PDF-(DOWNLOAD)-Extreme Caregiving: The Moral Work of Raising Children with Special Needs

Parents who care for children with special needs particularly those whose children have multiple disabilities or intellectual delays are pioneers in home health care and caregiving yet their experience and expertise are rarely recognized This book collects parent narratives personalexperience and academic research to portray the lives of parent caregivers looking at both the trials and the triumphs inherent in raising a child with special needsParents raising children with special needs often must devote all of their resources both tangible and spiritual to providing care long into their offsprings lives Their experience exceeds the usual parameters of parenting This book examines all of the facets of their parenting role from thecare they provide to the challenges they face and questions many assumptions It presents parents as neither emotional wrecks nor overburdened saints but as moral individuals struggling to find their own way through relatively unexplored territoryThis book begins to recognize the moral consequences of providing longterm care for a child with complex needs Using a virtue ethic framework it isolates the various tasks involved and evaluates the moral demands placed on the parent attempting to perform them On their journey to provide fortheir child the best life possible parents must alter their own lives and attitudes and become the sort of person who can perform the necessary caregivingRaising a child with special needs demands from the parent a reassessment of their personal and social lives Some of the consequences such as the presumed emotional and physical burden of constant attentiveness and the numerous unexpected responsibilities have been reported previously But theneed for competence which drives an acquisition of medical knowledge has not previously been analyzed nor has there been recognition of the enormous moral task of encouraging identity formation in a child with intellectual delays or disabilities For a child who cannot attain independence parents must continue to provide care and support into an uncertain future. Getting Started – Vote 1. How . much do . you know . about social capital in a health context. ? (select one only). Press ‘1’ – Nothing. Press ‘2’ – A little. Press ‘3’ – A reasonable understanding. Michelle Casey. What does it mean to be genderless?. According to . Mirriam. -Webster: “not reflective of the experiences, prejudices, or orientations of one sex over the other”. Not being confined to gender stereotypes of any culture. 2 Abstract Until recently, caregiving research has focused almost exclusively on caregivers of older adults with health problems, and there has been little focus on care recipient perception of the ca Overview For the Next Hour. Context of Families of Adults with Down syndrome. Current Research. Implications. Siblings of Adults with Down syndrome. Current Research. Implications. Takeaways. Context of families of adults with DS. Objectives. . Introduce . and define the term “Caregiving Youth. ”. Describe . the epidemiology of youth who serve as caregivers for family members in the US. Illustrate . the impact of family caregiving on children’s mental and physical health, school achievement and general . . Facilitator Guide. Managers Supporting. Caregivers in the Workplace. . Goals of Today’s Session. Who are caregivers?. Caregivers are.... What is Caregiving?. Caregiving Scenarios. One out of four of us will be a caregiver in our lifetime. . ELDERLY AND THEIR CAREGIVERS. Brought to you by: . the South Central Library System through a 2009 LSTA Grant . April 2009. Workshop in 5 Parts. Part 1 - Introduction. Part 2 - Overview of Caregiving/Caregivers. Fall 2010. Mebane & . Frassrand. Morality. A set of values that a person follows.. Actions which are preceded by moral judgments; they take priority over all other value judgments; implicate judgment of one’s self as either good or bad; and they tend towards a high degree of generality, universality, consistency, and inclusiveness (Kohlberg’s dissertation). 50/50 rule: sibling rivalry Thanks to HOME INSTEAD Senior Care, Inc. ; Dr. Amy D’ Aprix and Mary Alexander. Used by permission….. OBJECTIVES: To learn about “hot button” topics that often can cause highly emotional discussions. foods, . and are usually used in baked . goods.. Raising . agents are added to baked products during the . preparation stage. . They . create . gas, air . or . steam which expands when heated and causes the food to rise. . Parents who care for children with special needs, particularly those whose children have multiple disabilities or intellectual delays, are pioneers in home health care and caregiving, yet their experience and expertise are rarely recognized. This book collects parent narratives, personalexperience, and academic research to portray the lives of parent caregivers, looking at both the trials and the triumphs inherent in raising a child with special needs.Parents raising children with special needs often must devote all of their resources, both tangible and spiritual, to providing care long into their offspring?s lives. Their experience exceeds the usual parameters of parenting. This book examines all of the facets of their parenting role, from thecare they provide to the challenges they face, and questions many assumptions. It presents parents as neither emotional wrecks nor overburdened saints, but as moral individuals struggling to find their own way through relatively unexplored territory.This book begins to recognize the moral consequences of providing long-term care for a child with complex needs. Using a virtue ethic framework, it isolates the various tasks involved and evaluates the moral demands placed on the parent attempting to perform them. On their journey to provide fortheir child the best life possible, parents must alter their own lives and attitudes, and become the sort of person who can perform the necessary caregiving.Raising a child with special needs demands from the parent a reassessment of their personal and social lives. Some of the consequences, such as the presumed emotional and physical burden of constant attentiveness and the numerous unexpected responsibilities, have been reported previously. But theneed for competence, which drives an acquisition of medical knowledge, has not previously been analyzed, nor has there been recognition of the enormous moral task of encouraging identity formation in a child with intellectual delays or disabilities. For a child who cannot attain independence, parents must continue to provide care and support into an uncertain future. LO’s. Why raising agents are used in baking and how they work. The different types of raising agents. What happens if too much raising agent is used. Raising Agents. Mechanical. Something we ‘do’ – creaming, whisking, sieving, kneading etc.. Elliot Schreur. Chief, Division of Policy and Research. District of Columbia . Office of Paid Family Leave. Why?. How many babies were born over this period?. What proportion of the workforce is female and of childbearing age?. for Reporters. Kaiser Health News Webinar. December 2, 2015. Susan C. Reinhard, RN, PhD, FAAN. Caregiver Support Ratio. Source: D. Redfoot, L. Feinberg, and A. Houser, . The Aging of the Baby Boom and the Growing Care Gap, .