Why You Do Not Want to Get Pneumonia - PowerPoint Presentation

1. Why You Do Not Want to Get Pneumonia Published as: Patient-reported Consequences of Community-Acquired Pneumonia (CAP) in Patients with Chronic Obstructive Pulmonary Disease (COPD) in the Journal of the COPD Foundation. Pneumonia is always a serious condition but in those with COPD pneumonia results in hospitalization, longer lasting symptoms and more time off work or away from usual activities. Symptoms can last weeks, and people often require help from family or friends. WHAT WAS THE PURPOSE OF THE STUDY?Pneumonia is 6 to 8 times more common among people with COPD than those without lung disease, yet little has been studied about ways that pneumonia affects the lives, and daily activities of those with pneumonia and COPD. If we better understand pneumonia and COPD, we can better guide measure to prevent pneumonia such as influenza (flu) and pneumococcal shots and staying away from people with acute respiratory infections.HOW WAS THE STUDY WAS DONE?We used information that was already collected in the COPD Foundation’s Patient Powered ResearchNetwork (PPRN) from people with COPD. People With COPD go online and become a member of thePPRN by signing the consent form and answering questions about themselves, their COPD, and other illnesses or conditions they have.They also report how well they can do their usual social and physical activities like being with family or going to places. We used these answers to help us understand these people’s lives before pneumonia. To find a group of people with COPD and recent pneumonia, we asked those in the PPRN if they had pneumonia n the past 4 weeks. Those saying yes were asked to be in this study. For those wanting to be in this pneumonia and COPD study, we asked them about their pneumonia—what symptoms did they have and did the miss work, school or any usual activities because of the pneumonia. The 491 people who were part of the study answered questions again in 30 days about whether symptoms were gone and if they had returned to work, and usual activities. We used only these patient reported answers for this study. No medications or medical advice were given during this study. WHAT DID THE STUDY FIND?People in the study had an average age of about 55 years and many were still working. About 9 out of 10 (96%) or more, had cough and shortness of breath About 7 out of 10 (72%) had fatigue, trouble sleeping, and headaches Several symptoms like fatigue, shortness of breath and cough lasted more than a month with headaches and fever going away in 2 weeks or less. If they worked, they missed about 4 weeks of work and those not working could not do their usual activities for about 5 weeks. More than 8 of 10 needed help from family, friends or care givers for a week or longer. When people have pneumonia, those with COPD compared to those without COPD, have more symptoms which lasted longer, miss about twice as much work and more of them need help from family and friends.WHAT DOES IT MEAN FOR YOU?If you have COPD, you do not want to get pneumonia. Two ways to help prevent pneumonia are:get your yearly influenza or flu shot get both types of the pneumococcal immunizations often call pneumonia shots. Flu shots are recommended for everyone every year,.The pneumococcal or pneumonia shorts are usually given to people who are older or have health problems like COPD or diabetes. Ask your doctor, nurse or pharmacist when you should get each of the two kinds of pneumonia shots. Avoid cigarette or tobacco smoke, remember to wash your hands often and stay away from people when they have colds, bronchitis or other acute respiratory infections. WHAT DOES IT MEAN FOR THE FUTURE?We need to know more about the pneumococcalor pneumonia shots for people with COPD at all ages.This can help us and the CDC make better recommendations for you and your doctor, nurse and pharmacist to follow and for insurance companies to pay. WHAT ARE THE NEXT STEPS?Always get your yearly flu shot and talk to your doctor or nurse or pharmacist about when to get the pneumococcal or pneumonia shots.HOW SHOULD I FIND OUT MORE?Ask you’re your doctor, nurse or pharmacist about the shots. Having a clear and simple question to ask will help—ask your organization to write one.2. Scientific Publication. Read the study in the journal. If you need a subscription, ask a local library to get it for you. The summary can usually be read without cost. The CAP Study publication is free to access at http://bit.ly/COPDPneumoniaStudy. 3. Ask your doctor or nurse about the study and what it means for you. The research team may have a YouTube video or webinar about their research—look for it4. Look for information on COPD sites like the COPD Foundation at www.copdfoundation.org. 1. Title: Do not simply use the title of your study. The title should reflect the question the study is answering in lay terms and provide a snapshot of why the patient/caregiver would be interested in reading more about this study. List the lay title and then in parenthesis consider listing “published as” and include the title of your publication.2. Short summary or introduction:Use 2 of 3 sentences to provide a summary.3. Why did you do this study or Purpose of the research work:Clearly articulate the purpose of the study in lay terms. Include information on how common the problem studied is, a definition of condition that was being explored, highlight what was missing from previously available information and the gaps that your study sought to address?4. How was the study done? Explain the population your study included (e.g. patients in specialty practices, patients in the hospital, patients in primary care, urban or rural, patients with other chronic conditions etc), the type of study it was (i.e. observational-patients were observed without any interventions, randomized controlled trial-patients were assigned to an intervention or not based on a flip of a coin, etc.), the intervention you studied. Limitations- only mention study design issues that significantly impact results. E.g. Were there any problems in accessing the population of interest that impacted conclusions? Were there any large differences between groups? Did many people drop out?5. What Did the Study Find?Explain your key results in lay terms, did you find what you expected to, consider including a graphic to display results. What was the main lesson learned and how do you know this?  Consider using bulleted points or headings to separate out key points which should reflect the main takeaways from the study. 6. What Does it Mean for You?Explain which patients the results apply to and make clear that if not in this population the results may not apply to you, should patients expect any immediate changes in their treatment, what patients should expect to happen as a result of the study results, how should patients decide if the study results are applicable to them?7. What Does it Mean for the Future?Explain limitations of the study, implications for the future, research that needs to be done to confirm results or possible policy implications of the study results.8. What Are the Next Steps?Things that we, as researchers, will do or would like to do for the COPD community as a result of this? 9. How Should I Find Out More5674321