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Description: Summary of strategic review process for development of current SP Alliance Meeting 2010 GCU Strategic Review presented Group discussion to identify key objectives to inform development of strategic plan Alliance Meeting 2011 Draft Strategic

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slide1. Summary of strategic review process for development of current SP Alliance Meeting 2010
GCU Strategic Review presented
Group discussion to identify key objectives to inform development of strategic plan
Alliance Meeting 2011
Draft Strategic Plan presented to members
Group discussion on the draft plan
Vision, Mission and Objectives confirmed
Working groups established
Working group review undertaken and report with recommendations submitted to board June 2012
Alliance Meeting 2012
Working group reports to members
Board report on actions for 2013
Working group discussion on actions and working group responsibilities in 2013<br>
slide2. GOAL: A world free of ALS/MND TAGLINE/BRANDING: United in the worldwide fight against ALS/MND<br>
slide3. VISION: We will engage with our members, prospective members and other organisations to share resources globally, to advance awareness and to promote the support of people living with ALS/MND worldwide<br>
slide4. VALUES The Alliance is committed to the following values:

Our service is to the organisations supporting people living with ALS/MND
We will contribute to improving quality of life for people living with ALS/MND
We encourage, support and value innovation and research for people living with ALS/MND
We respect and value the contribution made by all members
We act responsibly, maintain professional integrity and engage and collaborate with the ALS/MND community worldwide<br>
slide5. MISSION STATEMENT Our Mission as the International Alliance of ALS/MND Associations is:

To promote optimal care and support for all people living with ALS/MND
To facilitate information exchange and education at an international level
To encourage collaboration, dissemination and translation of ALS/MND research<br>
slide6. Strategic Objectives 2012 to 2015 To develop the operational structure required to achieve our objectives

To develop and enhance membership, partnerships and programs

To facilitate the exchange of information on ALS/MND care, education and research

To build a sustainable operating/funding model for the Alliance<br>
slide7. 1.To develop the operational structure required to achieve our objectives DRAFT ACTIONS
Renew agreement with MNDA until Dec 2012
Investigate member org. willing to base coordinator
Develop ongoing plan for WG’s
Fundraising Plan to increase funds in short term – refer to funding WG
Develop ED position description
FRP to fund ED position<br>
slide8. To develop and enhance membership, partnerships and programs: Membership<br>
slide9. To develop and enhance membership, partnerships and programs: Partnerships<br>
slide10. To develop and enhance membership, partnerships and programs: Programs<br>
slide11. To develop and enhance membership, partnerships and programs: Programs - ctd<br>
slide12. To facilitate the exchange of information on ALS/MND care, education and research<br>
slide13. To build a sustainable operating/funding model<br>
slide14. Draft – objectives 2016 to 2019 Draft Greater focus on Advocacy and research – NB communications and awareness underpins all these objectives:

ADVOCACY: To influence communities, governments and other international organisations to support the interests of plw ALS/MND globally
MEMBERSHIP: To grow membership and promote the establishment of support organisations where none currently exist
3. PARTNERSHIPS: To promote, support and enhance the Alliance Partnership program
INFORMATION: To facilitate, promote and review the exchange of information on ALS/MND care, education and research
FUNDING: To build a sustainable operating and funding model for the Alliance<br>
slide15. Alliance membership Benefits of being a member of the Alliance
Why is the Alliance important to your organisation?

Think about - what outcomes would you like the Alliance to achieve in the next 3 years related to this objective?<br>
slide16. Workshop and Group Discussion – 2015 To help us develop the Alliance Work Plan for 2016 identify one goal your group would like to focus on this year to help achieve these outcomes:

Identified goal
How do we get there?
What will be the impact of achieving this goal?

Break into 5 groups to focus on one of the strategic objectives:<br>
slide17. Draft – objectives 2016 to 2019 Draft Greater focus on Advocacy and research – NB communications and awareness underpins all these objectives:

ADVOCACY: To influence communities, governments and other international organisations to support the interests of plw ALS/MND globally
Sara and Carol
MEMBERSHIP: To grow membership and promote the establishment of support organisations where none currently exist
Kiki and Theresa
3. PARTNERSHIPS: To promote, support and enhance the Alliance
Partnership program
Evy and Jens
INFORMATION: To facilitate, promote and review the exchange of information on ALS/MND care, education and research
Steve and Bob
FUNDING: To build a sustainable operating and funding model for the Alliance
Barb and Efrat<br>