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Toolkit #1: What is Rare Action Network? Toolkit #1: What is Rare Action Network?

Toolkit #1: What is Rare Action Network? - PowerPoint Presentation

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Uploaded On 2017-11-12

Toolkit #1: What is Rare Action Network? - PPT Presentation

30Year History Since 1983 NORD has ensured that the rare disease patient voice has been at the table when important federal policy and regulatory decisions are made NORD recognized the need to build a network of rare disease advocates across the US to unite and mobilize patients ID: 604993

policy rare ran disease rare policy disease ran nord state advocates stakeholders rareaction federal action legislative community network develop

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