December 17 2014 1 Our Core Team Members 2 Person Centered Thinking Drives Systems Change What is Important to What People Like and Admire about Supports Needs To Stay Happy Healthy amp Safe ID: 712412
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DC Supporting Families of People with I/DD Throughout the Lifespan Community of Practice
December 17, 2014
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Our Core Team Members
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Person Centered Thinking Drives Systems Change
What is Important to
What People Like and Admire about
Supports
Needs To Stay Happy, Healthy & Safe
For a good match: characteristics needed to be present or absent
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Photo
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Levels of Change
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What do people like and admire about me?
Takes good care of his mom
Taking good care of his home for 16 years
Advocate for EVERYONE
Outspoken and stands up for what is right
Not afraid to call 311 and report something in the community that is not how it should be
Great bowler
Not afraid to be who he is
“He makes me feel more comfortable in my own skin.” – Thomas’s staff
What is important to me?
Having control over my life and the way I want to live
Being involved in my community
Taking care of my mom
Being an advocate for people who need help
Staying informed about current events like political issues and issues that affect people with disabilities
To be treated with respect
Nice smelling bath products (coconut, cucumber melon, etc.)
Going to movies and theater shows
Being around people I like
Characteristics of people who best support me:
People who are nice, respectful, don’t make judgments and don’t think of me as charity work
Someone who can make healthy food taste good, “I’ve got taste buds for a reason!”
Someone willing to be on the go
People who don’t need me to agree with everything they say and who is not going to boss me around.
People who are okay with not being in control, because I am in control
Supports I need to be the best I can be:
When my health and mobility issues flares up I need help cleaning myself, cooking, walking and maybe getting to the hospital
Reading my mail
Navigating to all my meetingsPreparing for meetings, I prefer pre-meetings right before the meeting – I need to know what people want me to talk about and what current events are going on so I stay informedFinding affordable social activities like theater and movies
Thomas’s Profile
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What is Important to
TRINITY
I love music. I like to play the drums, piano, and tambourine.
Sing songs with me and clap/dance to the rhythm of the beat.
I am relaxed when I can feel my soft clothes and cross my legs.
When I am tired, remove my shoes and braces so I can rub my feet.
I like to play on the swings
and slide at the park.
My favorite food-grits and eggs;
twizzlers
What People Like and Admire about TRINITY
Beautiful Smile and Spirit
Incredibly Loving and Loveable
Giver of great squeeze hugs
Acts like little lady
Rhythmic Ability
Social Butterfly
Comedian-Enjoys laughing
Dancing Machine
Supports TRINITY Needs To Stay Happy, Healthy & Safe
Obtain eye contact with me before giving instructions…try singing my name
I can hear you best on my left side.
Give me time to process your instructions.
Use one word instructions, “Trinity….Come, Sit, Walk, Hands Down”
Watch my facial expressions and gestures to understand what I am communicating.
Allow me to visibly examine new things before accepting.
I can feed myself and I get feeds through a gastronomy tube.
Make sure my food is cut up into small pieces (no tough meat).
I need assistance balancing my cup when I am drinking.
Although I drink with a straw, help me control my cup so I do not choke.
Help me walk up and down stairs.
Use my wheelchair when I am tired and/or we take long walks.
Keep your eyes on me because I am a determined explorer.
Supports, Etc.
If you see me flap my arms, eyes roll back in head and my body straightens (seizure), lay me on my left side and call 911.
I need to get 8-10 hours of rest at night. If not, I may need cat nap in the day.
After I eat, I need to sit up for at least 15 minutes.
I LOVE MY FAMILY!!!!
Mommy-RhondaDaddy-RobertBrothers-Tristan and Tyler“Sissy”-Tiffani
TRINITY GABRIELLE
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Level 3 Changes Needed to Support Families of People with I/DD in D.C.
Family-to-family peer supportCoordinated services across the lifespan
Supports for self-determination
High quality, person and family centered supports for people with I/DD
Comprehensive supports for people with DD8Slide9
Work in Progress on Level 3 Changes to Support People with I/DD & Families
Individual and Family Support waiverNo Wrong Door planning grant
Draft
Citizens with Intellectual Disabilities Civil Rights Restoration Act
Supported Decision-MakingFamily Support CouncilAnd more to do. . . .Coordinating agency for children with disabilitiesServices for adults with developmental disabilities
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Agenda for Today
Working/ Not WorkingNational Perspective, Mary Lee Faye, NASDDDSLocal Perspective, Laura
Nuss
, DDS
UpdatesAdvocacy DC Parent to ParentPCTMembership ExpansionMeet AJE
Thankful and hopeful10