Assist Prof Tit Albreht MD PhD Scientific CoOrdinator of three JAs and of the forthcoming Joint Action CRANE Email titalbrehtnijzsi European Cancer Patient Coalition 1 Standardising cancer care and cancer data ID: 1040933
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1. Patient mobility and cancer – role of Joint ActionsAssist. Prof. Tit Albreht, MD, PhDScientific Co-Ordinator of three JAs and of the forthcomingJoint Action CRANEE-mail: tit.albreht@nijz.si European Cancer Patient Coalition1
2. Standardising cancer care and cancer dataEuropean Cancer Patient Coalition2Several activities undertaken to standardise cancer care:Quality assurance of cancer screening programmesEuropean Guide for Quality National Cancer Control ProgrammesDisinvestment in cancer careDefinition of survivorshipDefinition and concept of Comprehensive Cancer Control Networks (CCCNs)Sets of standards for cancer carePatient pathways for two cancersSocio-economic inequalities in cancerPublic health genomics and cancer
3. Transnational approaches and structuresEuropean Cancer Patient Coalition3Development of European Reference NetworksPrimarily intended for rare and paediatric cancers, they do represent an authentic transnational approach to the treatment and management of cancerThey have the potential for:TreatmentGuideline developmentEducationTraining Europe does not have a physical European cancer institute but many proxies
4. Opportunities for cross-border collaborations and treatmentEuropean Cancer Patient Coalition4There are a number of possibilities for cross-border mobility of patients and professionals:Extending ERNs to frequent cancersNetworking of CCCs and of networks already covering certain cancersDevelopment of new transnational regional cancer networksCentres of reference
5. Europe’s Beating Cancer Plan (EBCP)and its role in patient mobilityEuropean Cancer Patient Coalition5One of the important flagships is in the establishment of the EU Network of Comprehensive Cancer Centres (CCCs)Preparations for this Network will be done by a special Joint ActionJA CRANE is in the final stages of preparation, it is expected to start in October 2022Special role of patient representation is reserved for ECPCCoordination by NIJZ as in the previous 3 JAs on cancer control
6. European Cancer Patient Coalition6Final messages and reflections for the futurePatients in Europe have the right to better care and better overall cancer controlWe need to aim at better cancer care and cancer management close to where patients live, this is their right and needCross-border mobility is extremely important for the following reasons:Convergence of quality of cancer care in EuropeStreamlining and implementing guidelinesEnhancing collaboration, education and training of health professionalsEspecially smaller EU MSs would strongly benefit from enhanced transnational collaboration
7. European Cancer Patient Coalition7Quote on patient mobilityCancer patients need to obtain timely, high quality comprehensive cancer care, provided by the competent structure in their own country and/or beyond, based on their needs and the respective treatment required.