March 27, 2019 How Family Organizations can Help Shape - PowerPoint Presentation

1. March 27, 2019 How Family Organizations can Help Shape and Implement the Title V Block Grant

2. Learning ObjectivesOpportunities for F2Fs/FV SAOs to contribute to the Title V Needs Assessment & Block Grant DevelopmentAt all levels of family engagementAcross all five MCH population health domains

3. PresentersBeth DworetzkyAssociate Director for ProgramsFamily Voices Nanfi LubogoCo-Executive Director PATH Parent-to-Parent/Family Voices of CTDeepa SrinivasavaradanCDC's Act Early Ambassador to NJSouthern Regional Coordinator -NJ F2F HIC @ SPANDiana Autin Executive Co-Director SPAN Parent Advocacy Network (SPAN)Mercedes RosaProject DirectorSPAN Parent Advocacy Network (SPAN)

4. Why is it important to demonstrate your value add to the block grant?The block grant:Is Title V’s strategic planSets forth how it will spend its federal & matching state/territorial fundsAddresses how the state/territory will fulfill its public health responsibilities/functions for women, infants, children, adolescents, and CYSHCNIs required to reflect the input & priorities of stakeholders including diverse families & family organizationsIs an entrée into your state’s Title V activities

5. Where can you demonstrate it?

6. Title V MCH Block GrantParticularly exciting time to be involved with your Title V programs Don’t wait for an invitation Crash the party, but like a good guest, bring a “host/hostess” gift

7. Block Grant Guiding PrinciplesThree key principles that all Title V programs must address in their Block Grant ApplicationsDelivery of Title V services within a public health service modelData-driven programming and performance accountabilityPartnerships with individuals/families/family-led organizations (hereafter referred to as family partnership)Citation: TITLE V MATERNAL AND CHILD HEALTH SERVICES BLOCK GRANT TO STATES PROGRAM page 2

8. Title V Programs should…Assure families and individuals are key partners in health care decision-making at all levels in the system of services, especially those who are vulnerable and medically underservedEnsure the provision of training, both in orientation and ongoing professional development, for staff, family leaders, volunteers, contractors and subcontractors in the area of cultural and linguistic competenceCollaborate with community leaders/groups and families of every background in needs/assets assessments, program planning, service delivery and valuation/monitoring/quality improvement activitiesCitation: TITLE V MATERNAL AND CHILD HEALTH SERVICES BLOCK GRANT TO STATES PROGRAM pages 8 & 9

9. Title V Family PartnershipsAdvisory CommitteesStrategic and Program PlanningQuality ImprovementWorkforce Development and TrainingBlock Grant Development and ReviewMaterials DevelopmentProgram Outreach and AwarenessCitation: TITLE V MATERNAL AND CHILD HEALTH SERVICES BLOCK GRANT TO STATES PROGRAM page 31

10. NPM – No Partnership Measure? Cross-cutting State Priority Measures (SPMs) or State Outcome Measures (SOMs)AL: Percent of CYSHCN and their families who report that they share in decision-making and partnerships with their health care providersWI: Percent of State Action Plan Strategies that engage family members, youth, and/or community membersVA: Cross-cutting (Family Engagement): Implement and develop report on survey of families served by the VDH Care Connection for Children (CCC) programsSource: Title V Information Systems (TVIS)

11. MCH Essential ServicesProvide Access to CareInvestigate Health ProblemsInform and Educate the PublicEngage Community PartnersPromote/Implement Evidence- Based PracticesAssess and Monitor MCH Health SystemMaintain the public health workforceDevelop Public Health Policies and plansEnforce Public Health LawsEnsure Quality ImprovementDirect ServicesEnabling Services PHS system

12. National Performance MeasuresNPM 1: Well-woman care (Women, Maternal)NPM 2: Low risk cesarean deliveries (Women, Maternal)NPM 3: Risk Appropriate Prenatal care (Perinatal, Infant)NPM 4: Breastfeeding (Perinatal, Infant)NPM 5: Safe sleep (Perinatal, Infant)NPM 6: Developmental screening (at appropriate times using appropriate tools) (Children)NPM 7: Injury Hospitalization (Child, Adolescent)NPM 8: Physical Activity (Child, Adolescent)NPM 9: Bullying (Adolescent NPM 10: Adolescent well-visit (Adolescent)NPM 11: Access to a medical home to coordinated all needed healthcare services (Children, children with special healthcare needs)NPM 12: Transition to adult systems of care (Children with special healthcare needs, children)NPM 13: Preventive Dental Visit (children)NPM 14: Household smoking (Cross-cutting/life course)NPM 15: Adequate insurance coverage (Cross-cutting/life course)

13. 13Demonstrating your value add: What do you already bring to the table?What does your family organization already know, do, have access to, understand, and impact that is important to your Title V agency(ies)? Consider:DataOutreachServices (Individual assistance/navigation; training)Information disseminationLeadership development & engagementPartnerships

14. DataQuantitative Data:Data in your contact management system (database)Who are you reaching?Demographic data?What issues/barriers are they facing?Qualitative Data:Information from focus groups, surveys, vignettes, etc.What concerns are they raising?What is working well?What are their priorities?What recommendations do they have for improvement?

15. To familiesDemographics of families you are reachingRelationships with your outreach partnersTargeted outreach strategies & tools for different populationsTypes and roles of professionals you are reachingRelationships with professional associations, etc.Targeted outreach strategies & tools for different professionalsTo professionalsOutreach

16. ServicesTo familiesWhat types of individual assistance are you providing & what are the process & substantive outcomes?What types of training are you doing & what are process & substantive outcomes?How many are you serving?What more could you do with additional funds to meet needs?To professionalsWhat types of professionals are contacting you for information & assistance? What are the process & substantive outcomes?What types of professionals are attending your trainings? What are the outcomes?How many are your serving?What more could you do with additional funds to meet needs?

17. Information DisseminationWhat resources, tools, guides, manuals, fact sheets, tip sheets, etc. do you have, in what languages? Which are the most popular?Who are you reaching with dissemination? Families, youth, professionals from which fields?How many are you reaching in each audience? What languages? What formats (web, hard copy, etc.)What resources, tools, etc. could you develop with additional funds?

18. Leadership & PartnershipsLeadershipWhat leadership development are you providing? Using what leadership development tools?Who are you reaching/training? Families/youth/professionals? Demographic data? Geography?How are you supporting their leadership engagement? What are barriers? Solutions?What could you do with more resources?PartnershipsWhat partnerships do you have? Coalitions, consortia, collaborative funded projects, legislators, other state agencies, individual groupsWhat have those partnerships achieved?How could you bring those partnerships to bear on MCH work to enhance its reach, replicability, sustainability

19. Strategies to Demonstrate Value AddDevelop & share:1 page summary of your MCH-related activities across domains, by strategy (individual assistance, family & professional development, resources, etc.)Summary of how your activities align with Title V priorities (NPMs, NOMs, State Measures)Develop & share:Overview of Title V block grant (federal & in your state), how your activities fit in with Title V block grant priorities nationally & in your statePowerpoint presentation on how your organization intersects with Title V

20. Strategies to Demonstrate Value AddFocus of sharingAs part of planning for & doing needs assessmentIn conversations about prioritizing topics/areasIn developing evidence-based/ informed strategiesIn consideration of CQI & evaluation approachesCore public health functionsWhen/where/how?At block grant hearingIn written comments on draft block grantWith the Governor, legislators, policymakersWith families, professionals, other stakeholdersWith all your staff, family leaders, partnersAt/during block grant review

21. Roles of Youth & Family Leaders in the Block Grant processParticipate in and provide feedback on annual review of needs, priorities, activities, & outcomes, as well as to plan and conduct the 5-year Needs AssessmentProvide testimony at Block Grant Hearings, so their comments and suggestions may be included to ensure that the draft application reflects the perspectives and needs of youth and families in their stateAttend the review of their state’s Block Grant Application as an opportunity to offer additional comments in support of the applicationServe as Reviewers for Block Grant Applications of states in other MCH regions

22. SPAN & NJ Department of Health Partnerships Across MCH Domains, Levels & Core Public Health Functions:Family Leadership Development & Engagement Across Domains

23. SPAN & NJ Title V: Partnerships & Parent Leadership & Engagement Respect + Relationships + Reliability + Resources + Recognition

24. Improving Pregnancy OutcomesCommunity health workers (5 years)Family leadership developmentSupport for community initiatives by trained leadersCommunity Doula pilotInfant Mortality CoIINMCH Core Planning Team to Reduce Low-Risk Cesarean BirthsMulti-lingual Zika videosParents as Champions for School Health Parent leadership training & supportResources for parents & school teams to work on health-related projectsCapacity building for school teamsParent Leadership in Early ChildhoodPreparing & supporting parent leaders on County Councils for Young ChildrenPreparing & supporting parent leaders in ECCS & Help Me GrowLearn the Signs. Act Early Ambassador supporting parent leaders to share resourcesMaternal/Child/Adolescent

25. Family WRAP (Wisdom, Resources, Advocacy & Parent to Parent Support)Family Resource Specialists at county Special Child Health Case Management UnitsFamily VoicesNJ Statewide Parent to ParentSPAN Resource Parents – comprehensive training for volunteersBiannual Parent Leadership conferenceState implementation grantsTraining for underserved families to participate in Community of Care Consortium, on medical home teams at FQHCs, etc.Partners for Prevention of Birth Defects & Developmental DisabilitiesStakeholder meetingsAnnual Women’s Health ForumAnnual Cultural Competence ConferenceFASD Prevention training & support EHDI Parent Leadership & SupportChildren with Special Healthcare Needs

26. Core Public Health Functions

27. Monitor health status to identify community health problemsImproving Pregnancy Outcomes Project: Community Health Workers identified women of child-bearing age & connected them to resources, facilitated completion of Community Health Screens to identify community-level service gapsDiagnose & investigate health problems & health hazards in the communityFocus groups with immigrants and women of color to help identify root causes of health problems &/or community health hazardsEvaluate effectiveness, accessibility, and quality of personal and population-based health servicesReview data from family-led organizations’ contacts with diverse families to identify effectiveness, accessibility, & perceived qualitySurvey the need to enhance existing activities and outreach strategies Help conduct evaluation and oversight activities, maintain accountabilityAssessment: Knowing what needs to be done

28. Link people to personal health services & provide when necessaryCommunity Doula pilotFamily Resource Specialists at county Case Management UnitsFamily Voices advocacyServe as ambassadors, cultural brokers building bridges into the communityAssure a competent public health & personal healthcare workforceProvide professional development using family/youth leaders:Medical Home Learning CollaborativesShared Plans of Care, transition, family-professional partnerships, via D70 fundingFamily-Led screening training on implications of & strategies for effective screening for immigrant/LEP families & families of colorAssurance: Making sure it happens

29. Inform, educate & empower people about health issuesParent leadership development on:Comprehensive leadership training (SPAN Resource Parent training series)Medical Home Parent Partner trainingTitle V block grantCore outcomes for CYSHCNAddressing maternal & child health issues in underserved communitiesServing on GroupsParent training on health issuesHealthcare advocacy across the life spanPartnering with ProfessionalsTransition to Adult Systems of CareMobilize community partnershipsAnnual Statewide Cultural Competence conference co-planned & co-facilitated by family organization; webinars on related topics for professionals & family leadersCommunity of Care Consortium for CYSHCNPartners for Prevention of Birth Defects & Developmental DisabilitiesAssurance: Making sure it happens

30. Develop policies & plans that support individual & community health effortsCommunity of Care Consortium for CYSHCN: Workgroups tied to six core outcomes, co-led by parent leader & professional, review current status, make recommendations for improvements including needed policies & plans, review draft policies & plans to provide inputEnforce laws & regulations that protect health & ensure safetyFamily-led organization shares systemic issues regarding violations of laws & regulations via Family Resource Specialists housed at county Special Child Health Services Case Management UnitsResearch for new insights & innovative solutions to health problemsFocus groups with diverse women at risk of FASD to identify effective communication strategies for primary care providers to useFocus groups with diverse women who were low risk for cesarean to identify the experiences and impact of cesarean on low-risk womenPolicy Development: Being part of the solution

31. ConclusionWant to influence public health for CSHCN in your state? Be an embedded, integral part of the block grantWant to be a key component of the block grant in your state? Be proactive in demonstrating your “value-add”Want to demonstrate your “value-add” to your state? Identify where you intersect with block grant componentsDevelop tools & resources that show where you intersectShare them widely

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33. Family Voices, Inc. Phone (888) 835-5669 www.familyvoices.org http://familyvoices.org/ncfpp