PPT-SCALING UP ROLE OF MEDICAL IHS IN HEMOPHILIA MANAGEMENT :

More Than Factor Replacement Prescription IDG Ugrasena Hematologyoncology division Child Health Departement of Dr Soetomo Hospital Faculty of Medicine Airlangga University Gen D. December 4, 2015. Developed through a. collaboration between:. Moderator. 2. Maria Elisa Mancuso, MD, PhD. Haematologist, . Angelo Bianchi Bonomi Hemophilia and Thrombosis Center. Fondazione IRCCS Ca' Granda Ospedale Maggiore Policlinico. (. H. aemophilia). By: Morgan Dirienzo. The Royal Disease. Alternate Names and Symptoms. Some alternate names for Hemophilia would be Haemorrhaphilia, or Von Willebrand disease. . The Symptoms for Hemophilia are…. Recognition and Management of Patients with Hemophilia/von . Willebrand. Disease and Platelet Disorders. Rebecca Schaffer, DDS. Assistant Professor, Special Needs Care Unit. Associate Administrative Director, AEGD. Recognition and Management of Patients with Hemophilia/von . Willebrand. Disease and Platelet Disorders. Rebecca Schaffer, DDS. Assistant Professor, Special Needs Care Unit. Associate Administrative Director, AEGD. Introduction/Overview. Introduction/Overview (cont). Importance of Prophylaxis, and Limitations on Its Application, in Hemophilia B. Key Unmet Need in Hemophilia B:. Reducing Patient Burden of Disease. Sex-linked inheritance; almost all patients male. Female carriers may have mild symptoms. Most bleeding into joints, muscles; mucosal and CNS bleeding uncommon. Severity inversely proportional to factor level. A new ambition of the World Federation of Hemophilia. WFH Guidelines for the Management of Hemophilia. All recommendations are consensus based.. Srivastava A et al. Haemophilia. 2020;26(Suppl 6):1–158. . . One maternal uncle of the child died due to prolonged bleeding following a minor surgery.. . O/E, No petechiae/purpura.. Lt Knee joint swollen, tender. Hemophilia and Coagulation Disorders. . Libby H. . Malphrus. , MS, CGC. Certified Genetic Counselor. Children’s . Hospital/ Savannah Perinatology @. Memorial University Medical Center. Clinical Genetics Instructor (Mercer University School of Medicine). WVNHF. Amber Tichnell, Executive Director. Hemophilia and other bleeding disorders. The human body is made up of several clotting factors – Factors 1 through 13 plus Von . Willebrand. Factor. A person can have deficiencies in any of these factors. Andrew J. . Costandi. , MD, MMM . Children’s Hospital Los Angeles. USC Keck School of Medicine. Faculty Disclosures. None. Learning Objectives. Upon completion of this activity, participants will be able to:. 12. /. 11. /. 2019. #EPFCongress19. Why patient involvement. Hemophilia . as . unmet . medical . need. . (50s). Medical . progress . in. . hemophilia. The . same . progress. . in. From ‘unmet . medical needs’ . Samuel Merrill MD PhD, Benign Hematology. 10/15/21. Medical Director, WVU Hospitals HTC. Director, Benign Hematology Clinic. Disclosures. No relevant financial disclosures. 10/15/2021. 2. Samuel Merrill, MD PhD. Alfonso Iorio, MD PhD. McMaster University, Canada. Alfonso Iorio. MD, PhD, FRCPC. Professor of Medicine. McMaster University. Disclosures. McMaster University has received research, consultancy and educational funding for Population PK projects from Bayer, .