Raising Awareness in Arizona January 23 2017 Presenting To APHL SCID Quarterly Call Sondi Aponte Education amp Outreach Manager Office of Newborn Screening Arizona State Laboratory ID: 934503
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Slide1
Severe Combined Immunodeficiencies in the Newborn/Infant:
Raising Awareness in ArizonaJanuary 23, 2017 Presenting ToAPHL| SCID Quarterly Call Sondi Aponte | Education & Outreach ManagerOffice of Newborn Screening, Arizona State Laboratory
Grant Acknowledgement
These events are funded through a Cooperative Agreement (UG5MC27837) with the Health Resources and Services Administration (HRSA), administered by the Association of Public Health Laboratories (APHL)
.
Slide2It Takes a Big
Village to Raise a Healthy Child
SCID
in the NEWBORN:
RAISING
AWARENESS
in ARIZONA
Slide3A Slow Beginning
Slide4In 2016, We Hit our Stride
Partnership DevelopmentImmunology Medical Sub-specialty contractsParent PartnersAdvocates; Champions; Experts
Messaging
Discuss SCID with Everyone, Everywhere
Pediatric conferences
Newsletters
Knowledge building
ACT Sheets
CLSI Guidelines
Publications
Capacity Building
Lab
Training
Planning clinical trainings
Parent Partners
Pilots with Hospitals
Slide5SCID Awareness Week in Arizona
Booklet
Schedule
Slide6Clinical Trainings
ImmunologistsPediatriciansPublic HealthIndian Health ServiceNational expertsDr. Jennifer PuckDr. Rebecca BuckleyState ExpertsDrs Holly Miller,
Mike Daines
IHS perspective
–Dr Diana Hu
Hospitalist
with late
ID baby
Slide7Our
Keynote Speakers Share Insights about the Events
Slide8Non-Clinical Events
Parents and Partners Participated
Slide9Early
OutcomesBetter communication—Hospitals / PCP / ImmunologistsCollaboration with AZ Advisory Council on Indian Health Care
Brought champions into the state
Included parent partners
Found an
A
zAAP pediatric champion
Perkin Elmer
L
ab stepped up to provide a bridge service
2 hospitals will start SCID screening in the next few weeks
Governor Ducey ’s State of the State
Pending Legislation
Slide10Next Steps
Arizona Rural & Public Health Policy Forum January 25th Working with 2 hospitals to implement SCID Screening using Perkin Elmer Labs— February 1st
March of Dimes Capitol Day
February 8
th
Facilitating Tribal
Health Directors Forum to be held on
February
23
rd
Slide11THANK YOU
Sondi Aponte | Education & Outreach Managersondiaponte@azdhs.gov
|
602-364-1642
azhealth.gov
@
azdhs
facebook.com/azdhs
“Never
doubt that a small group of thoughtful, committed citizens can change the world; indeed, it's the only thing that ever has
.”
Margaret Mead