Traumatic Brain Injury TBI httpwwwyoutubecomwatchvcWopMDXQ TBI TBI affects 186000 people per year Headway 2009 TBI can affect all areas of life TBI can affect learning ability attention memory language voice fluency speech ID: 718173
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Slide1
TBI & Degenerative ConditionsSlide2
Traumatic Brain Injury (TBI)
http://www.youtube.com/watch?v=c-W_o-pMDXQSlide3
TBI
TBI affects 186,000 people per year (Headway 2009)
TBI can affect all areas of life
TBI can affect: learning ability, attention, memory, language, voice, fluency, speech
and swallowing
Cognitive-communication disorders: cognitive difficulties and their effect on language processing, language use and communication behaviour (RCSLT, 2006)
TBI can greatly impact on an individuals social communication and therefore
e
ffect relationshipsSlide4
‘Don’t cut me out!’
Access
to vital support services is being reduced due to funding
cuts
“…making it harder for brain injury survivors to access the help and support they
need...lead independent lives ”.
Communications Manager at Headway
Early assessment in the acute setting to enable early identification of intervention for communication and swallowing needs Goal orientated rehabilitation by a coordinated interdisciplinary teamWell planned and flexible discharge to community living to improve longer term outcome and self management (RCSLT, 2006)
SLT valueSlide5
The National Service Framework for long term neurological conditions.
(March, 2005)
To improve the treatment and long term support of people with neurological conditions by 2015.
11 quality standards - health and social care
3 qualities most relevant to individuals with TBI
(
Headway
)- person-centred service- community rehabilitation and support- supporting families and carersSlide6
Dementia
Approximately 800,000 people are diagnosed with the condition today
Prediction: - increase to 1 million by 2021
- 1.7 million by 2051
1 in 25 over 65
1 in 6 over 80
Only 43% receive diagnosis (Alzheimer’s Society 2014)Slide7
Dementia
http://www.telegraph.co.uk/health/10511920/A-cure-for-dementia-could-be-found-within-twelve-years-David-Cameron-has-said.html
Slide8
Dementia
80% of people living in care homes have a form of dementia (Alzheimer’s Society 2013)
Global action
– there is “no solution to the dementia crisis without research” (G8 summit)
Carers are vitally important (NICE) – funding is needed to adapt care homes, train carers and adapt wards to be facilitating communication (Defeating dementia campaign)Slide9
Communication is key
For individuals to maintain a quality of life – communication is important
The RCSLT Dementia Campaign:
Early intervention to monitor changes over time
Help relatives and carers communicate with individuals with dementia more successfully and for longer
Funding
will allow training days to be set up to train individuals in communication strategies
Feeding assessments – allow them to keep their independence concerning eating and drinkingSlide10
Parkinson’s Disease
1 in 500 people suffer with
Parkinson’s disease127,000 currently have P
arkinson’s in the UK
Stem cell research – working towards a cure – new funding March 2014 (Britain and Israel)
Palliative care needed at all phases of the condition (Parkinson’s UK 2013)
90% of individuals with diagnosed Parkinson’s experience dissatisfaction with how they communicate (Miller, et al, 2010
)Slide11
Parkinson’s Disease
Lee Silverman Voice Therapy has been shown to be effective in improving communication in individuals with the condition
The majority of individuals with Parkinson’s found SLT had a positive effect, helping breathing, speech rate, loudness and confidence, as well as strategies to help swallowing (Miller, et al, 2010
)Slide12
Motor Neurone Disease
Majority of people aged 50-70 years
Incidence – 2 people in every 100, 000
Prevalence – 7 people in every 100,000
(MNDA 2014)
Incidence of motor neurone disease is increasing as people live longer and more accurate diagnosis
No cure – manage symptoms to improve quality of lifeSlide13
Motor neurone disease
Standards of care developed by MND association – work together to maintain these standards
MND Year of Care Pathway to help the NHS and Social Services improve the provision of services for people with
MND
SLT input – dysphagia and dysarthria – important for individuals to still be able to communicate with friends and family
(Resource manual for commissioning and planning services for SLCN– dysarthria, RCSLT 2009)Slide14
Multiple Sclerosis (MS)
20-50 years old
Incidence: 4
per 100,000
(MS Society 2006, cited in RCSLT 2006)
Prevalence: 144
per 100,000 (MS Society 2006, cited in RCSLT 2006 ) Slide15
MS
Challenges as an organisation and SLT clinician
variable condition
:
R
elapse/ remission
Slow progressive increase in symptoms.Prognosis unpredictableSLT role in rehabilitation (NSF)Slide16
A case for speech and language therapy and MS
‘Key
element of successful home
care’ (
The
National Service Framework for Long-term Conditions, 2005. Department of
Health)Recommendations (NICE Guidelines on MS):DysphagiaCommunication: Dysarthria AAC Advice and training for circle of support LOCAL IMPLEMENTATION POINTS:which speech and language therapist should see people with dysarthriawho may assess for and recommend augmentative equipment and adaptive technology tocommunicationfunding arrangements for augmentative aids to communication (AACs).Slide17
We need your funding!!Slide18
Useful links
https://
www.headway.org.uk/home.aspx
https://
www.headway.org.uk/news/dont-cut-me-out.aspx
https://
www.gov.uk/government/publications/quality-standards-for-supporting-people-with-long-term-conditions
http://www.alzheimers.org.uk/http://www.rcslt.org/governments/docs/dementiacampaign_bulletinmay2013http://www.mssociety.org.uk/sites/default/files/Documents/Governance%20docs/Misc%20resources/Annual%20report%20and%20accounts%202006.pdfhttp://www.rcslt.org/docs/free-pub/TBI_reading_list_Feb_07__2_.pdf http://www.nice.org.uk/ Slide19
R
eferences
Miller, N., Noble, E., Jones, D., Deane, K. H. O., Gibb, C. (2010). Survey of speech and language therapy provision for people with Parkinson’s disease in the United Kingdom: patients’ and carers’ perspectives.
International Journal of Language and Communication Disorders,
Online 23 June
2010
Motor neurone disease association (2014).
Brief guide to MND. Retrieved March 17th, from http://www.mndassociation.org/what-is-mnd/Brief+guide+to+MND.htm Parkinson’s UK (2013). NICE guidelines for Parkinson’s. Retrieved March, 12, 2014, from http://www.parkinsons.org.uk/content/nice-guideline-parkinsonsRCSLT (2006). Communicating quality 3. London: RCSLT.RCSLT (2009). RCSLT resource manual for commissioning and planning services for SLCN; dysarthria. Retrieved 14th March, 2014, from http://www.rcslt.org/speech_and_language_therapy/commissioning/dysarthria_plus_intro RCSLT (2009). RCSLT resource manual for commissioning and planning services for SLCN; TBI. http://www.rcslt.org/speech_and_language_therapy/commissioning/brain_injury_intro
http://
www.nice.org.uk/nicemedia/live/14355/66330/66330.pdf