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UF + FSU Florida Federal Statistical Research Data Center UF + FSU Florida Federal Statistical Research Data Center

UF + FSU Florida Federal Statistical Research Data Center - PowerPoint Presentation

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UF + FSU Florida Federal Statistical Research Data Center - PPT Presentation

FLRDC Consortium Presented by Jaclyn Hall PhD Sept 7 2021 The UFFSU hub is supported by the National Center for Advancing Translational Sciences of the National Institutes of Health under University of Florida Clinical and Translational Science Awards UL1TR001427 KL2TR001429 and TL1TR ID: 931090

national data survey health data national health survey research codes rdc census statistics bureau center care lehd federal information

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Slide1

UF + FSU

Florida Federal Statistical Research Data Center —FLRDC Consortium—

Presented by: Jaclyn Hall, PhD. Sept. 7, 2021

The UF-FSU hub is supported by the National Center for Advancing Translational Sciences of the National Institutes of Health under University of Florida Clinical and Translational Science Awards UL1TR001427, KL2TR001429 and TL1TR001428.

Slide2

Florida Federal Statistical Research Data Center

—FLRDC Consortium—

Jaclyn Hall, PhD,

Faculty in the Department of Health Outcomes and Biomedical Informatics, UF College of Medicine

Slide3

Agenda

Overview of FSRDC program

History of RDCs

Introduction to the FLRDC

RDC proposal process and research environment

Administrator job posting

Questions in chat

Slide4

32 RDC Locations

FLRDC

Atlanta

Boston

California - Berkeley

California - IrvineCalifornia - StanfordCalifornia - UCLACalifornia - USCCB HeadquartersCentral Plains (Lincoln)ChicagoDallas-Fort Worth

Florida (Gainesville)GeorgetownKansas CityKentucky (Lexington)Maryland (College Park)Michigan (Ann Arbor)Minnesota (Minneapolis)Missouri (Columbia)New York - Baruch

New York - CornellNorthwest (Seattle)Penn StatePhiladelphiaRocky Mountain (Colorado)Texas (College Station)Texas - UT AustinTriangle - DukeTriangle - RTI

University of Illinois

Urbana-

Champaing

Wisconsin (Madison)

Yale

Slide5

About the RDC Lab

Visit our website:

https://www.ctsi.ufl.edu/research/laboratory-services/florida-rdc/

Slide6

Remote Access Pilot

Remote access

Projects looking at delomorphic data from Census and ACS

No Federal tax data

No NCHS

No employment data

Slide7

About the RDC Lab

The RDC is a local physical environment

Open in September 2021 - UF East Campus

7 thin client work stations

Census Bureau requirements

24-7 Security System, badge readers, camera

Special Sworn StatusNo electronic devices allowed

NOTHING leaves the secure lab without approval

Visit our website:

https://www.ctsi.ufl.edu/research/laboratory-services/florida-rdc/

Slide8

Functions

Allow access to a wide variety of federal micro data, small area micro data

economic, population, and health data

To facilitate

statistical

research

Improve utility and quality of federal statisticsAddress policy questions

Allow access to a wide variety of federal micro data

Census Bureau

*National Center for Health Statistics

*Bureau of Labor Statistics

Agency for Healthcare Research and Quality

Bureau of Economic Analysis

THE UF-FSU FLRDC Consortium

Slide9

To the Researcher

Key Advantages of an RDC

More geographic detail

PUMA for summary data

down to the census tract and census block level

Additional variables

More detailed coding within the variables

Variables with higher top codes

Linkages to other administrative data

(or even your own institution’s data)

Slide10

To the Research Community

Key Advantages of an RDC

Greatly expands the policy and basic questions that can be addressed

Builds on past research findings with richer data

Improves graduate education (big data/statistical techniques) and placement

Improves competitive edge for grants and publications

Increases competitive recruitment

Slide11

Public

Reports

Data files: collapsed categories, summarized

Restricted: Indirect Identifiers

:

Available through the FSRDC locations

GeographyDates

Detailed race/ethnicity

Occupation

Prohibited: Direct Identifiers

Never available

Name

SSN

Address

Used to create the Linkage Products and removed

Types of Data and Data Access

Slide12

Members

Federal Statistical Agencies

U.S. Census Bureau

National Center for Health Statistics

Bureau of Labor Statistics

Bureau of

Economic

Analysis

The Agency for Healthcare Research and Quality

Social Security Administration

US Department of Agriculture (USDA)

Economic Research Service

Bureau of Justice Statistics

National Center for Education Statistics

Office of Management and Budget

Energy Information Agency

Bureau of Transportation Statistics

Statistics of Income Division (IRS)

Department of Housing and Urban Development

Environmental Protection Agency

Energy Information Administration

National Center for Science and Engineering Statistics

Slide13

Social Security Administration

SSA

Summary Earnings Record

Master Beneficiary Record

Disability File

Detailed Earnings Record

Slide14

Centers for Medicare & Medicaid Services

CMS

CMS Transformed Medicaid Statistical Information System

(TMSIS)

CMS Medicare Enrollment Database

(EDB)

CMS Medicaid Statistical information System

(

MSIS)

Slide15

Longitudinal Employer-Household Dynamics

LEHD

LEHD Unit-to-Worker (U2W)

LEHD Successor-Predecessor File (SPF)

LEHD Quarterly Workforce Indicators (QWI)

LEHD Individual Characteristics File (ICF)

LEHD Geocoded Address List (GAL)

LEHD Employment History File (EHF)

LEHD Employer Characteristics File (ECF)

LEHD Business Register Bridge (BRB)

Slide16

Longitudinal Employer-Household Dynamics-

State Partners

Slide17

Census Bureau

CB

Decennial Census

(CEN),

American Community Survey

(ACS)

Demographic Data

Current Population Survey Computer and Internet Use Supplement (CEN-BLS)

CPS Fertility Supplement (CEN-BLS)

CPS Tobacco Use Supplement (CEN-NCI)

Mortality Disparities in Communities (CEN-NIH-FDA-NCHS)

National Longitudinal Mortality Study (CEN-NCI-NCHS-NHLBI-NIA)

National Immunization Survey Evaluation Study (CEN-National Center for Immunization and Respiratory Diseases (NCIRD)

Economic Data

LEHD

Experimental Data Products

Post-Secondary Employment Outcomes (PSEO)

Household Pulse Survey

Community Resilience Estimate

Veteran Employment Outcomes

Small Business Pulse Survey: Tracking Changes During The Coronavirus Pandemic

https://www.census.gov/programs-surveys/ces/data/restricted-use-data.html

Slide18

National Health Care Surveys

National Ambulatory Medical Care Survey (NAMCS) and National Hospital Ambulatory Medical Care Survey (NHAMCS)

National Hospital Discharge Survey (NHDS)

National Nursing Home Survey (NNHS) and National Nursing Assistant Survey (NNAS)

National Home and Hospice Care Survey (NHHCS) and National Home Health Aide Survey (NHHAS)

National Survey of Residential Care Facilities (NSRCF)

National Study of Long-Term Care Providers (NSLTCP)

National Hospital Care Survey (NHCS)

National Survey of Family Growth (NSFG)

National Center for Health Statistics

National Health Interview Survey (NHIS

)

National Health and Nutrition Examination Survey

National Survey of Family Growth (NSFG)

State and Local Area Integrated Telephone Survey (SLAITS)

National Survey of Children’s Health (NSCH)

National Survey of Children with Special Health Care Needs (CSHCN)

National Vital Statistics System (NVSS) Data

National Maternal and Infant Health Survey

Mortality

Data Files - NDI

Multiple Cause of Death Data File

Drug Involved Mortality Restricted Variables

Redacted Death Certificate Literal File

Slide19

National Center for Health Statistics

National Health and Nutrition Examination Survey (NHANES)

Linked to National Death Index

ICD codes for cause of death including many related to occupation (e.g. fumes and vapors)

Detailed health data -related to occupational environmental exposure, collected through medical examinations and interviews

Job-related asthma, tobacco exposure, sound exposure, mineral dust exposure, exhaust

Diagnoses for many different cancer types and age of diagnosis

Treatments for specific diagnoses: surgery, radiation treatment, medicines

Geographic Identifiers (restricted data)

Latitude Longitude coordinates for household

Census tract (2000, 2010) and postal geographies

Occupation Industry Codes (restricted data)

4 digit codes for current and longest-held jobs

National Health Interviews Survey (NHIS)

Linked to National Death Index

Interview data focused on tracking access to healthcare and health status of the nation with larger yearly sample than NHANES

Geographic Identifiers (restricted data)

Latitude Longitude coordinates for household

Census (2000, 2010) and postal geographies

Occupation Industry Codes (restricted data)

4 digit codes for current and longest-held jobs

ICD codes for cause of death including many related to occupation (e.g. fumes and vapors)

Slide20

Agency for Healthcare

Research and Quality

Medical Expenditure Panel Survey (MEPS)

Household Component–Insurance Component Linked File (available for 1996–1999 and 2001).Diagnoses for many different cancer types and age of diagnosis

Nursing Home Component (available for 1996 only). The survey gathered information on the demographic characteristics, residence history, health and functional status, use of services, use of prescription medications, and health care expenditures of nursing home residents. Treatments for specific diagnoses: surgery, radiation treatment, medicines

Medical Provider Component. The primary purpose of the Medical Provider Component is to collect detailed charge and payment data from hospitals, physicians, home health care providers, and pharmacies to supplement information received from Household Component respondents on their health care expenses.

Area Health Resources Files. Historic data for more than 6,000 variables for each of the nation's counties-It contains information on health facilities, health professions, measures of resource scarcity, health status, economic activity, health training programs, and socioeconomic and environmental characteristics

Confidential and non-public use variables

Fully Specified ICD-9 Codes:

These codes allow medical conditions to be identified with greater specificity.

Fully Specified Industry and Occupation Codes:

These codes allow a worker's industry and occupation to be identified with greater specificity.

State and County FIPS Codes:

These codes can be used to merge data from the Area Resource File, or any data at the State and/or County level, onto the MEPS data.

Census Tract and Block-Group Codes:

These codes can be used to merge data from any data at the tract or block-group level

Non-Public Use Data Elements:

These are data elements from our questionnaires that are not directly identifiable data, i.e., asset information and imputed NDC codes.

Federal and State Marginal Tax Rates:

Tax simulations using the National Bureau of Economic Research's TAXSIM package- 1996-2017 HC full-year populations. Tax amounts and marginal tax rates have been computed for Federal, State and FICA taxes.

https://meps.ahrq.gov/mepsweb/data_stats/onsite_datacenter.jsp?#

Slide21

Example Health Research

Noon, James M., Leticia E. Fernandez, and Sonya R. Porter, “

Response Error and the Medicaid Undercount in the Current Population Survey

,” Health Services Research, 2019, 54:34–43

2006‐2010 Medicaid Statistical Information System (MSIS)

Sandler, Danielle, and Nichole Szembrot, “Maternal Labor Dynamics: Participation, Earnings, and Employer Changes,” Center for Economic Studies Working Paper 19-33, 2019. longitudinal administrative earnings data from the Longitudinal Employer-Household Dynamics database combined with the Survey of Income and Program Participation survey data

Germack, H. D., Drake, C., Donohue, J. M., Golberstein, E., & Busch, S. H. (2020). National Trends in Outpatient Mental Health Service Use Among Adults Between 2008 and 2015. Psychiatric Services, 71(11), 1127-1135.

Medical Expenditure Panel Survey Fletcher, Jason M., “Examining the Long-term Mortality Effects of Early Health Shocks,” Applied Economics Letters, 2019, 26:902–908.

National Longitudinal Mortality Study in the United States to explore the mortality effects of the 1918 influenza pandemic for those in utero

Slide22

Proposal Review Process

Proposal –Administrator will assist

Identify a need for restricted data

Identify public health benefit

Assess disclosure risk

Determine software needs

Disclosure Review and project approval

RDC analyst/ Data representative/NCHS Confidentiality officer/ RDC Director

Reviews it for disclosure (not scientific merit)

The review process tends to be back-and-forth where we work together to determine exactly what you need to answer the question without compromising confidentiality

Can take 4-9 months **

Special Sworn Status - which requires an in depth background check and can take 2-3 months to complete. ($1800)

Slide23

See materials at the FLRDC website.

How Do I Get Started?

https://www.ctsi.ufl.edu/research/laboratory-services/florida-rdc/

Slide24

Annual

Research Reports