Your trusted connection to patient communities - PDF document

1 Your trusted connection to patient commu
Your trusted connection to patient communities. behavioral intent survey Role of Patient Influencers:How do patients truly share information? xecutive ummary ehavioral intent study: key findings Your trusted connection to patient communities. Online communities are extremely important when it comes to the sharing of health information:of study participants say that on

2 line communities play a role in their he
line communities play a role in their health decisionsFacebookis the top platform for the sharing of health information:of study participants say they share health information via Facebook postsof study participants say they share health information via Facebook message Your trusted connection to patient communities. executive summaryehavioral intent study: key findin

3 gs Tweet this statof respondents share t
gs Tweet this statof respondents share through privatemeans (ex: memberonly groups, private phone calls, emailsof respondents share through publicmeans (ex: Facebook posts, Tweets, blog posts) executive summaryehavioral intent study: key findings Much of the sharing by patients in online communities is behind a privacy wall Your trusted connection to patient communiti

4 es. nline urveyehavioral intent study: m
es. nline urveyehavioral intent study: methodology, participant overview, survey goals Your trusted connection to patient communities. MethodologyConducted online survey of online community membersPatient leaders recruitedparticipants from online communitiesnline surveyAdvancedMelanoma Parenting & Family HealthMultiple SclerosisBipolar DepressionCOPD EpilepsyRheumato

5 id Arthritis Your trusted connection to
id Arthritis Your trusted connection to patient communities. Participant Overview nline survey Advanced MelanomaRheumatoid ArthritisEpilepsyCOPDBipolar DepressionMultiple SclerosisParentingConducted online survey of online community membersPatient leaders recruitedparticipants from online communities Your trusted connection to patient communities. Survey Goals How inf

6 luentialare online communities when it c
luentialare online communities when it comes to impacting health decisionsIn what ways do patients shareinformationnline survey Your trusted connection to patient communities. urvey esultsehavioral intent study: participantresponses Your trusted connection to patient communities. ehavioral intent study: participant responses Your trusted connection to patient communit

7 ies. urvey results91% of participants sa
ies. urvey results91% of participants said that online communities play a role in their health decisions.Online communities Facebook, Twitter, blogs, discussion groups or other social media sites of respondents that answered “extremely importantthrough “somewhat important” when asked:How importantis the role that online communities play in your health d

8 ecisions? ehavioral intent studypartici
ecisions? ehavioral intent studyparticipant responses 70%75%80%85%90%95%100%ParentingMultipleSclerosisBipolarDepressionCOPDEpilepsyRheumatoidArthritisAdvancedMelanoma urvey results Your trusted connection to patient communities. urvey results How is information begin shared ehavioral intent studyinformation sharing ? Your trusted connection to patient communities. ur

9 vey results ehavioral intent studyinform
vey results ehavioral intent studyinformation sharing 10%20%30%40%50%60%70%80%PublicPrivateComparison of: publictrackable privatenot trackablesharing by patientsMore patients share information with other online community membersrivatelythan through visible public channels: Tweet this stat Your trusted connection to patient communities. urvey results ehavioral intent s

10 tudytop 8 channels for health community
tudytop 8 channels for health community information sharing Twitter tweetsBlog postsOther social (Instagram, Pinterest, etc)EmailOnline discussion groups/forumsOffline communication (phone, text, inperson, etc)Facebook messagesFacebook posts PrivatePublic Your trusted connection to patient communities. urvey results ehavioral intent studytop 8 channels for health comm

11 unity information sharing by condition P
unity information sharing by condition PrivatePublic 0%10%20%30%40%50%60%70%80%90%TweetsBlog postsOther social channels (Pinterest, Instagram photos,etc.)E-mailsOnline discussion groups or forumsOffline communication (telephone calls, texts, in-person, etc.)Facebook messagesFacebook postsParenting Your trusted connection to patient communities. urvey results ehavioral

12 intent studytop 8 channels for health c
intent studytop 8 channels for health community information sharing by condition PrivatePublic 0%10%20%30%40%50%60%70%80%90%TweetsBlog postsOther social channels (Pinterest, Instagram photos,etc.)E-mailsOnline discussion groups or forumsOffline communication (telephone calls, texts, in-person, etc.)Facebook messagesFacebook postsMultiple Sclerosis Your trusted connec

13 tion to patient communities. urvey resul
tion to patient communities. urvey results ehavioral intent studytop 8 channels for health community information sharing by condition PrivatePublic 0%10%20%30%40%50%60%70%80%90%TweetsBlog postsOther social channels (Pinterest, Instagram photos,etc.)E-mailsOnline discussion groups or forumsOffline communication (telephone calls, texts, in-person, etc.)Facebook messages

14 Facebook postsBipolar Disorder Your trus
Facebook postsBipolar Disorder Your trusted connection to patient communities. urvey results ehavioral intent studytop 8 channels for health community information sharing by condition PrivatePublic 0%20%40%60%80%100%120%TweetsBlog postsOther social channels (Pinterest, Instagram photos,etc.)E-mailsOnline discussion groups or forumsOffline communication (telephone call

15 s, texts, in-person, etc.)Facebook messa
s, texts, in-person, etc.)Facebook messagesFacebook postsCOPD Your trusted connection to patient communities. urvey results ehavioral intent studytop 8 channels for health community information sharing by condition PrivatePublic 0%10%20%30%40%50%60%70%80%90%TweetsBlog postsOther social channels (Pinterest, Instagram photos,etc.)E-mailsOnline discussion groups or forum

16 sOffline communication (telephone calls,
sOffline communication (telephone calls, texts, in-person, etc.)Facebook messagesFacebook postsEpilepsy Your trusted connection to patient communities. urvey results ehavioral intent studytop 8 channels for health community information sharing by condition PrivatePublic 0%10%20%30%40%50%60%70%80%90%100%TweetsBlog postsOther social channels (Pinterest, Instagram photos

17 ,etc.)E-mailsOnline discussion groups or
,etc.)E-mailsOnline discussion groups or forumsOffline communication (telephone calls, texts, in-person, etc.)Facebook messagesFacebook postsRheumatoid Arthritis Your trusted connection to patient communities. urvey results ehavioral intent studytop 8 channels for health community information sharing by condition PrivatePublic 0%10%20%30%40%50%60%70%80%90%100%TweetsBl

18 og postsOther social channels (Pinterest
og postsOther social channels (Pinterest, Instagram photos,etc.)E-mailsOnline discussion groups or forumsOffline communication (telephone calls, texts, in-person, etc.)Facebook messagesFacebook postsAdvanced Melanoma Your trusted connection to patient communities. ey akeawaysehavioral intent study Your trusted connection to patient communities. ehavioral intent study

19 takeawaysOnline communities play an impe
takeawaysOnline communities play an imperative role in patient health decisions.A substantial amount of sharing is not trackable.More patients share health information with other community members privately(Facebook messenger, email, etc.) thanpublicly(open Facebook groups or TwitterFacebook, both posts and messenger, is a key platform for the sharing of health inform

20 ation. Your trusted connection to patie
ation. Your trusted connection to patient communities. WEGO Health Solutions WEGO Health has been a trusted partner to patient leaders and their communities since 2007. We've developed a range solutionsto meet business needs and support ourpatient influencermembers.Your trusted connectionto patient communities. atient influencersconditions ehavioral intent study Your

21 trusted connection to patient communiti
trusted connection to patient communities. For more information, contact: ehavioral intent studyLaurel NetolickyDirector of Business DevelopmentWEGO Healthlaureln@wegohealth.comlaurelneto ehavioral intent study: additional info Your trusted connection to patient communities. Your trusted connection to patient communities. behavioral intent survey urvey results ehavio

22 ral intent studyinformation sharing 10%2
ral intent studyinformation sharing 10%20%30%40%50%60%70%80%PublicPrivateComparison of: public-trackable aring by patientsMore patients share information with other online community membersprivatelythan through visible public channels: Tweet this stat Your trusted connection to patient communities. urvey results ehavioral intent studyinformation sharing 10%20%30%40%5

23 0%60%70%80%PublicPrivateComparison of: p
0%60%70%80%PublicPrivateComparison of: public-trackable sharing by patientsMore patients share information with other online community membersprivatelythan through visible public channels: Tweet this stat Your trusted connection to patient communities. ehavioral intent study: participant responses Your trusted connection to patient communities. urvey results91% of pa

24 rticipants said that onlinecommunities p
rticipants said that onlinecommunities play a role in their health decisions.Online communities Facebook, Twitter, blogs, discussion groups or other social media sites Participant Overview nline survey Advanced MelanomaRheumatoid ArthritisEpilepsyCOPDBipolar DepressionMultiple SclerosisParentingConducted online survey of onlinecommunity membersPatient leaders recruite

25 dparticipantsfrom online communities You
dparticipantsfrom online communities Your trusted connection to patient communities. MethodologyConducted online rvey of onlinecommunity membersPatient leaders recruitedparticipantsfrom online communitiesnline surveyAdvancedMelanoma Parenting & Family HealthMultiple SclerosisBipolar DepressionCOPD EpilepsyRheumatoid Arthritis Your trusted connection to patient communi

26 ties. Tweet this stat respondents share
ties. Tweet this stat respondents share through privatemeans(ex: member-only groups, private phone calls, emailsof respondents share through publicmeans(ex: Facebook posts, Tweets, blog posts) executive summaryehavioral intent study: key findings Much of the sharing by patients in online communities is behind a privacy wall Your trusted connection to patient communiti