Kermon Kim Shufran T here is Nothing Wrong with Me After All Odd Quirky Strange Peculiar Bizarre Unusual Weird Unique Different Interesting Awkward In getting to know her I became aware of the tremendous struggle she has to just live ID: 447674
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Susan Wright KermonKim Shufran
T
here is Nothing Wrong with Me After All!Slide2
OddQuirky
Strange
Peculiar
Bizarre
Unusual
Weird
Unique
Different
Interesting
AwkwardSlide3
In getting to know her, I became aware of the tremendous struggle she has to just live.Her extreme intelligence and exceptional artist abilities mask this struggle to most people.Although, as my sister says, you never know how she is going to act.
And another friend admits she is scared around her because her mood can switch so dramatically.
From Barbara The friend thinks she has done something wrong to make Susan mad, which may or not be the case!Slide4
Susan is so smart, ethical, responsible, kind, thoughtful… it is hard to believe she cannot help the way she sometimes acts.I have come to know that she cannot.Some behaviors she has learned to “control,” but I see the effort it takes.
From Barbara Slide5
When she told me about the possibility of the Asperger’s diagnosis, I cried.Out of relief for her that something may finally explain and make sense out of how hard life has been.And it made me feel sorry that I haven’t always been patient and kind.
From Barbara
July 2011Slide6
An email from SusanOctober 25, 2012 after attending the Atlanta Autism ConferenceWell, I made it there and back but I’ve been sleeping a great deal since my return.I have taken the week off and now it’s Thursday, and I think I’m finally awake.
I was in quite a state when I got back.
It seemed like my brain was a deck of cards flying around in the air.Now they are all lying on the floor and I’m ready to start stacking them back in order again.
That doesn’t sound so good but I’m thrilled I was able (and willing) to go.Slide7
I thought of you and iCan many times while I was there as you seem to have so figured out how to fill a need.The more I learn, the more impressed I am, the more ideas I have, and the more I want to be a part of it.
And Susan continues…Slide8
NeurodiversitySlide9
Autism Spectrum Disorder- Simplified
C
omplex neurological differences impacting how one learns and communicatesInvolving developmental delays
Affects a person’s social relationships, communication, and behavior
Includes alterations in sensory processing
taste/smell, movement, touch, auditory, visual, and activity levelSlide10
On the Spectrum
No two people are alike
“When you’ve met one person with autism, then you’ve met one person with autism.”Individuals are often
object, rather than
relationship oriented
Diagnosis is difficult to obtain
Requires behavioral observation & historyOften takes years
Prolonged ambiguity and uncertainty is very stressful Slide11
The Changing
Autism DiagnosisSlide12
A Diagnosis, RedefinedDiagnostic and Statistical Manual (DSM) 5
th edition, 2013
Changes prompt significant controversyApproved and adopted by American Psychiatric AssociationSlide13
Comparing “Autisms”Slide14
Data & Statistics
1 in 68 children has been identified with autism spectrum disorder
1 in 70 in North CarolinaASD reported to occur in all racial, ethnic, and socioeconomic groupsASD 5
times more common among in boys (1 in 42) than among girls (1 in 189).
Studies in Asia, Europe, and North America have identified individuals with ASD with an average prevalence of about 1%. A study in South Korea reported a prevalence of 2.6%.About 1 in 6 children in the United States had a developmental disability in 2006-2008, ranging from mild disabilities such as speech and language impairments to serious developmental disabilities, such as intellectual disabilities, cerebral palsy, and autism.
Data from the CDC websiteSlide15Slide16
Impact of a DiagnosisMany adults do not know they are affected.
Many age 30-40-50-60+ are receiving ASD diagnosis
Obtaining a diagnosis can facilitate an understanding of past difficulties with parents, siblings, friends, partners, and coworkers.Slide17Slide18Slide19
Defined the ProblemDesigned a Solution
InnovativeEntrepreneurialClub-based model
No diagnosis requiredReproduciblePositioned to expandSlide20
iCan House MissionWith a foundation in positive thinking,
iCan House seeks to enhance
the lives of those with social challenges by:
teaching social skills,
providing educational opportunities,
maintaining a hub for resources,
and providing a support network for those in need.
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862 West 4
th
Street, Winston-Salem
336-723-0050
info@icanhouse.com
www.iCanHouse.org