IL ASAP Retreat March 21 & 22, 2012 - PowerPoint Presentation

IL ASAP Retreat March 21 & 22, 2012
IL ASAP Retreat March 21 & 22, 2012

IL ASAP Retreat March 21 & 22, 2012 - Description

Statehouse Inn Springfield IL Agenda Wednesday March 21 130pm Lunch 200pm Speakout tell your story about IL ASAP 300pm Break 315pm 2012 issues Federal State 400pm ID: 661995 Download Presentation


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IL ASAP Retreat

March 21 & 22, 2012Statehouse InnSpringfield, ILSlide2


Wednesday, March 21






tell your story, about IL ASAP




2012 issues – Federal, State


Tell your story, practice, getting around the Capitol




: IL Health Matters Legislator Reception


: DinnerSlide3


Tell your storySlide5

IL ASAP – An OverviewSlide6


The mission of IL ASAP is to develop and support effective HIV policy and to nurture and support HIV advocacy leaders throughout Illinois.Slide7

Why Create IL ASAP?

Build advocacy leadership and contacts in each part of the state

Coordinate advocacy efforts and bolster participation of constituents outside of Chicago

Create working relationships between different regions

In short, form an all-star team to push for fair HIV/AIDS Policy!Slide8

Why Create IL ASAP?

Con’tA mutually-beneficial relationship where AFC and the participants could communicate and learn more about the unique needs of each region of the state

A structure where AFC can provide technical assistance to other areas of the state on a more consistent basis

A network where AFC can streamline large, grassroots advocacy efforts and target public officials anywhere in the state at the drop of a hatSlide9


To advocate for the HIV/AIDS community of Illinois and IL ASAP concerns at the local, state and national levels, while supporting the mission statement of IL ASAP.

Attendance and participation at all required IL ASAP events, meetings and retreats.

Participation on all IL ASAP mandated calls unless excused.

Provide input, if applicable, in the selection of new IL ASAP members.

Maintenance of a professional appearance and conduct at all public and political events and meetings.

To notify the IL ASAP Co-chairs regarding any barriers or issues that may impede or prevent their ability to comply with the minimum expectations of IL ASAP members.

Maintain confidentiality of all information per the AFC Confidentiality Agreement.

Maintain and support a positive environment in which all IL ASAP members may excel and grow, with more experienced members being mentors and examples to the newer members.Slide10

Failure to Meet or Maintain Minimum Expectations

The IL ASAP Co-chairs should be notified as soon as an issue is identified.

The IL ASAP Co-chairs engage the member(s) in question

In the event of repeated occurrences, the IL ASAP Co-chairs will engage the member(s) in question in a formal discussion,

If we cannot reach a satisfactory resolution, the matter will be referred to AFC leadership

Elected IL ASAP members who grossly or regularly fail to meet or maintain the minimum expectations may be:

Removal from a leadership or elected IL ASAP position.

Possible dismissal from IL ASAP.

Other actions deemed appropriate by AFC leadership.Slide11

IL ASAP Confidentiality Statement

AIDS Foundation of Chicago and IL Alliance for Sound AIDS Policy (IL ASAP) members are expected to maintain the strictest confidentiality regarding AFC’s internal documents and personal information of other IL ASAP members. All AFC staff, IL ASAP members, interns, and volunteers are expressly prohibited from discussing client information (including but not limited to: HIV status or other medical information; personal information such as Social Security numbers, addresses, phone numbers and other related data; other demographic information) with anyone whose job responsibilities do not require them to have access to such information.


Staff and IL ASAP members shall also not disclose any other confidential information encountered during their work with AFC. Other confidential information may include, but is not limited to: AFC budgetary or contractual information, AFC donor information, and AFC proprietary information. When in doubt as to whether information being released is considered confidential, members should consult with an AFC staff member.


Unauthorized release of client or other confidential information and/or failure to comply with the above policies may result in disciplinary action, up to and including termination of membership.


By signing below, I verify that I will observe strict confidentiality of any confidential information I may obtain from any source. This notice is in compliance with the IL AIDS Confidentiality Act and the Confidentiality Policies of the AIDS Foundation of Chicago’s (AFC’s) Personnel Policies and Procedures.


By signing I further verify that I have received information about confidentiality and understand the confidentiality policies of the AIDS Foundation of Chicago.Slide12

The Online Action BulletinSlide13


Golden Rules of the OAB

Take the OAB fact sheet to every meeting you attendInclude a mention of the OAB in every presentation you give

Respond to the OAB when you get it in your mailbox

Forward the OAB to your e-mail networks

Post the OAB on your


If your friends and colleagues are slow to take action, bribe them – candy works wonders

Follow up with your legislators, let them know you care about the issue and are paying attention

Follow up with your friends and colleagues, let them know you care about the issue and are paying attentionSlide15

Policy Issues 2012Slide16

2012 Illinois General Assembly Legislative Update

HIV/AIDS IssuesAIDS Foundation of Chicago

March 21 , 2011 Slide17

State budget and HIV Funding

FY12 state HIV funding: $30.88 million

Quinn proposed an 11% or $3.5 million cut.

Final amount: $29.39 million (5% or $1.5 million cut)

Budget consolidate four HIV funding accounts into one

HIV & Corrections ($1.9 m),

Minority HIV/AIDS Prevention ($3.1 m),

HIV/AIDS Hotline ($355,000),

ADAP & other HIV programs ($25.4 m)

FY13 state HIV funding: $25.4 million

Quinn proposed an 14% or 4 million cut.

HIV Lump sum amount again.

ADAP flat funded from FY12


$4 million funding cut would come out of community-based HIV prevention, housing, corrections, minority health-promotion and harm reduction


– resulting in a 50% cuts in these programs.


FY 13 state HIV funding concerns


on public health evidence of average HIV treatment costs and anticipated HIV infections that result from those with undiagnosed HIV infection, we estimate that this reduction will

increase costs to Illinois by $6.9 million in FY 13 because more people will need HIV treatment, and others will be re-incarcerated after re-entry programs are de-funded. In addition, the state will face

an additional $40 million in lifetime health care costs for people newly infected with HIV

because of the proposed funding cuts.


additional people will be newly infected with HIV


are likely to be African American, 17 Latino, and 37 white, based on the racial/ethnic distribution of HIV new cases in Illinois


infants will be born with preventable HIV-infection because 150 HIV-positive pregnant women won't get intensive case management


additional people will be newly infected because 6,467 fewer HIV tests and other services will be offered


people will be newly infected because 1,262 drug users won’t get counseling & supplies

563 people with HIV will lose life-supporting services


low-income people with HIV will lose access to food, dental, primary physician care, medical case management, transportation, mental health and substance abuse treatment, likely worsening health outcomes and increasing health care costs

114 people with HIV will lose housing


highly vulnerable people with HIV will lose access to housing, resulting in homelessness and less adherence to medications. They will face worse health outcomes and higher health care costs.

255 people with HIV will be re-incarcerated at a cost of $5.6 million


people with HIV who left prison or jail will be re-incarcerated at a cost of $5.6 million per year (23% recidivism rate for participants vs. 51% general IDOC recidivism rate) because of funding cuts to a reentry program for people with HIV


people with HIV released from prison or jail will not receive case management, housing, primary medical care, and mental health services, making them less likely to access HIV treatment


Additional funding cuts

Quinn also proposed spending cuts in several areas of concern for people with HIV: Addiction Treatment for Medicaid Populations (-$5 million or 10 percent cut


Mental Health Grants (-$58 million or 42 percent cut)


and Transitional Housing (-$4.4 million or 52 percent cut)Slide20

Cuts to Medicaid

The Illinois Medicaid program provides life-saving health coverage to nearly 2.7 million low-income children, parents, people with disabilities, and seniors. However, the program faces a $2.7 billion deficit this year, and legislators are exploring a range of solutions. Slide21

On to Legislation…


Improving Community & Prison Partner Notification (HB 4453-Smith/


Status: House on 3

rd reading.

HIV rates are 2-3 times higher among inmates than the general population.

This bill would codify current practices and improve partner notification in correctional settings, requiring IDPH and IDOC to improve the system of partner notification.

Partner notification is voluntary and confidential.


Comprehensive Sex Education in Schools (HB 3027 –


Status: Passed Senate, awaits House floor vote.


a public

school in Illinois offers



, it

must be


accurate, developmentally

and age appropriate


must include


benefits of delaying or

abstaining from sexual activity


Parents can opt out.

Schools would be required to use evidence-based curriculums approved by the state. Parents can review the curriculum.

Funding is available from the feds to implement.


Red Ribbon Lottery (SB 2971 J. Collins/Yarbrough)



Senate on 3rd reading.

Would extend the expiration date on the “Quality of Life (Red Ribbon Lottery” until 2017.

Proceeds from the lottery fund HIV/AIDS prevention and care services for populations disproportionately affected by HIV/AIDS.

Fund raised $1.4 million for prevention and care last year.


Implementing effective anti-bullying measures (HB 5290 - Cassidy)

Status: House amendment 3 on 2


reading in Education committee.

In 2010, the General Assembly passed the School Prevention Act to define bullying and create a taskforce to look at ways to stop bullying.

This bill implements recommendations of the of the task force.


physical appearance, socioeconomic status, academic status, pregnancy, parenting status and homelessness

to protected classes from bullying.

Defines “policy on bullying”

to give schools guidance to comply with the law.



Visit www.aidschicago.orgRegister for AFC Lobby Day

Wednesday, April 18








Telling Your StorySlide28


know HIV/AIDS issues


are an expert on how HIV impacts your life

As a person living with HIV

As a person providing services to people living with HIV

Your personal experiences provide perspective and impact beyond statistics

Lawmakers need the human story and face to understand importance of policies



Give your name

Where you are from

Relevant background information about yourself

Talk about the expertise you bring:

As a person living with HIV

Someone working in the field

As a concerned community memberSlide32

Talk about:

The issues and programs that matter to you and why

(ADAP, health care reform implementation, case management, housing assistance, mental health, substance use counseling and treatment, food and nutrition, prevention, etc.)

How those programs help/ed you

What would happen to you and others people living with HIV without these programs or if new programs were developed


Consult the fact sheets in your packets

Think about how the policy asks relate to your life and experiences

Use the testimony worksheet to help organize your thoughtsSlide34

This is not the place to complain, but to offer viable solutions to problems and challenges

These are the policy and funding asks

Talk about what is working

Talk about where policies and programs can be improvedSlide35

You may have only a few minutes

Make sure you and your group are well organized so you can deliver your message and ask clearly and concisely. Don’t use acronyms!

Stay on your issue

If conversation veers, bring it back!Slide36

Directly ask if you can count on the member’s support for:

Will you vote against a $4 million cut to HIV funding?

Will you vote against a $2 billion cut to Medicaid?

Wait and listen for a responseSlide37

The Introduction:

My name is Jonathon Smith.

I am a lifelong resident of the district.

I am 29 years old and have lived with HIV for five years. My whole family lives in the area. I live alone and work for a small company that does not offer health insurance. Slide38

The Issue:

I am here to talk to you about the Illinois Personal Responsibility Education Program, which would require Illinois schools to teach age-appropriate, medically-accurate sexual health education programs.Slide39

The Personal Story:

When I was younger, I went to a school that taught that I should abstain from sex until I got married. I didn’t learn anything about how to use a condom or how HIV was transmitted.

My parents didn’t talk with me about sex either. I was forced to learn from TV and my friends.

The sex


program set the tone that sex was a shameful act that I shouldn’t engage in. When I started to have sex, I felt I couldn’t ask anyone about how to prevent HIV or STDs. That’s just not right. Slide40

The Concern:

Illinois youth are not getting the facts they need to make responsible decisions about their health and future.

The Consequences:

Providing medically-accurate and age-appropriate sexual health education programs must be one strategy to reduce HIV cases, unplanned pregnancies, and sexually transmitted diseases among youth.Slide41

The Solution:

The Illinois PREP Act requires schools that teach sex


programs to provide medically-accurate and age-appropriate sex


programs, using approved curriculums.

Schools won’t be required to offer sex


; that remains optional.

Federal funding is available to help implement the programs in schools.

Any parent can remove their child from a sex


class for any reason. Slide42

The Ask

Will you co-sponsor the Illinois PREP Act?

If the Senator answers no: “Will you vote yes on the bill?”Slide43

Make sure they give you a clear answer!

Ask politely: will you support or not?


Don’t argue—thank them and walk away. Slide44

Welcome to the CircusSlide46

Your quest…

The Illinois General AssemblySlide47

The Illinois General Assembly

59 Senate Districts:2 House Districts for Each Senate DistrictSenators serve 4-year terms

118 House Members:

Representatives serve 2-year termsSlide48

The legislative processSlide49

Lobbying at the State Capital

Illinois State Capital Building—where lawmakers debate and vote

Stratton Building is where most state representatives have their offices

All state senators have their office in the CapitolSlide50

Finding your new BFF – your Senator

Finding your senators:

Go with other advocates with the same legislators. Your group leader can help you out.

See if they are in their offices; ask their assistants where they are (be super-nice!)

If needed, go to the committee room and wait patiently…(good place to rest!)

As they walk out, ask if they have a minute.Slide51


Go with other advocates with the same legislators. Your group leader can help you.

See if they are in their offices; ask their assistants where they are (be super-nice!)

If needed, go to the committee room and wait patiently… (good place to rest!)

As they walk out, ask if they have a minute.Slide52

Who do I visit?

Your own Illinois Senator and RepresentativeIf possible, go with others from your district or a nearby district

Check in with us to see if you can get a special assignment!Slide53


at ‘the rail’

House & Senate Sessions at 12 pm

Most visits happen “at the rail,” the public area just outside the House and Senate chambers

To request a lawmaker visit, pass your card to the doorkeepers and wait patiently

Be prepared for the CHAOSSlide54

Advocates Lobbying At ‘the Rail’Slide55

You may only have 30 seconds


Fact sheets reinforce your message – give them

to your legislators!Slide57

The Stratton BuildingSlide58

Office VisitSlide59

Also helpful to know

AFC staff, IL ASAP members and others will be in red shirts. Ask them for directions!


anyone for directions.Take the TUNNEL

between Stratton and the Capitol. Otherwise, you’ll go through security again. Slide60

What if…

I can’t find my legislator?

It’s a zoo?

It didn’t seem like my lawmaker was listening?

I didn’t get a chance to say everything?Slide61


If conducting meetings with other advocates, determine who will cover which issues. Practice delivering them together.

Be PATIENT, polite and courteous. Don’t use acronyms!

Take note of any questions or requests for additional information.Slide62


Hand over the fact sheet at end of meetingBe gracious, attentive and organized

Stay on your issue – don’t stray

Say “I don’t know” if you don’t know the answer to a questionThank them for support (if appropriate) and timeFollow up!Slide63


Thank the Rep. or Senator for their timeTell them you will follow up with them soonSend them any additional information they requested

Keep track of their support or opposition and call or write to say thank you or to keep pushing themSlide64


Thursday, March 22




Lobbying at the Capitol/Stratton Building


: Feedback, planning for Lobby Days




IL ASAP work plan





$54 B being allocated this year, there is money– Harris & DelgadoNeed to target appropsBug Sarah about budget issuesHernandez and Soto needs to get on board

Advocates need pictures of reps

Facebooks on tables at hotelSlide67

Lobby Days PlanningSlide68

Experiences from Previous Lobby Days and Suggestions for this Year?

Follow up with phone call, home visit

Training advocates how to do in district work

Have fact sheets in advance to send to networks about issues

Send flyer to LGBT groups

IL ASAP members to HIV groups – Chris, Scott and Tony/Sharon, Chad TPAN

Send out IDPH 12 budget so


can show agencies

Chad and


and Scott – maybe speaking at rally

Make signs the night before – noisemakers other than Eric L.

Quick research on legislators you will be seeingSlide69

IL ASAP Role at Lobby Days

Leading small groups on trip to Capitol and guiding them to meet their legislators

Helping to run “home base” operations in the rotunda Slide70

Leading Groups to Capitol

Bus by Senator’s last nameLead groups to Senators’ offices and rail

Give assistance to those needing help finding Rep.’s officeSlide71

Other Roles IL ASAP Could Play?Slide72


IL ASAP 2012 Work PlanSlide74

IL ASAP Work Plan

What issue will affect all parts of Illinois in 2012?Stigma – community level intervention not much legislative

Client involvement/access to services

State and fed budget cutsImplementing HCREducating community about benefits


Youth issues


Issue identification

What are the concrete and specific problems we most need to address?

What concrete solutions can solve the problem(s)?

Health care reform unclear and confusing

How it benefits HIV/AIDS community

Incorporating issues like budget cuts, client involvement tying things together

Clear understanding of which parts of HCR may be overturnedSlide76

Core Goal(s) & Objectives

What is our core goal(s)?

What are 2-4 clear objectives that IL ASAP can use to help determine the success of its plan?

Educate clients on impact of HCR – how many?

Educate IL ASAP on HCR




Humanizing the message/reframing issue

Educate state legislators on importance of HCR on HIVSlide77


Who are the decision makers and what influences their decisions






Core Constituencies

What people/groups are most affected?

Who among them will be willing to participate in advocating for a solution







Sex workers


Homeless pop

Domestic violence Slide79


In addition to the core constituents, who will be supportive and helpful on the organizing effort?

How will you get their support?




Current HCR movement – CBHC

Medical communitySlide80


Who stands on the other side of this issue and will attempt to block/thwart or work against you?

How do you deal with them?


Budget hawks

Insurance / brokers

Self-insured orgs?

Small businesses

Some religious communitiesSlide81


What tactics and activities will you use to accomplish your goal(s)?

What relationships does IL ASAP’s base, allies, supporters, etc. have with the targets?


Town halls

Media campaign

Speaker meetings



Social network





Legislative visits


Elections – GOTV, know candidates’ stances on HCRSlide82

Organizational Structure

How will you be organized to accomplish your goal?

Who makes what level of decision?

How will you communicate efficiently within the structure


Working groups – possibly broken down by main objectives?


Key Messages

What are 2-4 key, clear, and publicly accessible messages for your campaign?

HCR is transform the fight against HIV/AIDS

Long-term money saver and life saver

Something about RW and MedicaidSlide84


What is the minimum amount of money you need to conduct a campaign?

How will you secure the necessary financial resources? Slide85

Community Building Activities

What are a few activities to build community and familiarity among the organizers?Slide86


How will you evaluate your campaign?

How will you know if you were successful?

Besides reaching our major goals, what other measurable outcomes are desirable? Slide87

Public Foundations & Non-Profits

Must Abide by Same Restrictions

Who should IL ASAP actively outreach to support the work?


Individuals Slide88

Public Foundations & Non-Profits

Must Abide by Same Restrictions

What are specific actions IL ASAP could take to help advocates gain greater understanding about HIV/AIDS policy issues


Presentations/ teach in

Lobby days


Social media



Text message campaign

Direct action

Survey community – what they know, need to knowSlide89

Public Foundations & Non-Profits

Must Abide by Same Restrictions

What are specific actions IL ASAP could take to help advocates enhance existing/learn new advocacy skills?Slide90

Public Foundations & Non-Profits

Must Abide by Same Restrictions

What are specific actions IL ASAP could take to

build client involvement?

Regional care reps

Support groups

Action coalitions


Peer to peer






The Caucus



prevention planning group


Planning bodies


Rev Green FRA, prison work

CAN TVSlide91

Public Foundations & Non-Profits

Must Abide by Same Restrictions

What simple, but concrete actions could IL ASAP develop for advocates to support the statewide policy agenda? Slide92

Public Foundations & Non-Profits

Must Abide by Same Restrictions


Figure out organizational structure for work plan to meet objectives

IL ASAP members should make a list of orgs/people to reach out to

List of activities they could be involved in



Plan HCR education for IL ASAP

Lucy to send out hotline list

Send this


to all and get input from

absent membersSlide93

Next StepsSlide94

Next Steps

AFC figure out how to target approps and others lobb days and in district visit

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