A New Resource to Support Research, Policy, and Practice - PowerPoint Presentation

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A New Resource to Support Research, Policy, and PracticeLauren Harris-Kojetin, PhDLHarrisKojetin@cdc.govEunice Park-Lee, PhDEParkLee@cdc.govLong-Term Care Statistics Branch

The Long Term Care Discussion GroupJanuary 27, 2015

National Study of

Long-Term Care Providers (NSLTCP)

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Christine CaffreyLisa DwyerLauren Harris-KojetinEunice Park-LeeVincent RomeManisha SenguptaRoberto Valverde2Contributors to this PresentationSlide3

National Center for Health Statistics—Long-Term Care Statistics ProgramNational Health Care Surveys’ MissionTo collect, analyze, and disseminate data on…use, access, quality, and cost of health care provided in the United States andhealth care organizations and professionals who deliver that careLong-Term Care Services P

roviders SurveyedNational Nursing Home Survey (NNHS)National Nursing Assistant Survey (NNAS) supplementNational Home and Hospice Care Survey (NHHCS)National Home Health Aide Survey (NHHAS) supplementNational Survey of Residential Care Facilities (NSRCF)

National Study of Long-Term Care Providers (NSLTCP

)

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Overview

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Sponsored by CDC’s National Center for Health Statistics

Integrated initiative to monitor trends in paid, regulated long-term care

Five sectors

adult day services centers and participants

home health agencies and patients

h

ospices and patients

nursing homes and residents

residential care communities and residentsSlide5

Primary GoalsEstimate supply and use of paid, regulated long-term care servicesEstimate key policy-relevant characteristics of providers and users, and practices of providers Produce national and state-level estimates, where possibleCompare within and between sectorsExamine trends over time

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Topics about ProvidersBolded topics are available for all five sectorsBasic operating characteristics—Ownership, chain status, capacity, number served, Medicaid participation, part of a CCRC, years in operation, dementia special care unitServices offered and how—Dental, hospice, social work, case management, medication management, mental health, therapeutic, pharmacy, podiatry,

skilled nursing, transportationStaffing—Nursing, social workers, activities staffPractices—Depression screening, disease management programming, EHR, person-centered practices6Slide7

Topics about Users (Aggregate distributions)Bolded topics are available for all five sectorsDemographics—Age, Race, Ethnicity, Sex, Medicaid useSelected medical conditions—Alzheimer’s disease or other dementias, developmental disability, severe mental illness, depressionPhysical and Cognitive Functioning—Need any ADL assistance (transferring,

eating, dressing, bathing, toileting, locomotion), wheelchair/scooter useHealth care use—Overnight hospitalizations, re-hospitalizations, ED useOther characteristics—Move-ins, move-outs and where went, left because of cost

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Provider Sectors and Data Sources

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Hospices

Nursing Homes

Home Health Care Agencies

Residential Care Communities

Adult Day Services Centers

PROVIDER

SECTORS

Administrative records

Survey questionnaire

DATA SOURCESSlide9

Published in 2013

Survey restricted data files for

adult day

and residential

care

available

through

NCHS

Research Data

Center—10/2013

First overview report on all 5 sectors—12/2013

Published in 2014

Adult day data

briefs with

link

to state

web tables

—10/2014

Residential care data briefs with link to state web tables

—11/2014

Quickstats

—varied topics and dates

To be published in 2015

State

web tables to complement

first overview report—2/2015Weighted national estimates document—by 4/2015

Products Using 2012 Data

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http://www.cdc.gov/nchs/nsltcp.htm

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http://www.cdc.gov/nchs/nsltcp/nsltcp_products.htmSlide13

Selected National Results Across SectorsSlide14

As of 2012 in the United States…about 58,500 paid, regulated long-term care services providers served about 8 M people. 4,800 adult day services centers had 273,200 participants enrolled on a typical day12,200 home health agencies served over 4.7 M patients annually3,700 hospices served over 1.2 M patients annually15,700 nursing homes served almost 1.4 M residents on a typical day22,200 residential care communities housed 713,300 residents on a typical day

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Percent Distribution of Long-Term Care Providers, by Type of Provider and Region: United States, 2012NOTE: Percentages are based on the unrounded numbers.SOURCE: CDC/NCHS, National Study of Long-Term Care Providers

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(4,800)

(12,200)

(3,700)

(15,700)

(22,200)Slide16

Percentage of Long-Term Care Services Providers with Any Full-Time Equivalent Employees, by Type of Provider and Staff Type: United States, 2012

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NOTE: Percentages are based on the unrounded numbers.

SOURCE: CDC/NCHS, National Study of Long-Term Care ProvidersSlide17

Percent Distribution of Users of Long-Term Care Services, by Type of Provider and Age Group: United States, 2011 and 2012

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NOTE:

Percentages

may not add to

100

because of rounding. Percentages are based on the unrounded numbers.

SOURCE: CDC/NCHS, National Study of Long-Term Care ProvidersSlide18

Percent Distribution of Users of Long-Term Care Services, by Type of Provider and Race and Hispanic Origin: United States, 2011 and 2012

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NOTE:

Percentages

may not add to

100

because of rounding. Percentages are based on the unrounded numbers.

SOURCE: CDC/NCHS, National Study of Long-Term Care ProvidersSlide19

Percentage of Users of Long-Term Care Services Needing Any Assistance with Activities of Daily Living, by Type of Provider and Activity: United States, 2011 and 2012

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NOTE

:

Percentages are based on the unrounded numbers.

SOURCE: CDC/NCHS, National Study of Long-Term Care ProvidersSlide20

Percentage of Users of Long-Term Care Services with a Diagnosis of Alzheimer’s Disease or Other Dementias and with a Diagnosis of Depression, by Type of Provider: United States, 2011 and 2012

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NOTE

:

Percentages are based on the unrounded numbers.

SOURCE: CDC/NCHS, National Study of Long-Term Care ProvidersSlide21

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NOTE

:

Percentages are based on the unrounded numbers.

SOURCE: CDC/NCHS, National Study of Long-Term Care Providers

Percentage of Long-Term Care Services Providers that

Used

E

lectronic

H

ealth

R

ecords

and with

Computerized

S

upport

for

Electronic

H

ealth

I

nformation

E

xchange

with Physicians and Pharmacies, by Provider Type: United States, 2012Slide22

Selected State Results for Adult Day or Residential CareSlide23

Eunice add depression screening for adult day centers23Slide24
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Next Steps2012 wave provides a baseline to examine trends in future wavesInfrastructure in place to collect data for adult day services centers and assisted living and similar residential care communitiesPotential to add sectors, collect primary data on other sectors, or add content to current surveysExploring feasibility of person-level sampling and data collectionJust completed 2nd wave of survey data collectionAim to start publishing results using 2014 data by end of 2015

Working to produce public-use survey files27Slide28

Thank you!

Questions?Slide29

Supplemental Information29Slide30

Residential Care Community Definition4 or more beds;primarily an adult population; at least 1 resident at time of interview;licensed, registered, listed, certified, or otherwise regulated by the state to… provide room and board with at least 2 meals a day; provide around-the-clock on-site supervision; and

offer help with personal care OR health care-related services.Exclusions: Nursing homes and providers exclusively serving adults with severe mental illness or ID/DD.