PPT-Overview of the NIH Genomic Data Sharing (GDS

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Policy Other Sharing Policies and Open QampA NIH Grants Conference February 2 2023 Nonye Harvey DrPH MPH Health Science Policy Analyst NIH Office of Extramural

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Overview of the NIH Genomic Data Sharing (GDS: Transcript

Policy Other Sharing Policies and Open QampA NIH Grants Conference February 2 2023 Nonye Harvey DrPH MPH Health Science Policy Analyst NIH Office of Extramural Research OER. bioinfo.mbb.yale.edu. . Genomic Privacy:. Intertwined Social & Technical Aspects . Mark . Gerstein, Yale. Slides freely downloadable from . Lectures.GersteinLab.org. & “. tweetable. ”. (via @. Northeast Big Data Innovation Hub. Carsten. . BinniG. (Brown). , Jane Greenberg (Drexel), . Tim . kraska. (Brown), Sam Madden (. Mit. ). Why Is Data Sharing Important!. Different Reasons. Combining . Jack K. . Okamuro. National Program Leader for Plant Biology, . Crop . Productoin. & Protection, USDA-ARS. ARS Administrator’s Council Meeting. December 5, 2012. Beltsville, MD. Challenge. Food Security & Sustainability. exposomic. findings to realize the precision medical care in Tohoku Medical Megabank. 0. Division of . Bioclinical. . Imformatics. Tohoku Medical Megabank Organization, . Tohoku University. Hiroshi Tanaka, . r are you planning to publish your results in a journal that is a member of the ICMJEr are you planning regulated study of a drug or device that falls under the FDAAA146s FinalRuleregardingtrial regis HOW A FIELD BUILT ON DATA SHARING BECAME A TOWER OF BABELThe immediate and open exchange of information was key to the success of the Human Genome Project 20 years ago Now the field is struggling to k ForewordOne secret weapon has helped beat every disease outbreak over the last century but it is not masks or social distancing lockdowns or even vaccines Instead it is data Data tells us which masks Dina Paltoo, Ph.D., M.P.H.. NIH Office of Science Policy. Laura Lyman Rodriguez, Ph.D.. National Human Genome Research Institute. October 4, 2017. Housekeeping. Participants must register to join the webinar. November 4, 2021. Data & Resource Sharing:. Firming Foundations. For Future Frontiers. Julia Slutsman. , PhD. Director, Genomic Data Sharing Implementation. julia.slutsman@nih.gov. J.P. Kim. , JD, MBA, MSc, MPP, MA. ETH Zürich. October 1, 2015. Mathias Humbert . Joint . work. with Erman Ayday, Jean-Pierre Hubaux, . Kévin Huguenin, Joachim Hugonot, Amalio Telenti. (. Human. ) System Security. 0. 1. 0. 0. 1. 1. Confluenceinternationalresearchproject-a consortiumconsortiathataimsto build a largecollaborativeplatformforgermlinegeneticstudiesbreastcancer GoalsConduct a large, multi Breast Cancer Cases Controls Data Sharing Policy Benefits of Data Sharing • Enables data generated from one study to be used to explore a wide range of additional research questions • Increases statistical power and scient Andrew Creamer, UMass Medical School. Donna Kafel, . UMass Medical School. Elaine Martin, UMass Medical School. Regina Raboin, UMass Medical School. CC BY-NC. Learner Objectives. Recognize . Presentation for the North American Association of Central Cancer Registries (NAACCR) . Secondary Data Sharing Task Force. Charlisse Caga-anan JD MA. Program Director, Epidemiology and Genomics Research Program (EGRP).

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