Topic: Oncology Perspectives of Interest:

Topic: Oncology
Perspectives of Interest: First-person narratives of patients receiving care; First-person narratives of patient caregivers & self-identified advocates Scope An Oncology treatment support team would like to explore perceptions about DEI in Oncology care. Results from this analysis will guide patient support program development & initiative partnerships. Objectives Scope How do patients and caregivers currently perceive DEI in oncology care?
What issues or concerns with DEI do they mention most?
What are health systems doing to respond to DEI disparities & concerns? How do patients perceive differences in DEI-related support and attention across health systems? Key Questions Patients most discussed the impacts of gender and race disparities across care & treatment outcomes
Patients noted distinct concerns about a lack of awareness among key demographics about risk factors, the importance of screening for cancer, and signs and symptoms missed by doctors – which especially impacted patients of color
Patients and caregivers highlighted a perceived lack of access to cancer screening and education, especially for patients in rural areas & low-income patients
Patients and advocates highlighted how a lack of varied demographic representation in clinical trials negatively impacted health equity & treatment outcomes
Health systems participating in DEI support initiatives gained more positive traction when partnering with influential voices in oncology, such as specialists and key opinion leaders, and local organizations like sports teams and advocacy groups Insights Summary<br>

Patients, caregivers, and advocates discussed experiences and opinions about perceived disparity impacts on care & treatment outcomes, highlighting a lack of awareness about demographic risk factors & screening access Oncology DEI | Discussion Volume & Trends z Key Discussion & Sentiment Drivers Top Discussed Disparities Top Discussed Concerns Prevention recommendations and news of progression in cancer treatment development indicating hope for the future of oncology care

Increased risk factors, especially for certain demographics like race, age, family history, and lifestyle (e.g., smoking, obesity, lack of exercise), and lack of awareness & education about risk factors by demographic

The importance of screening, and lack of screening access for some patient groups (e.g., insurance/cost implications, geographic impacts)

Commonly misunderstood or missed signs and symptoms impacting treatment outcomes

Lack of adequate awareness, inclusivity in existing research, and poor experiences with HCPs for LGBTQ+ patients

Lack of clinical trial diversity & lack of representation guidelines in clinical treatment testing leading to gaps in available treatment data & options for some demographics Dataset ID: 12345
Time Period: 1 Jan 2022 - 30 Jun 2024
n = xxx<br>

Oncology DEI | Perceptions of Concerns x Disparities More Negative Less Negative The intersection of prevalent disparities (Veteran, Geographic Location), especially pertaining to LGBTQ+ Veterans living in rural areas, saw negative health outcomes and quality of life reports, highlighting a need for more focus on adequate screening access, attention, treatment, and overall support for these oncology patients Discussion of broad concerns for LGBTQ+, especially trans, and Black patients were associated with consistently high negative sentiment as patients, caregivers, and advocates noted shortcomings in overall oncology support for these groups Sentiment Score Concerns were notably raised about the lack of inclusion of Black and Latinx patients, patients of varied socioeconomic background, and patients in rural or remote geographic areas in clinical trials for oncology outcomes Limitations in cancer screening access for patients of varied socioeconomic background surfaced prominent concern Dataset ID: 12345
Time Period: 1 Jan 2022 - 30 Jun 2024
n = xxx Gender Identity, Race, Socioeconomic Status, Veteran, and Geographic Location-based disparities were discussed most negatively<br>