PPT-Update on National Childhood Cancer Registry (NCCR)

Stephanie M Hill MPH CTR Associate Director NAACCR Objectives Discuss the justification for forming a national registry of childhood cancers Detail the NCCR infrastructure Provide an update on the current status of the NCCR. Cancer Data Saves Lives. The Vital Role of Cancer Registrars . in the Fight against Cancer. 18 Million. . 1.5 million. . 67%. Cancer Registries. Statistics. Treatment strategies. Public health initiatives. PRESENTED BY:. Penelope Layne: . RN,RM,Dp.OSH. , BSC Nursing . Mangement. REGISTRAR GUYANA CANCER REGISTRY. July 2013. STAFF. In addition to the Registrar the registry has:. Two registry officers responsible for the collection and abstraction of data from all sources.. St. Vincent’s Clay. NEFHIMA. September 10, 2015. Objectives. Discuss changes effecting cancer registry operations. Role with implementation of Survivorship Program. Discuss conversion from ICD 9 to ICD10 and impact on Cancer Registry Operations. Linda Cope, CTR. HCC Registry . Coordinator. copel@musc.edu. Commission on Cancer . DHEC’s SC Central Cancer Registry. CoC facilities collect data in standardized codes and report to NCDB. . SC Law: CHAPTER 35; . Impactful Data from a Highly Burdened Population. Principal Investigator. B Mark Evers, MD. Key Personnel. Eric B. Durbin, DrPH, MS, Project Lead. Jay Christian, PhD. Erin Haynes, PhD. John L. . Villano. Cancer Center Data Summit February 8, 2021. NCCR Purpose. Leverage and link disparate data from multiple sources to create an infrastructure that can better support research on childhood cancer. Core data derived from cancer registries- but extended and expanded to include additional relevant information such as. is. Discuss the purpose of the cancer registry. Explain the importance of the cancer registry. Define what a cancer registrar is . Identify the responsibilities. of a cancer registrar. Describe different types of cancer registries. Kimberly Herget, MStat. Utah Cancer Registry. NAACCR/IACR Annual Conference, June 2019. Acknowledgement: . Supported by the Centers for Disease Control and Prevention National Program of Cancer Registries under cooperative agreement NU58DP006320.. February 8, 2021. Stephanie M. Hill, MPH, CTR. Associate Director . North American Association of Central Cancer Registries. shill@naaccr.org. Overview. Introduction to NAACCR. NAACCR Data Exchange Standards. February 8, 2021. Stephanie M. Hill, MPH, CTR. Associate Director . North American Association of Central Cancer Registries. shill@naaccr.org. NCCR Working Groups. NCCR working groups serve in an advisory capacity to help NCI identify key activities, challenges and solutions related to the NCCR and to identify key areas on which the NCCR should focus. . BENCHISTA . Protocol – . co-designed by . University College London, UK and Istituto Nazionale dei Tumori di Milano”, Milan, Italy, with input from all participating . PBCRs.. . *PBCRs collate their depersonalised patient-level dataset according to the data requirements of the BENCHISTA protocol. . National Childhood Cancer Registry (NCCR). Data Summit. 2021 Feb 08. Johanna Goderre, MPH. NCI/DCCPS/SRP. Thank you!. - . Participants. - . Presenters. - . Planners, especially Maddy and Rebekah, ICF colleagues, breakout session leaders and notetakers, and our internal team at SRP. Summary Belgium. National . Coverage. . since. 2004, 11 . Mio. pop. Incidence. 2004-2011 . available. Flemish. . Region. (. northern. part) . since. . 1999 . 2 . Councils. : General board . and. Long Term Outcomes of Children and Young Adults with Cancer. Rajen. . Mody. , M.D., M.S. . – . Co-Project Lead, . Pediatric . Oncologist. Arul . Chinnaiyan. , M.D., Ph.D.. –. Co-Project Lead, .