PPT-Ethics of data sharing and biobanking in health research

13 14 November 2018 Stellenbosch wwwgfbrglobal The GFBR Funded by Bill amp Melinda Gates Foundation UK Medical Research Council US National Institutes of Health and Wellcome Seeks to bring voices and perspectives of low and middleincome countries LMIC to the fore in discussions on emerging ethical issues in research. Ingrid Guch. NOAA Environmental Data Management Committee. Purpose. Provide information about the new data sharing policy to grantees, NOAA Federal Program Officers, NOAA Competition Managers and other interested parties. in Scotland. Pamela Linksted. Use of Human Tissue . and Data. Scientists . and doctors have been . collecting and studying tissue and information about health and lifestyle for . many years. . Readily available supply is invaluable in . October 1, . 2016. Executive summary. ~162,000 . stored samples . have been identified. . ~. 28,000 . are stored in Liberia, . ~58,000 . in Guinea. , . ~33,000 in Sierra Leone . and . ~42,000 . stored outside . Shannon Pritting, SUNY Libraries Consortium. So, what’s happening now in Resource Sharing. ILLiad. is going away in at most 2-3 years.. Development is, in essence, stopped for . ILLiad. .. OCLC is developing . Issues in Research Ethics. Coercion. $$$, extra credit, social pressures. Privacy. Deception. Physiology of cheating. Discomfort or Harm. Right to . Service. Experimental group gets beneficial treatment, control group does not.. and disasters: . research, surveillance and patient care. Core competence 5. Ability to explain how publication ethics are related to public health surveillance or research in . emergencies. . Corresponding learning objectives. Dr Sunil S Vernekar . MD, . Dipl. Epidemiology. Associate Professor, . Dept. of Physiology, . Senior Research Officer, Women’s & Children’s Health Research Unit,. KAHER’s J N Medical College, . and Animal Research: An Overview . Dr.M.K.Sudarshan, MD (BHU), FAMS, Hon.FFPH (UK). Chairman . Ethics committees of Fortis Hospitals and Public Health Foundation of India , Bangalore . Member . RGUHS committee on advanced and collaborative research. WHO Training Manual . Ethics in . epidemics. , emergencies and . disasters. : Research, surveillance and patient care. Outline. Introduction – standard procedures for ethics review. Small group discussion – deviations from standard research review. WHO Training Manual . Ethics in . epidemics. , emergencies and . disasters. : Research, surveillance and patient care. Outline. Introduction - benefit sharing and its evolution. Individual reflection and discussion. An Introduction. Sara Gonzales, MLIS. Data Librarian. Galter Health Sciences Library & Learning Center. Topics we will cover:. What are best practices for research data management?. What are the benefits of data sharing?. in the Era of Precision Medicine. JSCO 50. th. Annual Meeting. Yokohama, Japan. October 27, 2012. Mark E. Sobel MD, PhD. Executive Officer. American Society for Investigative Pathology. mesobel@asip.org. Theories and approaches to Ethics. Ethics and Culture/Religion. Arguing Ethics. Threats to ethics and ethical problems in knowledge. Under the influence of ethics—. ’wrong’ . ethics, ethics in history.. Simon Whitworth. Head of Data Ethics and Research Governance. The UK’s largest independent producer of official statistics and the recognised national statistical institute of the UK. . Responsible for collecting and publishing statistics related...