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Arizona Birth Defects  Monitoring Arizona Birth Defects  Monitoring

Arizona Birth Defects Monitoring - PowerPoint Presentation

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Uploaded On 2018-10-31

Arizona Birth Defects Monitoring - PPT Presentation

Program ABDMP ABDMP 3 Components Surveillance Prevention Referral to Services Surveillance Surveillance Goals Timely Accurate Complete Data Bureau of Public Health Statistics CDC ID: 706155

defects birth syndrome arizona birth defects arizona syndrome prevention surveillance oral anomalies screening abdmp cleft azdhs rates higher hospital

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Presentation Transcript

Slide1

Arizona Birth Defects

Monitoring

Program

(ABDMP)Slide2

ABDMP

3 Components:

Surveillance

Prevention

Referral to ServicesSlide3

SurveillanceSlide4

Surveillance

Goals: Timely, Accurate, Complete Data

Bureau

of Public Health

Statistics

CDC

and National Birth Defects Prevention

Network

s

tandards and recommendations

Data calls for CDC, NBDPN,

Birth Defects Research

publication; multi state research projects; cluster studiesSlide5

ABDMP Surveillance

33 categories of defects

Population based registry

Active surveillance

Sources:

Hospital Discharge data

Hospital Discharge Indices

Birth and Fetal Death CertificatesSlide6

Significance in Arizona

Arizona:

1,500

children are born with serious birth defects every

year

the

reportable birth defect rate for Arizona is 7.9 cases per 1,000 live and still births

.

In

2009, children (0-17) with birth defects accounted for about 13.3% of all pediatric hospitalizations

.

Birth defects are a leading cause of death for infants

(>

28 days; < 365 days

)

20% of all infant deaths

Each year, more infant deaths are attributed to birth defects than prematurity and SIDS/SUIDS combinedSlide7

Arizona TotalsSlide8

Arizona

The most common type of anomalies are congenital heart

defects (CHDs).

The

most common

specific

anomalies observed for 2010

are Down

syndrome,

oral clefts, pulmonary

valve atresia/stenosis, and

gastroschisis

.

AZ has higher than average rates of oral cleft defects, and slightly higher rates of

spina

bifidaSlide9

Home Births and Birth Defects

2000-2011: 1-5 homebirths of children with birth defects per year

Anomalies noted vary greatly; include:

Down Syndrome

Cleft lip with and without cleft palate/Cleft palate

Various CHDs

Tetralogy

of

Fallot

Coarctation

of Aorta

Transposition of the Great Arteries

Gastroschisis

Congential

Diapragmatic

Hernia

“Lethal” anomalies

Anencephaly; Trisomy 13, 18

Families with “lethal” diagnoses

may

choose to delivery at home

or birthing centers to

limit medical intervention/interference and to improve quality of time with childSlide10

*Important Notes*Slide11
Slide12

Associations

Down Syndrome

Higher rates of heart defects, hearing loss,

Oral Clefts

Midline defect

Syndromes

Feeding issues

CHDs

25% are not

diagnosed prenatally

May not present for several days or even months

Pulse

oximetry

screeningSlide13

PreventionSlide14

Prevention

Primary

– Prevent Birth Defects

Secondary

– Prevent Morbidity & Quality of Life Issues

Tertiary

– Preventing Birth Defect Related Deaths

Slide15

Secondary and Tertiary Prevention

Newborn Screening

Hearing Screening

Pulse

Oximetry

Screening

Secondary Issues/ Associations

standard screenings

geneticsSlide16

Primary Prevention:

The

causes of 65-75% of birth defects are unknown.

Known

causes

include

:

Genetics

15-25%

Environmental

10%

Maternal

Conditions

Infections

ExposuresSlide17

Areas for Intervention

Preconception/Prenatal/

Interconception

HealthSlide18

Folic acidCDC recommends 400 mg daily for women of childbearing age

Taking

folic acid before pregnancy can reduce the risk of NTDs by up to 70%

Inadequate folic acid also linked to increased risk of oral clefts, Down syndrome, autism…

Interpregnancy

Intervals

18-24 months between end of pregnancy and conception of next

Regardless of outcome: miscarriage, preterm, stillbirth; live birth

40

% increase in low birth weight babies

Potential increased

risk of miscarriage, preterm birth, low birth weight, birth defects, maternal death

Alcohol and other drug exposure

Alcohol

exposure during pregnancy is the leading preventable cause of birth defects, cognitive disabilities, and neurobehavioral disorders.

Alcohol affects whatever organ or system that is currently growing, including:

Brain, heart, bones, kidneys, eyes, ears, faceSlide19

Referral to ServicesSlide20

Referral

Medical Treatment

Babies with birth defects born at home were seen at hospitals same day-months after delivery

Support Programs

Social workers

Community groups with hospital visitationSlide21

Resources

http://

www.azdhs.gov/phs/phstats/bdr/resources.htm

ADHS website: A to Z Index: B: Birth Defects Monitoring Program

Sharing Down Syndrome

Down Syndrome Network

Spina

Bifida Association of Arizona

Feeding Matters

Mended Little HeartsSlide22

Dianna Contreras

Arizona Birth Defects Monitoring Program Manager

dianna.contreras@azdhs.gov

602 542 7335

abdmp@azdhs.gov