Slides for Module 2 Topic Consumer Roles 1 Consumer Roles in PCPB Activities amp Decision Making Legislative Requirements Central Roles of PLWH and Consumers in Planning Benefits of Consumer Involvement ID: 782249
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Slide1
Roles and Responsibilities of RWHAP Part A Planning Councils/Bodies (PC/PBs) and Recipients
Slides for Module 2Topic: Consumer Roles
1
Slide2Consumer Roles in PC/PB Activities & Decision Making
Legislative RequirementsCentral Roles of PLWH and Consumers in PlanningBenefits of Consumer InvolvementMaximizing Consumer Participation Opportunities
2
Slide3Training Objectives
Following the training participants will be able to:
Explain
the legislative requirements for consumer participation in PC/PBs
Describe
at least 4 specific roles for consumers in PC/PB activities and decision making
Identify
at least 3 ways in which the PC/PB and its individual members can encourage and support consumer participation
Slide4Legislative Requirements
Among the groups that must be included in planning council membership: Representatives of
"affected communities, including people with HIV/AIDS…”
“Nonelected community leaders”
“Individuals who formerly were Federal, State, or local prisoners…and had HIV/AIDS”
when
released
“
Not less than 33 percent of the council shall be individuals who are receiving HIV-related services”
through
RWHAP Part
A
[§2602(b)(2)(G,H&M) and 2602(b)(5)(C)(i)]
Slide5Legislative Option for TGAs
The CEO of a TGA:“may elect not to comply with the provisions” for establishment of a planning council
“if the official provides documentation to the Secretary that details the process used to obtain community input (particularly from those with HIV) in the transitional area for formulating the overall plan for priority setting and allocating funds…”
[§2609(d)(1)(A)]
Slide6Legislative Requirements for “Unaligned” Consumers
Must be RWHAP Part A clients (receiving HIV-related services from a Part A-funded provider)
Must be unaligned/unaffiliated:
“not officers [Board members], employees, or consultants”
of RWHAP Part A-funded agencies
No prohibition on including individuals who volunteer for a Part A-funded provider – as long as they don’t receive stipends
[§2602(b)(5)(C)(1)]
Slide7Other Legislative Requirements for PLWH Input
Priority setting and resource allocation (PSRA) must be based on factors including “...priorities of the communities with HIV/AIDS for whom the services are intended”
PC must
“establish methods for obtaining input on community needs and priorities which may include public meetings...conducting focus groups, and convening ad-hoc panels”
[§2602(b)(4)(C) and (G)]
7
Slide8Consumer Involvement in PCs versus PBs
RWHAP Part A planning bodies that are not planning councils: Do not have the legislative requirement that 1/3 of members be consumers of Part A servicesAre expected to obtain input from consumers on community needs and priorities
Are encouraged by HRSA/HAB to have membership that is as much like planning councils as possible
Slide9Importance of Consumer Participation in RWHAP
“The adaptability of the Ryan White HIV/AIDS Program over nearly 20 years is tied to its ability to be responsive to emerging trends in the epidemic. This responsiveness would never have been possible without consumer involvement at nearly every level of program administration—something so vital that it is now mandated by law.”
—Positive
Voices: Living with HIV,
A Living History (HRSA website)
Slide10Roles for Consumers and Other PLWH
PC/PB member Member of a PLWH or consumer committee/caucusMember of a non-governance committee, such as Needs Assessment
Member of a
subrecipient’s
Consumer Advisory Board
Member of a short-term task force or work group
Member of the public attending PC/PB or committee meetings
Participant
in town hall or other public meetings
Needs assessment survey respondent or focus group participant
Clinical Quality Management (CQM) participant – responding to a consumer satisfaction survey or serving on a recipient’s CQM Committee
Slide11Benefits of Consumer InvolvementLinks the PC/PB and the community it serves
Helps ensure that services reflect client needsProvides a practical “user” perspective on service models, quality, and effectivenessReal-time feedback on new and emerging issues Helps in understanding the diverse service needs of various subpopulations
Other?
Slide12Maximizing Consumer Participation Opportunities
The PC/PB can encourage consumer participation through bylaws provisions such as:
A PLWH committee or caucus open to both PC/PB members and non-members
A requirement that all committees include consumer members
Quorum requirements that consumers be present at PC/PB and committee meetings
Procedures for non-PC/PB members to serve on
non-governance committees (like Needs Assessment)
Slide13Maximizing Consumer Participation Opportunities (cont. 1)
PC/PBs can encourage consumer involvement through planning processes that call for:
Consumer input through regular needs assessment surveys, focus groups, and special studies
Regular feedback and input sessions in varied locations within the service area
Use of social media to announce meetings and events and report on activities and decisions
Telephone or other electronic access to meetings
Structured public comment periods at all meetings
Regular communication with existing PLWH groups
Slide14Maximizing Consumer Participation Opportunities (cont.
2)
PC/PBs can also:
Actively publicize opportunities for participation
Identify and actively target specific PLWH subpopulations whose involvement is especially needed – with the help of PC/PB members from those communities
Provide leadership development opportunities for consumers
Other?
Slide15How Individual PC/PB Members Can Support Consumer Involvement
Serve as a liaison to a specific PLWH subpopulation or geographic communityPersonally encourage participation in PC/PB town hall meetings and needs assessment activities
Represent the PC/PB at community or PLWH events
Invite other consumers to attend a PLWH committee or caucus meeting
Serve as a mentor for a new PC/PB member
Speak positively in the community about the benefits of active participation
Other?
Slide16Sum-Up
Legislation requires participation of RWHAP Part A consumers and other PLWH in the work of the PC/PB1/3 of voting members of a PC must be unaligned consumers of Part A servicesPC/PB must obtain input from PLWH including consumers as part of its needs assessment
Many levels and types of participation open to consumers – all are important for sound planning and decision making
Slide17Optional Slides for Role Play Activity
Slide18Background for the role play:
PC/PB wants to increase consumer involvement at all levelsAn existing group of consumers at a large clinic has expressed interest in PC/PB involvement
PC/PB leaders including Membership and Consumer Access (PLWH) Committee members arrange a meeting at the clinic
Role Play on Consumer Roles
Slide19Three groups will prepare separately for their roles:
PC/PB leadership PC/PB members from Membership and Consumer Access (PLWH) CommitteesGroup of consumers interested in some level of involvement with the PC/PB
Groups have 20 minutes to prepare
Then representatives of each group will participate in the role play
Preparing for the Role Play
Slide20Choose someone to facilitate/coordinate your group in preparing for the role playDecide how many people will represent you at the meeting
Choose your representativesUse your Role Information Sheet to help your representatives prepare for the role play
If you are not one of the role play participants, be prepared to observe and share your observations
Instructions for Groups
Slide21How did the role play go – from the perspective of participants? Observers?What types and levels of involvement were discussed?
What issues or concerns were raised?What lessons from this role play might be useful in encouraging enhanced consumer involvement in the PC/PB’s work?
Post-Role Play Discussion