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Roles and Responsibilities of RWHAP Part A Planning Councils/Bodies (PC/PBs) and Recipients Roles and Responsibilities of RWHAP Part A Planning Councils/Bodies (PC/PBs) and Recipients

Roles and Responsibilities of RWHAP Part A Planning Councils/Bodies (PC/PBs) and Recipients - PowerPoint Presentation

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Roles and Responsibilities of RWHAP Part A Planning Councils/Bodies (PC/PBs) and Recipients - PPT Presentation

Slides for Module 2 Topic Consumer Roles 1 Consumer Roles in PCPB Activities amp Decision Making Legislative Requirements Central Roles of PLWH and Consumers in Planning Benefits of Consumer Involvement ID: 782249

consumers consumer participation plwh consumer consumers plwh participation members role part play involvement meetings hiv roles planning committee input

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Slide1

Roles and Responsibilities of RWHAP Part A Planning Councils/Bodies (PC/PBs) and Recipients

Slides for Module 2Topic: Consumer Roles

1

Slide2

Consumer Roles in PC/PB Activities & Decision Making

Legislative RequirementsCentral Roles of PLWH and Consumers in PlanningBenefits of Consumer InvolvementMaximizing Consumer Participation Opportunities

2

Slide3

Training Objectives

Following the training participants will be able to:

Explain

the legislative requirements for consumer participation in PC/PBs

Describe

at least 4 specific roles for consumers in PC/PB activities and decision making

Identify

at least 3 ways in which the PC/PB and its individual members can encourage and support consumer participation

Slide4

Legislative Requirements

Among the groups that must be included in planning council membership: Representatives of

"affected communities, including people with HIV/AIDS…”

“Nonelected community leaders”

“Individuals who formerly were Federal, State, or local prisoners…and had HIV/AIDS”

when

released

Not less than 33 percent of the council shall be individuals who are receiving HIV-related services”

through

RWHAP Part

A

[§2602(b)(2)(G,H&M) and 2602(b)(5)(C)(i)]

Slide5

Legislative Option for TGAs

The CEO of a TGA:“may elect not to comply with the provisions” for establishment of a planning council

“if the official provides documentation to the Secretary that details the process used to obtain community input (particularly from those with HIV) in the transitional area for formulating the overall plan for priority setting and allocating funds…”

[§2609(d)(1)(A)]

Slide6

Legislative Requirements for “Unaligned” Consumers

Must be RWHAP Part A clients (receiving HIV-related services from a Part A-funded provider)

Must be unaligned/unaffiliated:

“not officers [Board members], employees, or consultants”

of RWHAP Part A-funded agencies

No prohibition on including individuals who volunteer for a Part A-funded provider – as long as they don’t receive stipends

[§2602(b)(5)(C)(1)]

Slide7

Other Legislative Requirements for PLWH Input

Priority setting and resource allocation (PSRA) must be based on factors including “...priorities of the communities with HIV/AIDS for whom the services are intended”

PC must

“establish methods for obtaining input on community needs and priorities which may include public meetings...conducting focus groups, and convening ad-hoc panels”

[§2602(b)(4)(C) and (G)]

7

Slide8

Consumer Involvement in PCs versus PBs

RWHAP Part A planning bodies that are not planning councils: Do not have the legislative requirement that 1/3 of members be consumers of Part A servicesAre expected to obtain input from consumers on community needs and priorities

Are encouraged by HRSA/HAB to have membership that is as much like planning councils as possible

Slide9

Importance of Consumer Participation in RWHAP

“The adaptability of the Ryan White HIV/AIDS Program over nearly 20 years is tied to its ability to be responsive to emerging trends in the epidemic. This responsiveness would never have been possible without consumer involvement at nearly every level of program administration—something so vital that it is now mandated by law.”

—Positive

Voices: Living with HIV,

A Living History (HRSA website)

Slide10

Roles for Consumers and Other PLWH

PC/PB member Member of a PLWH or consumer committee/caucusMember of a non-governance committee, such as Needs Assessment

Member of a

subrecipient’s

Consumer Advisory Board

Member of a short-term task force or work group

Member of the public attending PC/PB or committee meetings

Participant

in town hall or other public meetings

Needs assessment survey respondent or focus group participant

Clinical Quality Management (CQM) participant – responding to a consumer satisfaction survey or serving on a recipient’s CQM Committee

Slide11

Benefits of Consumer InvolvementLinks the PC/PB and the community it serves

Helps ensure that services reflect client needsProvides a practical “user” perspective on service models, quality, and effectivenessReal-time feedback on new and emerging issues Helps in understanding the diverse service needs of various subpopulations

Other?

Slide12

Maximizing Consumer Participation Opportunities

The PC/PB can encourage consumer participation through bylaws provisions such as:

A PLWH committee or caucus open to both PC/PB members and non-members

A requirement that all committees include consumer members

Quorum requirements that consumers be present at PC/PB and committee meetings

Procedures for non-PC/PB members to serve on

non-governance committees (like Needs Assessment)

Slide13

Maximizing Consumer Participation Opportunities (cont. 1)

PC/PBs can encourage consumer involvement through planning processes that call for:

Consumer input through regular needs assessment surveys, focus groups, and special studies

Regular feedback and input sessions in varied locations within the service area

Use of social media to announce meetings and events and report on activities and decisions

Telephone or other electronic access to meetings

Structured public comment periods at all meetings

Regular communication with existing PLWH groups

Slide14

Maximizing Consumer Participation Opportunities (cont.

2)

PC/PBs can also:

Actively publicize opportunities for participation

Identify and actively target specific PLWH subpopulations whose involvement is especially needed – with the help of PC/PB members from those communities

Provide leadership development opportunities for consumers

Other?

Slide15

How Individual PC/PB Members Can Support Consumer Involvement

Serve as a liaison to a specific PLWH subpopulation or geographic communityPersonally encourage participation in PC/PB town hall meetings and needs assessment activities

Represent the PC/PB at community or PLWH events

Invite other consumers to attend a PLWH committee or caucus meeting

Serve as a mentor for a new PC/PB member

Speak positively in the community about the benefits of active participation

Other?

Slide16

Sum-Up

Legislation requires participation of RWHAP Part A consumers and other PLWH in the work of the PC/PB1/3 of voting members of a PC must be unaligned consumers of Part A servicesPC/PB must obtain input from PLWH including consumers as part of its needs assessment

Many levels and types of participation open to consumers – all are important for sound planning and decision making

Slide17

Optional Slides for Role Play Activity

Slide18

Background for the role play:

PC/PB wants to increase consumer involvement at all levelsAn existing group of consumers at a large clinic has expressed interest in PC/PB involvement

PC/PB leaders including Membership and Consumer Access (PLWH) Committee members arrange a meeting at the clinic 

Role Play on Consumer Roles

Slide19

Three groups will prepare separately for their roles:

PC/PB leadership PC/PB members from Membership and Consumer Access (PLWH) CommitteesGroup of consumers interested in some level of involvement with the PC/PB

Groups have 20 minutes to prepare

Then representatives of each group will participate in the role play

Preparing for the Role Play

Slide20

Choose someone to facilitate/coordinate your group in preparing for the role playDecide how many people will represent you at the meeting

Choose your representativesUse your Role Information Sheet to help your representatives prepare for the role play

If you are not one of the role play participants, be prepared to observe and share your observations

Instructions for Groups

Slide21

How did the role play go – from the perspective of participants? Observers?What types and levels of involvement were discussed?

What issues or concerns were raised?What lessons from this role play might be useful in encouraging enhanced consumer involvement in the PC/PB’s work?

Post-Role Play Discussion