PPT-SCALING UP ROLE OF MEDICAL IHS IN HEMOPHILIA MANAGEMENT :

More Than Factor Replacement Prescription IDG Ugrasena Hematologyoncology division Child Health Departement of Dr Soetomo Hospital Faculty of Medicine Airlangga University Gen D. Hemophilia. X-linked . recessive disorder . characterized by the inability . to properly . form blood clots. .. Until recently, hemophilia was untreatable, and only a few hemophiliacs survived to reproductive age because any small cut or internal hemorrhaging after even a minor bruise were fatal.. Nairobi, Kenya. June 24, 2013. Objectives. Identify historical approaches used to treat hemophilia. Describe treatment products currently available for use in hemophilia. Distinguish classes of factor concentrates. Hosted Test Drive Offering. March 2013. Understand Their Business Challenge. Operational Efficiency. Reduce Production Costs. Knowledge Capture/Reuse. PLM, OS, Email, etc.. Competitive Intelligence. Existing & New Challengers, Accelerating Obsolescence. (. H. aemophilia). By: Morgan Dirienzo. The Royal Disease. Alternate Names and Symptoms. Some alternate names for Hemophilia would be Haemorrhaphilia, or Von Willebrand disease. . The Symptoms for Hemophilia are…. By: Nam-Y7. Hemophilia was first recognized by the Jews, but not officially named even in the ancient times. . In the 2. nd. century AD, the Talmud, a Jewish collection of Rabbinical writings said that the boys did not have to be circumcised if two brothers died of the disease. In 1800s, it became known as the Royal Disease because many people of royal families died or got the disease. Queen Victoria got Hemophilia but she survived. Alexei, the heir apparent to the Russian royal family, suffered from Hemophilia. In 1950s, the first treatment to hemophilia appeared. It was in a type called “fresh frozen plasma”. Nowadays, we are marching towards a cure but there are two treatments. One is called “gene therapy” and the other is called “Recombinant therapy”. A treatment for hemophilia is replacing old blood clots with new ones.. . Jim Roberts, Policy Analyst . NPAIHB Quarterly Board Meeting. October 24, 2015 . Acknowledgement: I want to thank . Lael. Echo-Hawk, Attorney, Garvey Schubert Barer, for providing slides used in this presentation.. June. , . 2013. Roger L. Lundblad, Ph.D.. Consultant in Biotechnology. Chapel Hill, North Carolina. http://www.lundbladbiotech.com. And Adjunct Professor, Department of Pathology,. University of North Carolina, Chapel Hill, North Carolina. . Peterson, Owen Comer, Quaevon Anderson, and Grace Hodges. Basic Information . Grace. . Hemophilia A. Classic hemophilia. Factor VIII deficiency. Hemophilia B. Christmas disease. Factor IX deficiency. WVNHF. Amber Tichnell, Executive Director. Hemophilia and other bleeding disorders. The human body is made up of several clotting factors – Factors 1 through 13 plus Von . Willebrand. Factor. A person can have deficiencies in any of these factors. Hemophilia A. Also known as Factor VIII Deficiency is the most common type of hemophilia. It is a disorder of your blood-clotting system. Clotting is the process which your blood changes from a liquid to a solid state. Veena Choubey, Rena Malik, and Luis Carlos Zapata Genetics Hemophilia is an X-linked recessive disorder that exists in two forms, hemophilia A and hemophilia B. Hemophilia A is characterized specif . Chelsea Marion, MD. 1,4. , Oluwaseun Odewole, MD, MPH. 2,4. , Sheila Goel, MD. 3,4. . 1. Dept. of Pediatrics, Morehouse School of Medicine, Atlanta, GA. . 2. Dept. of Family Medicine, Morehouse School of Medicine, Atlanta, GA. . for the. Tribal Healthy Homes Program. Presented by:. Jeremy Blankenship, MPA. Bemidji Area Indian Health Service. Healthy Homes Coordinator. Jeremy.Blankenship@ihs.gov. Jeremy.Blankenship@ihs.gov. 1. Lizheng Shi, PhD, . MsPharm. Regents Professor and Interim Chair. Department of Health policy and Management. School of Public Health and Tropical Medicine. Funded by BioMarin Pharmaceutical, which provided input into study design..