PDF-(READ)-Genetic Secrets: Protecting Privacy and Confidentiality in the Genetic Era

The explosion of information brought about by recent advances in genetic research brings welcome scientific knowledge Yet this new knowledge also raises complex and troubling issues concerning privacy and confidentiality. Leslie P. Francis, Ph.D., J.D.. Distinguished Professor of Law and Philosophy. Alfred C. Emery Professor of Law. University of Utah. Co-Chair, NCVHS, Privacy, Confidentiality & Security . Subcte. Dr. Juliet Taylor. Clinical geneticist. Genetic Health Service New Zealand (Northern Hub). Pre-conceptual reproductive carrier screening . We are all estimated to be carriers for at least three clinically severe childhood recessive disorders. Learning Revealed. . Pedro Domingos. . University of Washington. Where Does Knowledge Come From?. Evolution. Experience. Culture. Where Does Knowledge Come From?. Evolution. Experience. Culture. Computers. Ideas in . Gattaca. Vocabulary. Look out for new vocabulary in this presentation that will be useful to use in your essays – it will be . coloured. . red. What is . Eugenics. ?. The . study of or belief in . Risks and Benefits of Knowing Your Genetic Makeup. Julie Hopp. Genetic Screening: Who Should Be Tested. CDC’s 2004 Science Ambassador Program. Overview. Genetics Review. Types of Genetic Disorders. You can compare dogs of every breed imaginable! . There is an enormous range of characteristics that are the result of . genetic variation. . . The differences among breeds of dogs are so great that someone might think that many of these breeds are different species. . You can compare dogs of every breed imaginable! . There is an enormous range of characteristics that are the result of . genetic variation. . . The differences among breeds of dogs are so great that someone might think that many of these breeds are different species. . The change in allele frequencies in populations due to . chance. (not selection). . Can include the loss of alleles from the gene pool.. Genetic drift. The change in allele frequencies in populations due to . Polydactyly. Down Syndrome. Hemophelia. Progeria. Hypertrichosis. Sickle Cell Anaemia. INTRODUCTION. What is genetic diseases/disorders?. The human body is composed up of cells , each one specializing a particular function like sensing light, smelling . What is the difference between . the mice in these two groups?. What is genetic engineering?. Genetic engineering is the . direct modification of an organism’s genome. , which is the list of specific traits (genes) stored in the DNA. . Audrey R. Chapman, Ph.D.. October 22, 2014. achapman@uchc.edu. Protecting the privacy and confidentiality of research participants is a foundational ethical obligation and a legal requirement. Large-scale genomic databases and . Benjamin Neale, PhD. Boulder Workshop. Content warning: eugenicists. Sick individuals and sick populations Rose 1985. Mendelian. Genetics. Co-dominance. East 1915: Inheritance of Corolla Length in . Darius Singpurwalla. Overview. Introduction. About me. Contribution to this discussion. Definitions. History of Confidentiality. Various Types of Disclosure Avoidance Techniques. Resources. CDAC Website. ?. G. enetic . engineering. , the artificial manipulation, modification, and recombination of DNA or other nucleic acid molecules in order to modify an organism or population of organisms. . This . may mean changing one base .