PPT-NIH Data Sharing and DbGaP

Presentation for the North American Association of Central Cancer Registries NAACCR Secondary Data Sharing Task Force Charlisse Cagaanan JD MA Program Director Epidemiology and Genomics Research Program EGRP. Good Practice. Maureen H Falconer. Sr. Policy Officer. Information Commissioner’s Office. Data Sharing and the Law - . DPA. Consent. Contract. Legal obligation. Vital interests. Administration of justice. Northeast Big Data Innovation Hub. Carsten. . BinniG. (Brown). , Jane Greenberg (Drexel), . Tim . kraska. (Brown), Sam Madden (. Mit. ). Why Is Data Sharing Important!. Different Reasons. Combining . 2015 NIH Regional Seminar on Program Funding and Grants Administration . May 2015. Presented By:. Ann M. Hammersla, J.D., Director & Policy Officer. Division of Extramural Inventions & Technology Resources (DEITR),. Chairs: Lee Anne . Caylor. (Business) & Chelsea . Orvella. (Labor) Staff: Dave . Pavelchek. (. dpavelchek@wtb.wa.gov. ) . DELIVERABLES. STATUS. OF WORK. MOMENTUM. TAP. Lead the creation of an implementation plan for Next Generation Performance Accountability initiatives outlined in . June 2014. Inventions, Data Sharing, and other Intellectual Property Considerations. (Making the most from your research). Presented By:. J.P. Kim, J.D., M.B.A., M.P.P., M.Sc., M.A.L.S.. (Email: . jpkim@nih.gov. Shannon Pritting, SUNY Libraries Consortium. So, what’s happening now in Resource Sharing. ILLiad. is going away in at most 2-3 years.. Development is, in essence, stopped for . ILLiad. .. OCLC is developing . HOW A FIELD BUILT ON DATA SHARING BECAME A TOWER OF BABELThe immediate and open exchange of information was key to the success of the Human Genome Project 20 years ago Now the field is struggling to k 2. On September 30, 2021, President Biden signed the Extending Government Funding and Delivering Emergency Assistance Act (Public Law 117-43). . NIH remains funded under a Continuing Resolution (CR) through December 3. Dina Paltoo, Ph.D., M.P.H.. NIH Office of Science Policy. Laura Lyman Rodriguez, Ph.D.. National Human Genome Research Institute. October 4, 2017. Housekeeping. Participants must register to join the webinar. November 4, 2021. Data & Resource Sharing:. Firming Foundations. For Future Frontiers. Julia Slutsman. , PhD. Director, Genomic Data Sharing Implementation. julia.slutsman@nih.gov. J.P. Kim. , JD, MBA, MSc, MPP, MA. Data Sharing Policy Benefits of Data Sharing • Enables data generated from one study to be used to explore a wide range of additional research questions • Increases statistical power and scient ) Policy,. Other Sharing Policies. ,. . and Open Q&A. NIH Grants Conference. ​. February 2, 2023. Nonye Harvey, . DrPH, MPH. Health Science Policy Analyst. NIH Office of Extramural Research (OER). An Introduction. Sara Gonzales, MLIS. Data Librarian. Galter Health Sciences Library & Learning Center. Topics we will cover:. What are best practices for research data management?. What are the benefits of data sharing?. Dryad Data Repository. Phil Hurvitz. Jenny Muilenburg. CSDE Workshop. 2023-05-24. 1 of 45. NIH Data Management Plans. Phil Hurvitz. Research Scientist. Center for Studies in Demography and Ecology. University of Washington.