APSE National Conference Philadelphia PA June 23 2015 Lets Chat Twitter WSPJ1 Text 7857642472 Online PAHJ44U9 What Happens to Youth When They Grow Up Experience a variety of transitions ID: 425364
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Slide1
What’s Health Got to Do With It? Integrating Education & Health Care Transitions to Achieve Mutual Outcomes
APSE National Conference
Philadelphia, PA
June 23, 2015Slide2
Let’s Chat
Twitter: @WSPJ1
Text: 785-764-2472
Online: PAHJ44U9Slide3
What Happens to Youth When They Grow Up?
Experience a variety of transitions:
School
Adult ServicesBut did you know: Pediatric Medical Care Adult Medical Care
Pediatric Specialty Care Adult Specialty Care
Slide4
What is the Goal?
Quality Adult Life
Health Care
Well-BeingEmploymentIndependent LivingCommunity ParticipationRelationshipsSlide5
What are Your Experiences with Health Care Transition?
I
am currently receiving pediatric medical care I
am currently receiving adult medical
care
I am currently in the process of transitioning from pediatric to adult care
I am not currently transitioning but would like to I would like more information about health care transition
Slide6
Family
What is Health Care Transition?
Pediatrics
Adult Care
HEALTHCARE TRANSITIONS…
PATIENT
…Slide7
What is Often the Reality?
Family
Pediatrics
The Specialist
Adult Care
HEALTHCARE TRANSITIONS…
PATIENT
…
Slide8
What is the Impact?
Range
of disparities in health outcomes
Reduced access to health careMore difficulty getting needed carePoorer health outcomes Slide9
What Contributes to “the Gaps” in Transition?
No
reimbursement for transition activities
Limited number of adult providers Youth not considered to be “transition ready”Lack of knowledge of pediatric and congenital
conditionsSlide10
How Many Youth with Special Health Care Needs Turn 18 Each Year?
100,000
250,000
500,000 750,000
1,000,000Slide11
Why is Health Care Transition Important?
4.5 million youth with special health care needs
65% of whom are moderately to severely affected
750,000 of these youth turn 18 every yearMost live well into adulthood Slide12
Why Should We Think About Health?
Impacts everything we do
Influences school, work, and quality of life
Importance of access to insurance and medical careSlide13
What Often Happens?Slide14
Different WorldsSlide15
Different PerspectivesSlide16
Different ModelsSlide17
Concept of SupportsSlide18
Awareness of Best PracticesSlide19
ExpectationsSlide20
So How Can We Connect the Two?Slide21
What Did Stakeholders Tell Us?
Focus Groups
Interviews
SurveyLearning Collaborative Slide22
What Were the Common Themes?
Information & Education Tools & Resources
Interventions & ProtocolsSlide23
What are Critical Components in Transition?
Developing skills that are credible in adulthood
Providing youth with access to people in the adult world
Providing opportunities for youth to participate in the adult worldSlide24
Transition Engagement Checklist
A framework of “talking points”
A “current status check” of key aspects of successful transition
An
“action plan” for addressing the skills
and supports needed to enhance the
adolescent’s self-determined actions over time.Slide25
TRANSITION
ENGAGEMENT CHECKLISTSlide26
TRANSITION ENGAGEMENT CHECKLIST [Continued]Slide27
TRANSITION ENGAGEMENT CHECKLIST [Continued]Slide28
Patient Interaction Tool
Developed by youth with disabilities
Input regarding the type, number, and format of questions
Determined the most important and useful questionsProvides youth with a guide to start conversations Slide29Slide30
Adolescent Transitioning Clinic
Multi-disciplinary, day long
Comprehensive
Transition readinessSelf-determinationEducationEmploymentCommunity organizations
“
I hope…that other families will have this wonderful experience
and to provide another young person the opportunity to use this great resource to assist them as they transition to the adult world.
I highly recommend it! A++”Slide31Slide32
How Can I Participate?
Field testing of the Transition Engagement Checklist
Field Testing of the Patient Interaction Tool
Provide input, comments, and feedbackStay connectedSlide33
What Else Can I Do?
Get to know the medical community
Share resources and what you can do
Provide “patient summaries” (skills, communication, supports)Include health in your workPromote skills and experiences important for health care transitionSlide34
Let’s Hear From You?
http
://
www.socrative.comEnter Teacher’s Room Code: PAHJ44U9Click on:
Join Room
Enter Your Name:
_____________________Click on:
DoneSlide35
For more information, contact
Wendy Parent-JohnsonWendy.parentjohnson@usd.ed
(605)357-1468
Richard Parent-Johnson
Richard.parentjohnso@usd.edu
USD Center for Disabilities (
www.usd.edu/cd
)