PPT-Patient & Public Involvement in research

Support for Researchers Working with Public amp Patient Groups Susan Hrisos Senior Research Associate amp Dave Green PPI representative May 2014 Format of session Introduction to Patient amp Public Involvement in Research. COASP 2015, the Netherlands. Research Involvement and Engagement:. Partnership with patients in a new publication. Research . Involvement and Engagement. is an international, interdisciplinary, health . involvement .  . Better. research  . Better. health . . www.phwe.org.uk. WELCOME. Workshop 2 – Patient and public involvement. Mike . Bell, Rosie Davies, . Hildegard Dumper. . and David Evans. September . 9-13, 2013. Facilitated by: Valerie Todacheene. Agenda. BIE Monitoring Initiative on Parent Involvement/Engagement. Review Requirements. Evidence Parental Involvement Requirements. BIE Resources/Training. Catherine Lee. Manager, North of Tyne Patient Advice and Liaison Service . 23. October 2013. Why involve PALS (Patient advice and liaison service)?. PALS involvement in MAGIC. 2. Role and function of PALS in: . Ann Jacoby. on behalf of . The Public Involvement Impact Assessment Framework (. PiiAF. ) Study Group (PI, Prof Jennie Popay). Background. C. onsiderable momentum for public involvement (PI) in UK health and social care research . . Support for Researchers Working with Public & Patient Groups. Dr Susan Hrisos, . Senior Research Associate, IHS. Dr Lynne Corner, . FMS . Director of Engagement. May 2016. Format of session. Rationale for Patient & Public Involvement in Research. for the active involvement of the public . NIHR Trainees Meeting, Leeds . 11. th. November 2014. Bec. and Derek. - a collaboration. Bec. and Derek. Bec Hanley. Research adviser. Derek Stewart. Patient advocate. Katherine Pollard, David Evans. , Jane Dalrymple. Margaret Miers, Pam Moule, Judith Thomas. Public involvement in UK health and social care (H&SC) research. DH (2005) – . service users/carers/public . “No decision about me without me”. Simone Leyden – CEO The Unicorn Foundation. Patient Involvement in Health Technology Assessment. Who we are, why we are here?. What is Health Technology Assessment (HTA)?. Types of involvement . (from Scottish government). At school. Example. At home. Example. Formal and Active. Parent. Councils. Parents evenings. Formal and Active. Reading . Parent. Council newsletters . Why involve the Public in something When we’re the “experts”?. It’s smart. . People Expect it.. It’s the law.. Why Involve the public?. Public. Anyone . who resides, works, has an interest in, or does business in a given area potentially affected by transportation decisions, including organized groups. . “No decision about me without me”. Simone Leyden – CEO The Unicorn Foundation. Patient Involvement in Health Technology Assessment. Who we are, why we are here?. What is Health Technology Assessment (HTA)?. in . clinical research in Ireland?.  . In general, PPI in research means research carried out ‘with’ or ‘by’ members of the public rather than ‘to’, ‘about’ or ‘for’ them. (. INVOLVE definition. nutrition guidelines and lay summaries. @. eupatientsforum. 15 July 2019, Brussels. Agenda. EPF and Nutrition. EPF activities to date. EPF and Nutrition. WHAT is the paper about?. Underlines the importance of .