Implications for Palliative and End of Life Care Dr Juliet Spiller Consultant in Palliative Medicine Marie Curie Hospice Edinburgh Julietspillermariecurieorguk Realistic Medicine is clearly not all about Palliative Care ID: 695445
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Realising Realistic MedicineImplications for Palliative and End of Life Care
Dr Juliet
Spiller Consultant in Palliative MedicineMarie Curie Hospice EdinburghJuliet.spiller@mariecurie.org.ukSlide2
Realistic Medicine is clearly not all about Palliative CareBut Palliative Care is, and always has been, about Realistic Medicine
Values, shared decisions, person-centred, individualised approach, focus
on what matters to you, benefit/burden balanceThose who choose to specialise in Palliative Care have this at the core of all they do.Slide3
Palliative Care is everybody’s job – “no time”, “no knowledge”, “something extra/different from my job”
Realistic Medicine is everybody’s job – makes more sense particularly caring for people with long term and life-limiting conditions – “yes that’s my job”Realistic Medicine - opportunity for SPC to
explicitly support:- “mainstreaming” of a palliative care approach- Creative ways to engage with experts (patients, carers and volunteers)(eg “Building the Best”, “ Hospice without Walls” etc)Slide4
Realising Realistic Medicine - PEoLCRESEARCH –
what works, patient experience, carer experience, sharing good practiceANTICIPATORY CARE PLANNINGNational ACP, ReSPECT, KIS etc
EDUCATIONPatients, carers, clinical staff, volunteers, social carers, care home staff etc
IDENTIFICATION
of
palliative
need
- SPICT, SPARRA
etc
EQUITY
Postcode, diagnosis, culture
etc
HEALTH LITERACY
–
shared understanding (trust
, empowerment,
enabling decisions)Slide5Slide6
“This case was never really about the decision-making process, that didn’t really come up at all. It was - why didn’t they talk to my mum . Why didn’t they explain to her what was possible? Why didn
’t she get the chance, when she so desperately wanted it, to talk about what was going to happen?”
Kate Masters
– daughter of Janet Tracey – explaining why her dad pursued the case against Cambridge University Hosp TrustSlide7
‘You can make incremental change, you can improve, byasking everyone to do two jobs, to deliver performance,using current measures, and to improve, and you cando the improvement in 5-10% of your job, and delivery
in the rest. But if you’re asking people to do new jobdescriptions, new teams, new ways of communicatingit’s too much to ask for people to do in 10% of theirtime; and no-one can do it alone.’
Dr Albert Mulley, Director for Global Healthcare Delivery ScienceStep change not marginal changeSlide8
Realistic Research