025 year olds 201516201920 Version 10 Last updated 18th January 2021 Produced by Gerrard AbiAad Head of Public Health Intelligence Josh Stroud Public Health Analyst Laura Hill Information Officer ID: 1042552
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1. Estimates of the Prevalence of Cerebral Palsy in Kent0-25 year olds – 2015/16-2019/20Version: 1.0Last updated: 18th January 2021Produced byGerrard Abi-Aad, Head of Public Health IntelligenceJosh Stroud, Public Health AnalystLaura Hill, Information OfficerAll correspondence to Josh Stroud, Lead Analyst
2. IntroductionPrevious research1 suggests that the prevalence of cerebral palsy in 0-25 year olds in England is between 2.4 and 3.5 per 1,000.Reliable historic data that would allow an estimation of the prevalence of cerebral palsy in Kent is not available. Therefore, the purpose of this analysis is to determine the number of individuals with cerebral palsy that had contact with the healthcare system between April 2015 and March 2020.General practice data and hospital inpatient data have previously been used as suitable data sources for identifying cerebral palsy1. Therefore, a dataset providing a record of events at general practice and a second dataset providing a record of hospital admissions are the data source for this analysis.1Carter, B., Bennett, C. V., Bethel, J., Jones, H. M., Wang, T., & Kemp, A. (2019). Identifying cerebral palsy from routinely-collected data in England and Wales. Clinical Epidemiology, 11, 457Cerebral Palsy, January 20212
3. Data ExtractionThe literature identified 49 Read codes and 24 ICD-10 codes for cerebral palsy. In addition, 1 ICD-10 code was identified for the fitting and adjustment of an orthopaedic device2.Cerebral Palsy, January 20213ParameterGeneral PracticeHospital AdmissionsClinical codingCerebral palsy Read codeCerebral palsy ICD-10 codeAge 0-250-25Resident statusRegistered to Kent or Medway general practiceRegistered to Kent or Medway general practiceTime frameApril 2014 – March 2019April 2014 – March 2019The Kent Integrated Dataset (KID) contains a reliable record of contact with general practice and hospital admissions from 2015/16-2019/20 for patients registered at practices in Kent and Medway.The parameters for data extraction from the KID can be seen in Table 1.Table 1. Data extraction parameters2NHS. (2019). Greater Manchester EUR Policy Statement on: Orthoses, Bespoke Orthoses & 24-hour Posture Management (version 1.1) Available at: http://northwestcsu.nhs.uk/BrickwallResource/GetResource/0fa7e213-8a0a-466b-9f73-8dceed9cde99 (Accessed 17th December 2020)
4. MethodsTwo datasets were extracted from the KID:The number of 0-25 year olds registered to a Kent or Medway practice that have had contact with primary care (general practice) for which the record contains a cerebral palsy Read code.The number of 0-25 year olds registered to a Kent or Medway practice admitted to hospital with a primary or secondary diagnosis of cerebral palsy as identified by ICD-10 code.The data was extracted year-by-year; a unique set of individuals with cerebral palsy identified in each year. The number of individuals identified in each year was aggregated to give a total count of individuals with cerebral palsy over the five year period.The number of individuals from each dataset was summed to give a total number of 0-25 year olds with cerebral palsy that had contact with healthcare anytime between April 2015 and March 2020.Cerebral Palsy, January 20214
5. ResultsCerebral Palsy, January 20215Year0-45-910-1415-1920-2425Total2015/163268653559182772016/173463684649122722017/183655524958152652018/194157495251122622019/2063635752447286Total206306291234261641362Table 2. Count of individuals aged 0-25 with primary or secondary care record of cerebral palsy: by financial year and quinary age bandYear0-45-910-1415-1920-2425TotalMale12817517413914634796Female781311179511430565Total206306291234260641361Table 2a. Count of individuals aged 0-25 with primary or secondary care record of cerebral palsy: by gender and quinary age band
6. ResultsCerebral Palsy, January 20216Age 8-12Age 0-25Spastic diplegic cerebral palsy49180All cerebral palsy3081362Table 3. Count of individuals aged 8-12 with primary or secondary care record of cerebral palsyTable 4. Count of individuals aged 8-12 with primary or secondary care record of spastic diplegic cerebral palsy3 individuals in the datasets were identified as having an orthopaedic device fitted, however none of these had a record of cerebral palsyGender89101112TotalMale2924183124126Female3841463027182Total6765646151308
7. Cerebral Palsy, January 20217