Bernd Puschner 1 , Mike - PowerPoint Presentation

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Bernd

Puschner1, Mike Slade2, Candelaria Mahlke3, Kyemba David Basangwa4, Juliet Nakku4, Grace Ryan5, Donat Shamba6, Galia Moran7, Jasmin Kahla8Department of Psychiatry II, Ulm University, GermanyUniversity of Nottingham, UKHamburg University, GermanyButabika Hospital, Kampala, UgandaLondon School of Hygiene and Tropical Medicine, UKIfakara Health Institute, Dar es Salaam, TanzaniaUniversity of the Negev, Beer Sheva, IsraelCentre for Mental Health Law and Policy, Pune, India

Using Peer Support In Developing Empowering Mental Health Services (UPSIDES, MH23)

GACD Annual Scientific Meeting

12-16 November 2018, Sao Paolo, Brazil

Peer

support is an established intervention involving a person in recovery from mental illness being employed to offer support to others with mental illness. People with lived experience of mental illness (i.e. personal experience of mental ill-health and re­covery) represent valuable resources who can support their own recovery and the recovery of others through positive self-disclosure, promoting hope, empowerment, self-efficacy, and expanding social networks. Peers are an untapped resource in global mental health.Background

To replicate and

scale-up peer support interventions for people with severe mental illness, generating evidence of sustainable best practice in high-, middle- and low-resource settings. Major aim

To establish an

international community of practice for peer support including peer support workers, mental health researchers, and other relevant stakeholders in high-, middle- and low-resource settings.To conduct a situational analysis of existing peer support initiatives in the participating countries.To scale up peer support models with a focus on vulnerable populations where pilot initiatives already exist.To contextualize and adapt peer support models for those sites where there are no peer support initiatives.To rigorously evaluate inputs, processes and outcomes of implementation, including health economic evaluation and as­sessment of process and contextual factors using mixed-methods.To distil from case studies evidence of best practice for dissemination to local, national and in­ternational stakeholders in order to maximise sustainability and spread.

Objectives

UPSIDES partners’ expertise and contributions to the project

Work Packages

to realise objectives

Timing

of Work Packages

Current

statusProject started 1 January 2018.Research tasks in the early work packages (current stage assessment and intervention development) started and progressed. First steps taken to prepare the ground for the later work packages (translation, evaluation).

Milestones

Kick-off meeting held in March 2018 in Kampala / Uganda.Project website online (www.upsides.org).Ethics votes obtained at all study sites.Local Advisory Boards constituted across study sites.First focus groups held.Second study meeting and train-the-trainer workshop scheduled.

Kick-off meeting, Kampala, Uganda, 15-16 March 2018

Challenges

To harmonize research and implementation tasks across study sites and at the same time to adequately take into account cultural differences.To actively involve and empower service users in order to generate system changes towards patient-centeredness, recovery orientation, and community participation.To maximize performance of mental health services using the expertise of people with a personal experience of mental illness.

Engagement with policy makers/

programme implementersLocal Advisory Boards established and first meetings held across sites.International Advisory Board members participated at the first study meeting and actively support the project.

UPSIDES has received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement No 779263. This publication reflects only the authors’ view. The Commission is not responsible for any use that may be made of the information it contains.

AcknowledgementsAnnabel Müller-Stierlin, Ramona Hiltensperger, Eva Paul, Silvia Krumm, Reinhold Kilian, Claudia Schneck, Felicitas Söhner, Thomas Becker

Ulm University,

GermanyMike Slade, Julie Repper, Dean Thompson

University of Nottingham, UK

Candelaria Mahlke, Rebecca Nixdorf

University Hospital Hamburg-Eppendorf,

GermanyDavid

Basangwa, Juliet Nakku, Richard Mpango, Susan Karuhanga

Butabika National Referral Hospital, Kampala, Uganda

Grace

Ryan,

Cerdic Hall, Dave Baillie

London School of Hygiene and Tropical Medicine, UK

Donat

Shamba

,

Emmy

Metta,

Fileuka

C.

Ngakongwa

,

Kassimu

Tani

,

Michelle

Remme, Mary

Ramseh

Ifakara Health Institute, Dar es

Salaam,

Tanzania

Galia Moran, Max Lachmann, Paula Garber

Epstein,

Ben-Gurion University of the Negev, Beer Sheva, Israel

Jasmine

Kahla

, Soumitra Pathare

Centre for Mental Health Law and

Policy, Pune,

India