with AFC. Other confidential information may include, but is not limited to: AFC budgetary or contractual information, AFC donor information, and AFC proprietary information. When in doubt as to whether information being released is considered confidential, members should consult with an AFC staff member.
Unauthorized release of client or other confidential information and/or failure to comply with the above policies may result in disciplinary action, up to and including termination of membership.
By signing below, I verify that I will observe strict confidentiality of any confidential information I may obtain from any source. This notice is in compliance with the IL AIDS Confidentiality Act and the Confidentiality Policies of the AIDS Foundation of Chicago’s (AFC’s) Personnel Policies and Procedures.
By signing I further verify that I have received information about confidentiality and understand the confidentiality policies of the AIDS Foundation of Chicago.Slide12
The Online Action BulletinSlide13
Visit www.aidschicago.org/OABSlide14
Golden Rules of the OAB
Take the OAB fact sheet to every meeting you attendInclude a mention of the OAB in every presentation you give
Respond to the OAB when you get it in your mailbox
Forward the OAB to your e-mail networks
Post the OAB on your
Facebook
If your friends and colleagues are slow to take action, bribe them – candy works wonders
Follow up with your legislators, let them know you care about the issue and are paying attention
Follow up with your friends and colleagues, let them know you care about the issue and are paying attentionSlide15
Policy Issues 2012Slide16
2012 Illinois General Assembly Legislative Update
HIV/AIDS IssuesAIDS Foundation of Chicago
March 21 , 2011
www.aidschicago.org Slide17
State budget and HIV Funding
FY12 state HIV funding: $30.88 million
Quinn proposed an 11% or $3.5 million cut.
Final amount: $29.39 million (5% or $1.5 million cut)
Budget consolidate four HIV funding accounts into one
HIV & Corrections ($1.9 m),
Minority HIV/AIDS Prevention ($3.1 m),
HIV/AIDS Hotline ($355,000),
ADAP & other HIV programs ($25.4 m)
FY13 state HIV funding: $25.4 million
Quinn proposed an 14% or 4 million cut.
HIV Lump sum amount again.
ADAP flat funded from FY12
Entire
$4 million funding cut would come out of community-based HIV prevention, housing, corrections, minority health-promotion and harm reduction
programs
– resulting in a 50% cuts in these programs.
17Slide18
FY 13 state HIV funding concerns
Based
on public health evidence of average HIV treatment costs and anticipated HIV infections that result from those with undiagnosed HIV infection, we estimate that this reduction will
increase costs to Illinois by $6.9 million in FY 13 because more people will need HIV treatment, and others will be re-incarcerated after re-entry programs are de-funded. In addition, the state will face
an additional $40 million in lifetime health care costs for people newly infected with HIV
because of the proposed funding cuts.
108
additional people will be newly infected with HIV
54
are likely to be African American, 17 Latino, and 37 white, based on the racial/ethnic distribution of HIV new cases in Illinois
38
infants will be born with preventable HIV-infection because 150 HIV-positive pregnant women won't get intensive case management
38
additional people will be newly infected because 6,467 fewer HIV tests and other services will be offered
32
people will be newly infected because 1,262 drug users won’t get counseling & supplies
563 people with HIV will lose life-supporting services
563
low-income people with HIV will lose access to food, dental, primary physician care, medical case management, transportation, mental health and substance abuse treatment, likely worsening health outcomes and increasing health care costs
114 people with HIV will lose housing
114
highly vulnerable people with HIV will lose access to housing, resulting in homelessness and less adherence to medications. They will face worse health outcomes and higher health care costs.
255 people with HIV will be re-incarcerated at a cost of $5.6 million
255
people with HIV who left prison or jail will be re-incarcerated at a cost of $5.6 million per year (23% recidivism rate for participants vs. 51% general IDOC recidivism rate) because of funding cuts to a reentry program for people with HIV
150
people with HIV released from prison or jail will not receive case management, housing, primary medical care, and mental health services, making them less likely to access HIV treatment
Slide19
Additional funding cuts
Quinn also proposed spending cuts in several areas of concern for people with HIV: Addiction Treatment for Medicaid Populations (-$5 million or 10 percent cut
)
Mental Health Grants (-$58 million or 42 percent cut)
Emergency
and Transitional Housing (-$4.4 million or 52 percent cut)Slide20
Cuts to Medicaid
The Illinois Medicaid program provides life-saving health coverage to nearly 2.7 million low-income children, parents, people with disabilities, and seniors. However, the program faces a $2.7 billion deficit this year, and legislators are exploring a range of solutions. Slide21
On to Legislation…
21Slide22
Improving Community & Prison Partner Notification (HB 4453-Smith/
Lightford)
Status: House on 3
rd reading.
HIV rates are 2-3 times higher among inmates than the general population.
This bill would codify current practices and improve partner notification in correctional settings, requiring IDPH and IDOC to improve the system of partner notification.
Partner notification is voluntary and confidential.
22Slide23
Comprehensive Sex Education in Schools (HB 3027 –
Steans/Lilly)
Status: Passed Senate, awaits House floor vote.
If
a public
school in Illinois offers
sex
ed
, it
must be
medically
accurate, developmentally
and age appropriate
&
must include
the
benefits of delaying or
abstaining from sexual activity
.
Parents can opt out.
Schools would be required to use evidence-based curriculums approved by the state. Parents can review the curriculum.
Funding is available from the feds to implement.
23Slide24
Red Ribbon Lottery (SB 2971 J. Collins/Yarbrough)
Status
:
Senate on 3rd reading.
Would extend the expiration date on the “Quality of Life (Red Ribbon Lottery” until 2017.
Proceeds from the lottery fund HIV/AIDS prevention and care services for populations disproportionately affected by HIV/AIDS.
Fund raised $1.4 million for prevention and care last year.
24Slide25
Implementing effective anti-bullying measures (HB 5290 - Cassidy)
Status: House amendment 3 on 2
nd
reading in Education committee.
In 2010, the General Assembly passed the School Prevention Act to define bullying and create a taskforce to look at ways to stop bullying.
This bill implements recommendations of the of the task force.
Adds
physical appearance, socioeconomic status, academic status, pregnancy, parenting status and homelessness
to protected classes from bullying.
Defines “policy on bullying”
to give schools guidance to comply with the law.
25Slide26
STAY TUNED!
Visit www.aidschicago.orgRegister for AFC Lobby Day
Wednesday, April 18
th
CONTACT:
Ramon
Gardenhire
,
rgardenhire@aidschicago.org
312-334-0928.
www.aidschicago.org
26Slide27
Telling Your StorySlide28Slide29Slide30
YOU
know HIV/AIDS issues
YOU
are an expert on how HIV impacts your life
As a person living with HIV
As a person providing services to people living with HIV
Your personal experiences provide perspective and impact beyond statistics
Lawmakers need the human story and face to understand importance of policies
Slide31
Introductions:
Give your name
Where you are from
Relevant background information about yourself
Talk about the expertise you bring:
As a person living with HIV
Someone working in the field
As a concerned community memberSlide32
Talk about:
The issues and programs that matter to you and why
(ADAP, health care reform implementation, case management, housing assistance, mental health, substance use counseling and treatment, food and nutrition, prevention, etc.)
How those programs help/ed you
What would happen to you and others people living with HIV without these programs or if new programs were developed
Slide33
Consult the fact sheets in your packets
Think about how the policy asks relate to your life and experiences
Use the testimony worksheet to help organize your thoughtsSlide34
This is not the place to complain, but to offer viable solutions to problems and challenges
These are the policy and funding asks
Talk about what is working
Talk about where policies and programs can be improvedSlide35
You may have only a few minutes
Make sure you and your group are well organized so you can deliver your message and ask clearly and concisely. Don’t use acronyms!
Stay on your issue
If conversation veers, bring it back!Slide36
Directly ask if you can count on the member’s support for:
Will you vote against a $4 million cut to HIV funding?
Will you vote against a $2 billion cut to Medicaid?
Wait and listen for a responseSlide37
The Introduction:
My name is Jonathon Smith.
I am a lifelong resident of the district.
I am 29 years old and have lived with HIV for five years. My whole family lives in the area. I live alone and work for a small company that does not offer health insurance. Slide38
The Issue:
I am here to talk to you about the Illinois Personal Responsibility Education Program, which would require Illinois schools to teach age-appropriate, medically-accurate sexual health education programs.Slide39
The Personal Story:
When I was younger, I went to a school that taught that I should abstain from sex until I got married. I didn’t learn anything about how to use a condom or how HIV was transmitted.
My parents didn’t talk with me about sex either. I was forced to learn from TV and my friends.
The sex
ed
program set the tone that sex was a shameful act that I shouldn’t engage in. When I started to have sex, I felt I couldn’t ask anyone about how to prevent HIV or STDs. That’s just not right. Slide40
The Concern:
Illinois youth are not getting the facts they need to make responsible decisions about their health and future.
The Consequences:
Providing medically-accurate and age-appropriate sexual health education programs must be one strategy to reduce HIV cases, unplanned pregnancies, and sexually transmitted diseases among youth.Slide41
The Solution:
The Illinois PREP Act requires schools that teach sex
ed
programs to provide medically-accurate and age-appropriate sex
ed
programs, using approved curriculums.
Schools won’t be required to offer sex
ed
; that remains optional.
Federal funding is available to help implement the programs in schools.
Any parent can remove their child from a sex
ed
class for any reason. Slide42
The Ask
Will you co-sponsor the Illinois PREP Act?
If the Senator answers no: “Will you vote yes on the bill?”Slide43
Make sure they give you a clear answer!
Ask politely: will you support or not?
If no, ask why. NOTE THEIR ANSWER AND REPORT IT BACK TO US.
Don’t argue—thank them and walk away. Slide44Slide45
Welcome to the CircusSlide46
Your quest…
The Illinois General AssemblySlide47
The Illinois General Assembly
59 Senate Districts:2 House Districts for Each Senate DistrictSenators serve 4-year terms
118 House Members:
Representatives serve 2-year termsSlide48
The legislative processSlide49
Lobbying at the State Capital
Illinois State Capital Building—where lawmakers debate and vote
Stratton Building is where most state representatives have their offices
All state senators have their office in the CapitolSlide50
Finding your new BFF – your Senator
Finding your senators:
Go with other advocates with the same legislators. Your group leader can help you out.
See if they are in their offices; ask their assistants where they are (be super-nice!)
If needed, go to the committee room and wait patiently…(good place to rest!)
As they walk out, ask if they have a minute.Slide51
FINDING YOUR STATE REPS
Go with other advocates with the same legislators. Your group leader can help you.
See if they are in their offices; ask their assistants where they are (be super-nice!)
If needed, go to the committee room and wait patiently… (good place to rest!)
As they walk out, ask if they have a minute.Slide52
Who do I visit?
Your own Illinois Senator and RepresentativeIf possible, go with others from your district or a nearby district
Check in with us to see if you can get a special assignment!Slide53
Lobbying
at ‘the rail’
House & Senate Sessions at 12 pm
Most visits happen “at the rail,” the public area just outside the House and Senate chambers
To request a lawmaker visit, pass your card to the doorkeepers and wait patiently
Be prepared for the CHAOSSlide54
Advocates Lobbying At ‘the Rail’Slide55
You may only have 30 seconds
Slide56
Fact sheets reinforce your message – give them
to your legislators!Slide57
The Stratton BuildingSlide58
Office VisitSlide59
Also helpful to know
AFC staff, IL ASAP members and others will be in red shirts. Ask them for directions!
Ask
anyone for directions.Take the TUNNEL
between Stratton and the Capitol. Otherwise, you’ll go through security again. Slide60
What if…
I can’t find my legislator?
It’s a zoo?
It didn’t seem like my lawmaker was listening?
I didn’t get a chance to say everything?Slide61
OTHER TIPS
If conducting meetings with other advocates, determine who will cover which issues. Practice delivering them together.
Be PATIENT, polite and courteous. Don’t use acronyms!
Take note of any questions or requests for additional information.Slide62
OTHER TIPS
Hand over the fact sheet at end of meetingBe gracious, attentive and organized
Stay on your issue – don’t stray
Say “I don’t know” if you don’t know the answer to a questionThank them for support (if appropriate) and timeFollow up!Slide63
FOLLOW UP
Thank the Rep. or Senator for their timeTell them you will follow up with them soonSend them any additional information they requested
Keep track of their support or opposition and call or write to say thank you or to keep pushing themSlide64
Agenda
Thursday, March 22
8:30am:
Breakfast
9:00am-11:00am:
Lobbying at the Capitol/Stratton Building
11:15-12:30
: Feedback, planning for Lobby Days
12:30pm:
Lunch
1:00pm:
IL ASAP work plan
2:00pm:
AdjournSlide65
FeedbackSlide66
Feedback
$54 B being allocated this year, there is money– Harris & DelgadoNeed to target appropsBug Sarah about budget issuesHernandez and Soto needs to get on board
Advocates need pictures of reps
Facebooks on tables at hotelSlide67
Lobby Days PlanningSlide68
Experiences from Previous Lobby Days and Suggestions for this Year?
Follow up with phone call, home visit
Training advocates how to do in district work
Have fact sheets in advance to send to networks about issues
Send flyer to LGBT groups
IL ASAP members to HIV groups – Chris, Scott and Tony/Sharon, Chad TPAN
Send out IDPH 12 budget so
ASAPers
can show agencies
Chad and
Donte
and Scott – maybe speaking at rally
Make signs the night before – noisemakers other than Eric L.
Quick research on legislators you will be seeingSlide69
IL ASAP Role at Lobby Days
Leading small groups on trip to Capitol and guiding them to meet their legislators
Helping to run “home base” operations in the rotunda Slide70
Leading Groups to Capitol
Bus by Senator’s last nameLead groups to Senators’ offices and rail
Give assistance to those needing help finding Rep.’s officeSlide71
Other Roles IL ASAP Could Play?Slide72
LunchSlide73
IL ASAP 2012 Work PlanSlide74
IL ASAP Work Plan
What issue will affect all parts of Illinois in 2012?Stigma – community level intervention not much legislative
Client involvement/access to services
State and fed budget cutsImplementing HCREducating community about benefits
Elections
Youth issues
HousingSlide75
Issue identification
What are the concrete and specific problems we most need to address?
What concrete solutions can solve the problem(s)?
Health care reform unclear and confusing
How it benefits HIV/AIDS community
Incorporating issues like budget cuts, client involvement tying things together
Clear understanding of which parts of HCR may be overturnedSlide76
Core Goal(s) & Objectives
What is our core goal(s)?
What are 2-4 clear objectives that IL ASAP can use to help determine the success of its plan?
Educate clients on impact of HCR – how many?
Educate IL ASAP on HCR
Documents/
ppts
/materials/toolkit
Humanizing the message/reframing issue
Educate state legislators on importance of HCR on HIVSlide77
Targets
Who are the decision makers and what influences their decisions
?
Clients
Legislators
Community
SelvesSlide78
Core Constituencies
What people/groups are most affected?
Who among them will be willing to participate in advocating for a solution
?
Low-income
Medicaid
ADAP
Undocumented
LGBTQ
Sex workers
CBOs
Homeless pop
Domestic violence Slide79
Allies/Supporters
In addition to the core constituents, who will be supportive and helpful on the organizing effort?
How will you get their support?
AFC
Legislators
ASOs
Current HCR movement – CBHC
Medical communitySlide80
Opposition
Who stands on the other side of this issue and will attempt to block/thwart or work against you?
How do you deal with them?
GOP
Budget hawks
Insurance / brokers
Self-insured orgs?
Small businesses
Some religious communitiesSlide81
Tactics/Activities
What tactics and activities will you use to accomplish your goal(s)?
What relationships does IL ASAP’s base, allies, supporters, etc. have with the targets?
Presentations
Town halls
Media campaign
Speaker meetings
Blogs
Youtube
Social network
Lobbying
Existing
acitivities
(CBHC)
Legislative visits
Webinars
Elections – GOTV, know candidates’ stances on HCRSlide82
Organizational Structure
How will you be organized to accomplish your goal?
Who makes what level of decision?
How will you communicate efficiently within the structure
?
Working groups – possibly broken down by main objectives?
Slide83
Key Messages
What are 2-4 key, clear, and publicly accessible messages for your campaign?
HCR is transform the fight against HIV/AIDS
Long-term money saver and life saver
Something about RW and MedicaidSlide84
Budget
What is the minimum amount of money you need to conduct a campaign?
How will you secure the necessary financial resources? Slide85
Community Building Activities
What are a few activities to build community and familiarity among the organizers?Slide86
Evaluation
How will you evaluate your campaign?
How will you know if you were successful?
Besides reaching our major goals, what other measurable outcomes are desirable? Slide87
Public Foundations & Non-Profits
Must Abide by Same Restrictions
Who should IL ASAP actively outreach to support the work?
Organizations
Individuals Slide88
Public Foundations & Non-Profits
Must Abide by Same Restrictions
What are specific actions IL ASAP could take to help advocates gain greater understanding about HIV/AIDS policy issues
?
Presentations/ teach in
Lobby days
Webinars
Social media
HCR
bootcamp
Text message campaign
Direct action
Survey community – what they know, need to knowSlide89
Public Foundations & Non-Profits
Must Abide by Same Restrictions
What are specific actions IL ASAP could take to help advocates enhance existing/learn new advocacy skills?Slide90
Public Foundations & Non-Profits
Must Abide by Same Restrictions
What are specific actions IL ASAP could take to
build client involvement?
Regional care reps
Support groups
Action coalitions
BTAN
Peer to peer
PFLAG
GSAs?
CORE
HB
TPAN
The Caucus
COH
iL
prevention planning group
CABS
Planning bodies
CBOs
Rev Green FRA, prison work
CAN TVSlide91
Public Foundations & Non-Profits
Must Abide by Same Restrictions
What simple, but concrete actions could IL ASAP develop for advocates to support the statewide policy agenda? Slide92
Public Foundations & Non-Profits
Must Abide by Same Restrictions
For ASAP
Figure out organizational structure for work plan to meet objectives
IL ASAP members should make a list of orgs/people to reach out to
List of activities they could be involved in
For
Pete
Plan HCR education for IL ASAP
Lucy to send out hotline list
Send this
ppt
to all and get input from
absent membersSlide93
Next StepsSlide94
Next Steps
AFC figure out how to target approps and others lobb days and in district visit