PPT-Update on National Childhood Cancer Registry (NCCR)

Stephanie M Hill MPH CTR Associate Director NAACCR Objectives Discuss the justification for forming a national registry of childhood cancers Detail the NCCR infrastructure Provide an update on the current status of the NCCR. Introductions. NIST. Office of Data and Informatics (ODI) of the Material Measurement Laboratory. Robert Hanisch, director. Ray . Plante. , interoperability expert. ODI has responsibility for ~100 Standard Reference Data products and leads NIST efforts to improve data dissemination. Dr. Mohsen Lotfy Ahmed. Development Across the Life Span. Developmental Psychology. 33. Dr. Mohsen Lotfy Ahmed. Development Across the Life Span. Developmental Psychology. 34. Early Childhood. Early Childhood. Home Care Unit. Bureau of Health Facility Regulation . Agency for Health Care Administration . May 6, 2015. Nurse Registries. as of April 25, 2015. Area. Number of. Nurse Registries. Currently Licensed. Home Care Unit. Bureau of Health Facility Regulation . Agency for Health Care Administration . May 6, 2015. Nurse Registries. as of April 25, 2015. Area. Number of. Nurse Registries. Currently Licensed. Agenda. Overview and Intent of the CE Registry. Licensee Sign Up Process for the CE Registry. NAB CE Registry. In 2017, NAB launched a CE Registry system that is available nationwide to all licensees.. ALS Research Counts on You. Division of Toxicology and Human Health Sciences. Environmental Health Surveillance Branch. Paul Mehta, MD. Principal Investigator. National ALS Registry. www.cdc.gov/als. CANCER. CHAPTER . 10. ANZDATA Registry Annual Report 2013. Figure 10.1. ANZDATA Registry Annual Report 2013. Figure 10.2. Cumulative Incidence of all Cancers in Australia and . New Zealand (excluding non-melanocytic skin cancers). Cancer Center Data Summit February 8, 2021. NCCR Purpose. Leverage and link disparate data from multiple sources to create an infrastructure that can better support research on childhood cancer. Core data derived from cancer registries- but extended and expanded to include additional relevant information such as. Risk factors. Incidence. Survival. Mortality. Population Surveys. PBCRs. PBCRs. Vital statistics. By Cancer Type. By stage. Attributable Risk. Prevalence. DALYs. Associated Economic Costs. Cancer Control Measures. February 8, 2021. Stephanie M. Hill, MPH, CTR. Associate Director . North American Association of Central Cancer Registries. shill@naaccr.org. Overview. Introduction to NAACCR. NAACCR Data Exchange Standards. February 8, 2021. Stephanie M. Hill, MPH, CTR. Associate Director . North American Association of Central Cancer Registries. shill@naaccr.org. NCCR Working Groups. NCCR working groups serve in an advisory capacity to help NCI identify key activities, challenges and solutions related to the NCCR and to identify key areas on which the NCCR should focus. .  \r\f\n\r\f Summary Belgium. National . Coverage. . since. 2004, 11 . Mio. pop. Incidence. 2004-2011 . available. Flemish. . Region. (. northern. part) . since. . 1999 . 2 . Councils. : General board . and. Report. Figure 9.1. .. Median height . z. -scores for transplant patients <16 years old in 2013, centre specific and national averages.. UK Renal Registry . 17th Annual. Report. Figure 9.2. .. Median height .