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QIPP Digital and Technology Vision work stream – Phase 2 Online QIPP Digital and Technology Vision work stream – Phase 2 Online

QIPP Digital and Technology Vision work stream – Phase 2 Online - PowerPoint Presentation

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QIPP Digital and Technology Vision work stream – Phase 2 Online - PPT Presentation

QIPP Digital and Technology Vision work stream Phase 2 Online Personalised SelfCare for Long Term Conditions V2 April 2011 Contents Scope amp Vision Business Focus Rationale Benefits What is it Who wants it ID: 761135

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QIPP Digital and Technology Vision work stream – Phase 2Online Personalised Self-Care for Long Term Conditions V2 April 2011

ContentsScope & VisionBusiness Focus – Rationale, Benefits, What is it, Who wants it. Rationale for the VisionBenefits SummaryWhat are the componentsHow is it deliveredStakeholders & supportersTechnical Overview ArchitectureWhat is provided NationallyImplementation of National Enablers Benefits Case Detail on the benefits case 2

Scope & Vision

Online access to and ability to update a personalised care plan by patient / carer / integrated care team (subject to patient consent) Telehealth monitoring & self care tools linking with care plan Online Personalised Self Care for LTC Vision A fundamental shift in care for people living with long term conditions: From: Not harnessing and making the most of technology to support people to be more involved in decisions about their care through personalised care planning, information and supported self care . To: A locally driven digitally enabled holistic approach to health and wellbeing for patients and their carers, maximising self care and supporting the systematic transfer of power and knowledge to patients. A patient-centred care planning approach and shared management of conditions through the patient’s channel of choice. Overarching Vision What should a local digital vision include? A locally delivered online digital service for long term conditions to support self care and self management. Each locality should seek to provide:access to online medical records (through GP practice website)personalised care planning service (through a local site) that will allow LTC and End of Life patients and carers to be active partners in their caresharing of electronic care plans with relevant care givers (subject to patient consent)information flows between the medical record and the personalised care planconnect with digital patient and carer communities and online forums and directory of local servicestransact online (book appointments, see test results, online screening etc) record details and provide reminders for medication monitor vital signs through online smartphone applications and link with teleheath/care kit digital delivery of targeted information, modular e-learning materials and an online self assessment toolsecure communication with the care teamprovide patient / carer feedback on care and services (this will also inform the commissioning process) What are the key elements? Targeted information, signposting, modular e-learning, self assessment and service provision based on care plan, patient preferences, behaviour and locality Secure communication with a health professional through the patient’s channel of choice Links to moderated online communities, third sector and self management tools/support Ability to transact online appointment booking, test results and screening. Linked to care plan and medical record Patient feedback and service monitoring information captured. Supports commissioners to improve provision of services. Linked to commissioning toolkit Online access to medical records for patient / carer The following vision has been jointly developed by QIPP LTC and DTV workstreams

Online Personalised Self Care for LTC VisionWhat will be done nationally to support local delivery of the vision? 1. Information standards (Minimum data set for care planning) 2. Interoperability standards to link information from the GP system into the personalised care plan appointment booking, test results and other GP provided digital services link with telehealth systems 3. Identity and Authentication assured identity of the citizen4. Ability to view the personalised care plan from other settings 5. National Directory of Local Services6. National Directory of eLearning Resources7. LTC Commissioning toolkit (developed by the LTC workstream)8. Policy guidance for information governance and data ownership.

Scope SummaryA local portal providing an interactive online personalised care plan that could be shared between patients, clinicians and carers. The patient held care plan could be populated or enhanced by information flowing from open interfaces on the local clinical systems. The patient experience would include personalised and targeted information services (such as eLearning modules, local service discovery and signposted content). Patient identity management would be aligned with the cross-government Identity Assurance approach. Transactional services such as appointment booking could be requested but would still be delivered through local clinical systems. 6

Business Focus – Rationale, Benefits, What is it, Who wants it.

Rationale for the Proposition – Why the focus on LTCs?There are around 15 million people living with a long-term condition in England. These people are the main driver of cost and activity in the NHS as they are disproportionately higher users of health services – representing 50% of GP appointments, 60% of outpatient and A&E attendances and 70% of inpatient bed days. This means 30% of the population account for 70% of the total health and care spend.Current trends suggest significant growth in the number of very high intensity high cost users – these are often people with multiple conditions or co-morbidities. While the number of people with any long term condition should be relatively stable over the next 10 years, the number with 3 or more conditions will increase by around 60%. Compared to social class I, people in social class V have 60% higher prevalence of long-term conditions and 60% higher severity of conditions, though this varies significantly by condition. Generally prevalence increases with age, though notably asthma is fairly steady at around 4% regardless of age. The average annual cost of someone without a long term condition is around £1,000; which rises to £3,000 for someone with one condition and to £8,000 for people with 3 or more conditions. The additional cost to the NHS and social care for the increase in co-morbidities is likely to be £5 billion in 2018 compared to today. Plans need to be put in place now to address the health and social care issues facing people with multiple long term conditions. The LTC QIPP workstream is working to improve clinical outcomes and experience for patients with long term conditions in England. This digital vision forms part of the workstream’s ambition to maximise the use of self care and self management.People with LTCs want to be more involved in decisions about their care, they want access to information to help them make decisions and they want to understand their condition and have more confidence to manage it. They want joined up, seamless care and do not want to be in hospital unless absolutely necessary. The digital service will provide an additional channel rather than be a complete replacement for existing support and management channels, but for those who are able and prepared to make use of it the benefits can be significant. From some informal discussions with GPs and other clinicians it is anticipated that up to 20% of LTC patients could be engaged with this types of online service.

Benefits SummaryNHS expenditure on LTC is baselined by:Total number of patients with LTCs 15.4mPercentage of NHS budget spent on LTCs 60% - 70%LTC engagements are estimated from Engagement volumes and unit cost by engagement type (from Channel Shift Data)The percentage of NHS expenditure on LTCs is applied to estimate LTC engagement volumes and total expenditure, by engagement, for LTCs Online adoption of LTC patients managing their conditions on line estimated between 7% and 20% For their transactional consumer services, DVLA have 51% adoption while HMRC has 67% for self assessment The projected financial benefits are: Achievable scenario £298m (20% uptake, improved efficiencies assumed) 9

What is it10 A locally delivered online personalised care planning service (through a local site) that will allow LTC and End of Life patients to be active partners in their care, working together with their care professionals (health and social care). A digital service that enables information flows between the GP held record and the personalised care plan, the online development of the plan by the patient, and enables the digital delivery of targeted information and learning material based around the plan. This will also allow the patient to: connect with digital patient communities allowing patients to learn from each other through online forums be able to transact online (book appointments, see test results, etc) including securely communicating with their care team to actively record/ provide reminders for their medication and monitor vital signs through online smartphone applications provide feedback on services to be able to inform the commissioning process using online rating services (e.g. “DocAdvisor”) share their electronic care plan with relevant care givers (subject to patient consent) Level 0b:At risk population who are likelyto move to Level 1 but could be delayed in onset Level 0a:Healthy population who could be prevented from getting LTCsTarget Population

What is it – Features (services) of the digital service Commissioning Toolkit (Fo r LTC) Localised Care Pathways Directory of local services Online Care Planning Online peer support & social communityOnline Screening TargetedContent & Signposting Access/Extraction of Medical Record Personal Health Record Identity & AccessManagement Contact Management & Preferences Self Management Tools Provider Ratings Alerting and Intervention Online Learning Online test requesting Patient Incentivisation Online appointment booking & repeat prescriptions Online Patient & Clinician Communication Personal Health Budgets LOCAL LOCAL LOCAL NEEDS WORK BEST PRACTICE EXISTS LOCAL LOCAL NATIONAL NATIONAL LOCAL LOCAL LOCAL NEEDS WORK NEEDS WORK NEEDS WORK NEEDS WORK BEST PRACTICE EXISTS BEST PRACTICE EXISTS BEST PRACTICE EXISTS LOCAL LOCAL LOCAL LOCAL NEEDS WORK BEST PRACTICE EXISTS LOCAL LOCAL LOCAL LOCAL LOCAL NEEDS WORK NEEDS WORK BEST PRACTICE EXISTS BEST PRACTICE EXISTS BEST PRACTICE EXISTS BEST PRACTICE EXISTS BEST PRACTICE EXISTS NEEDS WORK NEEDS WORK Central co-ordination to promote use of Digital Technology across QIPP workstreams and local teams: LOCAL

How is it DeliveredThe national vision is to deliver a locally driven digitally enabled holistic approach to health and wellbeing for patients and their carers, maximising self care and supporting the systematic transfer of power and knowledge to patients. A patient-centred care planning approach and shared management of conditions through the patient’s channel of choice. This locally delivered online service will provide a wealth of self care tools, advice, education, access to medical records and care plans and communication tools. In turn, this will ensure that patients and carers have access to timely, accurate and personalised information so they feel supported and encouraged to be a partner in their own care. [NB: the national vision is not about developing a central electronic care plan] The role for the centre will be to support local development and delivery of this vision through the creation of a number of national levers / enablers . This is primarily through business as usual activities within the Informatics Directorate to develop standards and interoperability specifications. The national LTC workstream will have a key role to play in the delivery. There are a number of national enablers such as the commissioning toolkit for LTCs that they will produce and publish. They will provide a consistent point of engagement with the local LTC teams to align and accelerate the adoption of digital technology to maximise patient self-care. The local NHS will create the primary pull for the service through their commissioning mechanisms and local/regional digital initiatives. Actual delivery will either be by market suppliers or local/regional NHS development.

Who wants it – Key StakeholdersWho RoleStatus / Support Sir John OldhamQIPP U/C and LTC Lead Involved in development of the Vision and wants to provide support through the national LTC work-stream. Charlotte Quince PM for LTC QIPP Supports the vision and approach. Wants to continue working with DTV to align and help accelerate use of digital technology to maximise self-care. Rob Benson EOL Digital LeadSupports the vision and approach. Wants to continue working with DTV to create alignment for End of Life care plans.Sophia ChristieEOL & Putting Patients FirstSupports the vision and approach. Wants to continue working with DTV to create alignment for End of Life care plans. Dr Anne TalbotUrgent Care Work-stream lead for DashboardsSupports the vision.Dr Steven LeitnerEofE LTC & Right CareSupports the vision.Julie YaxleyEofE LTC Supports the vision. Looking for support from the national enablers for the patient and workforce portal currently being developed to deliver personalised care planning and other services.Stephen Johnson & Tracy MortonDH LTC Policy LeadSupport the vision.Dr Peter Short & Dr Emyr Jones & Rob PitcherDHID NCLsProvided review and input to development of the vision and approach. Julia ColettaY&H LTC LeadSupports the vision.Dr Shahid Ali and Dr Richard PopeY&H Clinical Supports the vision. Looking for support from the national enablers for the patient and workforce portal currently being developed to deliver personalised care planning and other services.John ThornburyNHS WorcsSupports the vision.Geoff WedgewoodWest MidsSupports the vision. Looking for support from the national enablers for the extension of the NHS Local platform to deliver personalised care planning and other services.Dr Amir HannanNW – GP and HICAT MemberSeen vision. Thinks that we need to focus on getting patient access to their GP Record and access to Pathways before the other features. 13

Technical Overview

How would it work – Logical Architecture15

How would it work - NarrativeMarket delivered digital patient portal that provides online care planning component which adheres with a national ITK information standard. [National Enabler 1]Patient and GP develop the initial care plan using templates setup in the GP System. The plan document is then pushed to the digital patient portal using an ITK content specification based on the information standard above. [National Enabler 2]The patient is also able to access their GP held medical records through the GP system portal and can manually copy across any key information into their patient held record.The digital patient portal supports the cross-government Identity Assurance standard and enables the patient to securely logon using an existing digital identity. [National Enabler3] Targeted and personalised information is presented to the patient using sources such as a national directory of local business services and a national repository of elearning modules. [National Enabler 5 and National Enabler 6] The digital patient portal provides integration with many personal medical devices such as blood glucose meters and enables information from these to be added to the patient held record and provide analytics and alerting. 16

How would it work - Patient ScenarioA newly diagnosed Long Term Condition patient attends an appointment with their GP to discuss their condition and to start developing a personalised care plan. The tool used by the GP adheres with the national information standard and process guidelines for personalised care planning. During the consultation the GP discusses the benefits to the patient of using an online care plan and personal health record portal. The local GP consortia have recently commissioned such a service to provide better support for their LTC patients. The portal aims to help patients get targeted and personalised information about their condition, provide tailored online learning, and enable self management for the patient of their condition. The patient agrees and the GP requests the practice administrator to create an account for the patient and with the recent development of cross Government services the patient is able to use their existing post office credentials to authenticate with the portal rather than having to create yet another set of username and passwords. The patient receives an email with a link which asks them to authenticate via the post office service to complete the portal account setup. Once the account is setup the GP requests that a copy of the care plan that was drafted in the GP System, together with details of the patient’s condition and medication information is sent to the patient’s online care plan. The care plan is extracted from the GP System, by the practice administrator, to a standard format that can be interpreted by any care planning and PHR system that adopts the national standard. The care plan is then attached to a secure message within the portal and sent to the patients inbox. (No direct integration between GP System and Care Planning Portal at this point in time.) The next day the patient receives an email notification to the hotmail account they use on a daily basis telling them that there is a new message in the portal. When they login they can see the new message from the practice and that the attached care plan has already been imported to their PHR and as a result the portal automatically tailors the suggested information and training modules that the patient should consider. The patient decides to register for one of suggested generic online condition management training modules and completes the first module at that time, which is delivered using a mixture of video and CBT. With access to the other targeted information and having completed the first training module the patient realises they have a few question about managing their condition and decides to send a secure message from the portal to the practice asking for advice. The message is picked up by the regular triage process in the practice and one of the nurses is allocated to review the questions. The nurse replies and also requests access to see the care plan and other information held online by the patient so they can provide the best support possible. The patient receives an email notification that a new message is waiting in the portal. They are able to review the nurses response which provides them with the reassurance they need and at the same time approve the request for the nurse to have direct access to the information held by the patient within the portal. 17

Patient perspective – a view of the service (care planning) 18 Now Future experience I’m really worried did not think I had a health problem Diagnosis & Assessment There’s a lot of info to take in! I am not sure where to look for help. I have access to the key information from my medical record and good information about the standard pathway for my condition No access to medical record, pathway or clearly sign-posted information. Simplified pathway Initial Diagnosis Condition Information Develop personalised care plan Review & Agree Plan Share Plan Use Plan I did not realise that what I eat and being overweight could have such a big impact. I had never thought about trying to set goals before. I can start a bit at a time to manage what I eat and do more exercise. My GP really encouraged me and helped to refine my goals and also explain …. I was able to share my plan with my spouse who was then able to provide more support to help me achieve the goals Tracking my progress using my mobile phone was really easy and I could soon see the benefits Conversation with the clinical team is focused on the medical condition and I don’t have the few actions we agreed written down to take away. I can start to think about the actions and goals that will work for me in my own time before seeing the GP. I can document them online

Patient perspective – a view of the service (manage stage) 19 I need to book my regular clinic visit Book Annual Appointment I can use the digital service to book my clinic appointment. I opt for an email rather than letter to be sent with details of the appointment. My busy working day made it hard to phone the clinic when they are open. I get a letter 3 days later with details of the appointment. Now Future experience Simplified pathway Attend Clinic Receive Test Results I need to take more time off work to get the test results which were as expected. I get my test results online with comment from my GP who confirms they are within normal tolerance. No need to take any time-off work. I provide some ad-hoc information about how I feel my condition has been over the last 12 months I can share my personal care plan which includes the notes and vital signs I have recorded my-self over the last 12 months I get a request to provide feedback about the clinic using a simple online form. Provide Clinic Feedback I cannot find an easy way to provide any feedback on the clinic. I get a text message reminder the day before the clinic appointment ( From PHR or Clinic ? ) … system checks that all information/prep in place before the clinic appointment I don’t want to take more time-off work just to get my test results . I want to provide some feedback about the good treatment I have just had at the clinic I need to prepare a summary of how I have been managing since the last clinic Continuing Self Care Support & Management

Delivery

How will it be delivered – Options OverviewA number of delivery options have been considered but when framed in the context of the emerging NHS structure it is clear that the customer/purchaser for an online care planning service will need to locally driven through groups of GP Consortia perhaps supported by their PCT Cluster. In the interim the approach is to work closely with the National QIPP LTC work-stream who is starting to have the conversation with the NCB and Consortia and is also engaged with a large group of local LTC teams. The National LTC work-stream itself does not have the funding (or mandate) to commission such digital services but will have a key role in promoting the digital vision and supporting the local initiatives. A successful digital service in this space will need significant local input to ensure it provides a localised as well as personalised capability making delivery from the centre an unattractive option. It is also recognised that market forces should be allowed to play so that there is some competition between the different digital patient portals that are expected to start emerging later in the year. Therefore the recommended approach is to develop and promote a set of national enablers which will increase the speed of delivery of any local/regional initiatives and which can be used by any portal supplier . The next slides set out these national enablers the rationale for their selection and the proposed implementation plan. 21

Details of the National Enablers22National Enabler - National Information standard for "personalised care planning”A minimum information standard to enable consistency of data set used in different solutions and flowing between different solutions across the health and social care system. Used to support the health and care planning required jointly between LTC patient and their care team. Foundation for this is examples that already exist from DH LTC Policy and NHS local initiatives. National Enabler - Interoperability standard for information services - to link information from the GP or Departmental system into the digital patient portal The message specification to enable repeatable/interoperable flow between clinical and Online Care Planning/PHR Systems. Based on the information standard developed in item 1. Also used to support the transfer of care plans between different PHR Systems. Support multiple transports including a manual export/import. National Enabler - Interoperability standard for information services - to link information/events from the care plan and self management portal back to the clinical systems. The message specification to enable repeatable/interoperable flow between Online Care Planning/PHR Systems and Clinical Systems (e.g. GP, Departmental) Foundation for this is the TeleHealth work on PHMR to enable the flow of vital signs back to GP and other clinical systems.

Details of the National Enablers23National Enabler – Authentication using the cross-government Identity Assurance StandardsSimple online mechanism to enable patient to re-use an existing online identity and authentication mechanism such as paypal.Makes use of the National Identity Assurance Scheme (IDA) that is currently in development by the Cabinet Office. Based on SAML standards. National Enabler - NHS Attribute provider including PDS matching for NHS number. Centralises the matching of demographic details to PDS to provide NHS number and other attributes as part of an IDA based authentication process. Required for HealthSpace and potentially as a component of the emerging technology strategy. National Enabler - Consolidated directory of local business services An open access directory to hold information about all commissioned (and other) services. Enabling patient to search for relevant and local services. National Enabler - Consolidated directory of online content, e-learning, and online decision aids An open access directory to hold information about all elearning modules/resources that are available to workforce and to patients.

Implementation Approach for National Enablers24National Enabler - National Information standard for "personalised care planning”Implementation: Creation of draft information standards for usage by local projects within 4 months National Enabler - Interoperability standard for information services - to link information from the GP or Departmental system into the digital patient portalImplementation: Creation of draft interoperability standard based upon information standard within 4 months. National Enabler – Authentication using the cross-government Identity Assurance Standards National Enabler - NHS Attribute provider including PDS matching for NHS number. Implementation: Creation of a delivery programme in providing an IdA solution for Health based upon the IdA technical specifications. This would include the delivery of an IdA Hub as well as the NHS Attribute provider. National Enabler - Consolidated directory of local servicesImplementation: An assessment is proposed on the existing directories of services (Pathways Capacity Management System, NHS Choices, Choose and Book) to agree on the most appropriate directory of business services and the development and transition costs to deliver a single consolidated national directory. National Enabler - Consolidated directory of online content, e-learning, online decision aidsThis exists (eLearning Repository) and a national directory is to be recommended through the Technology Enhanced Learning Strategy (DH Workforce).

East of England – Electronic Personal Health Planning In the East of England an innovative approach is being taken to deliver an eHealth portal for patients and healthcare professionals called “ NHS.info” which will be free of charge to the NHS and patient. It incorporates a HealthCare application store which will provide the revenue to sustain the platform. This is planned to go live in Q4 of this year and includes a free personalised care planning application. The portal has 5 main areas: Information; Education/Skills; Tools/Toolkits (under which the electronic PHP will sit); Support; Communication. Yorks and Humber – Co-morbidity care planning and e -consultations A dual approach is being taken. Care planning templates for TPP S1 are now in use and being shared across the SHA. The lead clinicians who developed these templates are now looking at how to move this approach to be online and patient-centred – this work is wrapped up with Microsoft and a small company called DHS. Their plan is to pilot the new solution at 1 practice in Q2 2011. West Midlands/Worcester – NHS Local Plans are being developed to enabled online care planning for a number of regions within the West Midlands. There is an existing digital platform called NHS Local which would be the natural home for such a service. The team have also been talking with DHS/Microsoft and East of England to explore how/if their capabilities could be used to deliver the care planning elements. North West – Co-mobility care planning, condition information sign-posting The SHA are looking at options to pilot a care planning service and have been in discussions with a company called In Touch who have developed a care planning solution “My Self Care Plan”.Other Regions – Oxfordshire have just deployed an online tool from InTouch called “My Self Care Plan” to support developing care plans across the region and are actively working to embed this across their GP practices. Gloucestershire are about to go-live with the call InTouch solution in April and Bristol is also likely for the Summer. What’s happening currently? – Local initiatives

Benefits Case26

Benefits Summary for LTC online serviceBenefit ThemeAreaAccessibility The care plan is available through a range of channels – both creation and read / update. The patient held record and plan can be shared by the patient with who they choose including family and members of the care team. Availability Creates a permanent copy of the plan and subsequent actions taken by the patient. Time Patient and Clinical. Removes the need for all interactions between patient and care team to be face to face. TimeClinical. Removal of unnecessary steps in the process – e.g. f2f appointment to get test results.SafetyPatient captured information can be accessed electronically by the clinician, providing patient authorises the access.ConfidencePatient. Self management possible through shared care plan, targeted information and accessible / available support network ExperienceService designed around the needs of the user – both patient and clinical. In the case of the patient a “lifestyle” experience delivered by the market. Transactional Reduction in DNAs through better scheduling and access to services, improvement in staff productivity (available time) as a resultQuality Ability to probe further for information to expose history and possible undiagnosed conditions Improve online learning and education opportunities to the patient27

Overall Benefits and Justification for online serviceFinancial (National scale, £m) Qualitative Patient Choice & Portability Timely Alerted Responses Personal Care Plan and online development Personalised and targeted Information Convenient access 24x7 Enables patient partnership in care eLearning Transactions e.g . bookings Reminders for meds, monitoring Local evidence West Midlands eLearning and CPD Support for staff - £50m benefit over 5 years ( Market tested ) DH Expert Patient Programme Services demand reduction e.g. (7% in GP consultations ; 10% in outpatient visits ; 16% in A&E attendances ; 9% in physiotherapy use) – this is mainly F2F delivery; online would be a significant contributor to achieving these figures Improve patient self efficacy Quality & Consistency National Enabler Cost £££££

Commentary on estimated input parameters to Benefits CaseThe key parameters in the LTC Benefits Case and the rationale for the values selected are:Online adoption of LTC patients managing their conditions on line is estimated at 20%Best practice outside Health , but within Public Sector, for transactional consumer services are DVLA who have 51% adoption for online vehicle licensing and HMRC who have 67% online adoption rate for self assessment The number, type and cost of patient engagements is taken from the DH Channel Shift Report, with between 60% and 70% of total costs expended on patients with LTCsThe primary financial benefits are associated with efficiency of patient engagements – reduced demand, emergency admissions, DNA rate, durations and a booking administration – realised through the online channel. The efficiency estimates for online, and the rationale, are as follows: Reduced number of engagements. Currently 33% of patient engagements result in “Advice/ Guidance/ No Treatment”. Online self management realises a better informed patient, able to receive personalised guidance in lieu of F2F advice. Across the various patient engagements, for those patients managing their LTCs online, we have a range of demand reduction between 0% and 8% (c/f 33% figure) Reduced emergency appointments same logic and efficiency as above, with efficiency improvements ranging from 0% to 8% depending on engagement type Reduced DNA rate NHS data quotes DNA rate of 10%; we have assumed that a reduction in DNA of between 6% and 12.5% (absolute reduction of 0.6% and 1.25%)29